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Sorry to hear about that. I have Crohn's-related arthritis and one of the (many) joints affected are my finger joints, including thumb as well. Is the joint reddish or warm as well, swollen? Does an ice pack help with pain? If yes, that could indicate inflammation. One possible reason for...

Have tried different ones so far. Can recommend: Consulting a nutritionist specialised in IBD (so much better quality of life from that), audio-guided meditation/ imaginary journeys (audio) for feeling more relaxed and trusting the own body, acupuncture for pain (for my arthritis joint pain in...

Hi Chantelle, sorry to hear what you are going trough. To make a long story short: There is inflammation going on in your body (sacroiliitis), which may occur isolated but could also be related to another condition, such as IBD or any sort of arthritis. Are you treated for sacroiliitis? It can...

I have been there too/ am there from time to time again/ am there currently (take what you like lol). It's not uncommon, my nutritionist said to me a few days ago. For me, it resulted in loss of appetite even with very low signs of inflammation, so more or less a result of that fear. I was on...

Hi, really need your personal experience of those who are diagnosed with Crohn's in the small intestine only or having had episodes of Crohn's active in the small intestine only::sign0085: What does it feel like for you? My nutritionist thinks my gastritis that I'm dealing with currently could...

I tried L-Glutamine a (longer) while ago and it did not do anything for me (which doesn't mean it can't have any positive effect at all, we are all different).

Hi, I have a flare-up of my chronic (non-Crohn's) gastritis (in the antrum, type C).:yrolleyes: So far I feel able to eat dissolvable oats, creamy potato purée, some low fat cheese, some quark, tiny amounts of butter. Tried some more fat to up my calories but didn't feel nice at all. In...

Can you get colonoscopy and gastroscopy in addition? Crohn's could be anywhere in the digestive tract, so sometimes even MRI is necessary to check the small intestine for inflammation.

I think the term "cure" isn't used yet for Crohn's or IBD as the mechanism and especially causes for inflammation are still unclear. If you don't know what to fight exactly, how can you fight it long term? Probably that's the whole dilemma. Lately, the understanding about the mechanisms...

If it helps: I personally am allergic to Dotarem but not to Multihance and another one (forgot the name). I'm not that familiar with drug allergy but maybe it can be tested which other contrast media could be an option? Otherwise I would suggest to think about MRI of the small intestine. My...

So sorry to hear that you suspected the correct diagnosis by yourself already... BUT it's good to know what is going on so now you will feel better very soon hopefully, even though you make very small progress first or you have to find the right treatment first. What do you mean by painful...

Thank you FrozenGirl, yes, I hope his docs can work something out for him.

Thank you, yes, I know that MTX can be combined with any biological, but MTX would not be an option, too slowly acting. The inflammation is severe and markers of inflammation are sky high, plus extreme pain, extreme diarrhoea, anaemia, lack of iron, 15kg+ weight loss (now definitely underweight)...

Hi everyone, a friend of mine suffers from severe pancolitis and nothing seems to work. He is on Entyvio now but it isn't effective yet. Do you know of someone being given Ciclosporin or Tacrolimus via iv, simultaneously while receiving Entyvio? It seems as if his doctors aren't really...

Welcome to the forum and sorry to hear you are dealing with these severe symptoms for such a long time already. Basically, it could be anything of what you mentioned or also another condition. Only proper colonoscopy, and if clear, probably also MRI can exclude IBD. IBS is an exclusion...

What about trying a different biological if combo therapy isn't an option?

I had really bad gurgling when SIBO was present. But if you are taking iron supplements and it only occurs when you do take them, you see what the reason is. I couldn't tolerate any of the standard iron supplements, gave me really bad tummy ache.

For me it works best to just have boiled carrots, some potatoes probably and some dairy, so no grains or much fiber apart from cooked vegetables. That's kind of what I have for breakfast and then that's it, otherwise I get into trouble if I have lunch or more than this small breakfast. Once I...

Yes, I think they will be okay. If you have trouble with lactose, go for the lactose reduced ones. Otherwise, if you don't have milk allergy, there is no reason why milk should upset you. If you are flaring, probably anything would upset your tummy to some extent, so go for it and give it a try...

No idea, I'm sorry, but a few years back I had this kind of pain as well, was really in my belly button and behind, it came all of a sudden and was quite strong, then disappeared again. Haven't had it in the last few years luckily, was a really bad and sharp pain. No idea what that was, but that...