Search results

Thank you ladies for the assuring and calming words. I guess the engineer in me is used to focusing too much on the lab numbers. I was getting ready to put all my labs in an excel spreadsheet to track everything since I've been diagnosed. Lol In my mind I'm ready to move over on to something...

So I've been on humira for roughly 1.5 years now and back in October 2020 by fecal calprotectin was 30. Yay, finally had normal labs & feeling great = clinical remission!! Fast forward to 2 weeks ago follow up labs, fecal calprotectin was 151. I feel well over all, just softer BMs. I'm guessing...

Exciting news! Earlier today, the U.S. Food & Drug Administration announced the approval of ozanimod (Zeposia®), a new oral medication for the treatment of adults with moderately-to-severely active ulcerative colitis. Ozanimod is the first sphingosine 1-phosphate (S1P) receptor modulator...

I've been on weekly humira (one 40mg pen every week) for a year now. I have zero side effects and my UC is in clinical remission (my labs are normal..still waiting on a follow up colonoscopy). I don't think going to weekly humira from bi-weekly necessarily has any added risks. Many of the...

That's really promising! I am still waiting to hear back from the study to schedule my post vaccine lab work.

Before I got my vaccine I had the same concerns as you regarding the timing so I called my GI asking for specifics. He instructed me to continue with all my medications as scheduled..no skipping doses even if the vaccine doses landed the same day. With that said, my first dose happened the same...

I know that for most of us with IBD, hair loss tends to happen a few months after recovering from a flare. But since you mentioned you have been in good health, it could be a variety of other things causing this. Early on in my diagnosis with UC last year, I came across this video explaining...

The lab work is being done by Labcorp and is being paid for in my case as part of the study. I'm sure people can request it on their own but I'm not sure if the insurance companies are willing to pay for it.

I signed up for this study a few weeks ago since I'm on weekly humira and low dose of azathioprine (50mg/day) and got accepted. I'm just waiting to get my post vaccine bloodwork done. It will be interesting to see what the study and my personal antibodies levels are. A part of me believes I...

I'm glad to see my experience is useful to others. It's been 4 weeks since the procedure and things are still looking good. I have 20/15 vision now and my only side effect is eye dryness. I was told this will subside with time. Still not regrets!

I 2nd MLP advice. I have used the generic version and they work well. I pay $10/month with insurance.

I appreciate your concern, but I already got the procedure done 2.5 weeks ago. Everything went extremely well and the doctors were actually pleased to see that my eyes are healing faster than they anticipated. I'm actually already seeing 20/20!! The facility I had the procedure done at has...

With regards to headaches while on humira, folks in another board told me to hydrate well the day I inject. Apparently many get what they call the "humira hangover" if they don't hydrate well. This seems to help most avoid headaches and the lethargic feeling after injecting. I personally...

I agree with others, always consult with your doctor since we are all on different med combinations and have unique circumstances. I did ask this question to my GI at my last appointment since before UC I was a big fan of wine..loved trying new ones and doing wine tastings. He told me he...

Thanks for the honest feedback. Yes, lasik is not a medical necessity but it will definitely improve my quality of life. I have been wearing glasses since I was 8 and contacts since my late teens. I am a very active (I do MMA, running, swimming, tennis, etc) person so I am looking forward to the...

Has anyone with UC had Lasik eye surgery while on weekly humira? I also take Apriso and azathioprine (50mg daily). For the longest time I have wanted to get it done since I have terrible nearsighted vision (-8 on both eyes). Long story short I went in for an evaluation to see if I'm a...

Thank you MLP. Glad to hear your kiddo is doing well. I hope I'm lucky enough to have humira work for years to come.

After 11 months on humira, I was told today by my GI that my UC is finally in clinical remission!! My fecal calprotectin is currently 30. He'll be doing a follow up colonoscopy in a year to verify if I'm in endoscopic remission but if things continue to improve, he's confident my scopes will...

So my numbers are usually within normal range with the exception of when I was first diagnosed. Honestly, I was surprised to hear a few were out of range similar to you as I felt fine. My GI wasn't too concerned...he pretty much told me "see you in 3 months and we'll see what your labs show...

I'm no expert but if I remember correctly a low hemoglobin indicates bleeding. Now the cause for this could be a variety of issues related to IBD or other things. For example in women this could be common due to menstrual cycle. I personally have had a slightly low hemoglobin which my GI told me...