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Crohn's Disease Forum

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  1. lblair

    Disability/Unemployment/Financial Difficulties Support Group

    Okay so I got my your not approved letter from SS a little upset the Dx are not right one of the main dr that have treated me for depression and anxiety are not even listed as files requested and they have my job all wrong?? Umm no wonder why you have to appeal a number of times for them to get...
  2. lblair

    Disability/Unemployment/Financial Difficulties Support Group

    Jennifer how long did it take for them to denie you each time??? Just wondering I have applied in July and still waiting??? Thanks Good luck!!!
  3. lblair

    Severe Rectal Spasms

    OMG yes just started having them I could hardly walk and then with crampping to all I could do was cry!! I did go to the ER last night couldnt take it worse pain then child birth!!!!! I was so bloated I looked like I was pregnant!!!!! I had mega a dosage of steriods through the IV stopped the...
  4. lblair

    Humira Club Support Group

    Hi Idlebrain I find that if I leave it out for 30 mins or so that it burns less!!! I have been on it for 6 months was doing good but they DC it lasst night at the ER!!!!! Good luck!!!!!
  5. lblair

    Worried About Entocort Side Effects

    I have no side effects from taking Entocort but when he takes me off it I get a super bad flare!!!! Not sure why he will not keep me on it long term I also take Humira and he wants to switch to remicade.
  6. lblair

    New diagnosis, dialing in. Would gluten free diet help me?

    It helped me so I contuine to follow the diet!!
  7. lblair

    Flu Shots

    I had the flu shot and I was fine!! My dr insited that I get it I usally do every year!
  8. lblair

    Disability/Unemployment/Financial Difficulties Support Group

    I applied I July 19 long process I was DX in March of this year and I agree what a mess!!!! It seems my body is going to hell diabetic so on Meds and now neuropathy and fibermyalgia ostopinea from to much sterods !!! High blood pressure!!!! Depression anxiety and borderline personianilty...
  9. lblair

    Disability/Unemployment/Financial Difficulties Support Group

    I heard from SS today they want me to see one of there Mental health Dr has anyone ever had go do this??????? I'm sort if nervous and stressed about it I hope I don't get a flare over this!!!!!!!!!!!
  10. lblair

    Tapering off entocort ouch!!!

    I'm in the same boat just started the taper and all the systoms came back!!!!!!!!!!!!! Urgggg!! Not sure if it was the taper or if I was having a flare I was on 3mg for a month and currently on 2mg and not doing well at all!!!!! Next week need to start 1mg have a feeling will be going back up...
  11. lblair

    First Dose of Humira and Work

    LodgeLady Everyone is different some people it works for right away took me about 3 months but still get extremly tired after the injections so I take my at night I take a injections every week!! Good luck!!!!
  12. lblair

    Regular blood work on humira

    Every 6 months for me!!!
  13. lblair

    Disability/Unemployment/Financial Difficulties Support Group

    Stardust that is wonderful news still waiting to get on mine I applied in July and live in MN!!! Good luck!!!!!!
  14. lblair

    If I Make The Call Dr. Will Put Me On Humira

    Humira is working great for me started in june and symptoms are under control still have good days and bad days but that is normal!! I just got of of Steriods yesterday I had a hard time weaning off of them but I did it this time do not want to go back on them its awful!!!! Good Luck!!
  15. lblair

    Possible to have a flare up?

    I have days like that too I have good days and bad days!!! For the most part Humira is working my blood test show that I still have inflammation but I feel better!!! I just stopped predisone I have been on it since March not good!!!! My dr said that it may take up to a year to fully work and...
  16. lblair

    Bladder, Kidneys and IBD

    hugs hope she feels better!!
  17. lblair

    Humira injection site reactions

    Hi That happen to me too and swithched to the syringes I have a latex allegery and the pens have that. The part that protect the needle has latex in it!!! I have not had trouble since then.
  18. lblair

    Is anyone pain free?

    I'm not pain free some days are worse then others for me!!!
  19. lblair

    Bad flare don't know what else to do for him

    Hope he feels better soon!
  20. lblair

    Pens or syringes?

    I have used both but currently on the syringes because I have a latex allergic.
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