Tapering off entocort ouch!!!

[Jison0612]

So I've been on entocort for about 2 months and have been feeling a lot better no more bloody poops!!!! Well until I started tapering that is for the last 3 days I've been having more abdominal pain and the bloody poops is back so I guess it's time to go back to 9mg a day instead of 6mg just sucks cause I thought I was doing so good :,-(

 

[khollmann]

I too have been on Entocort for 2 months, started to taper off the other day and bloody stool came back. Last night had severe pain in my lower right side. Is this expected do you think?

 

[Jison0612]

I'm not sure but my dr did say if I start showing signs of a flare to pick back up to 9mg a day so that's what I'm gonna do tomorrow I already feel like my insides are getting sluggish and cramps I don't wanna go there again anytime soon and I sure don't want a painful bottom again!!! I'm sure there be a maintenance drug in my near future if I can't come off entocort :-(

 

[lblair]

I'm in the same boat just started the taper and all the systoms came back!!!!!!!!!!!!! Urgggg!! Not sure if it was the taper or if I was having a flare I was on 3mg for a month and currently on 2mg and not doing well at all!!!!! Next week need to start 1mg have a feeling will be going back up. Is there long term issues being on this????? thanks