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Crohn's Disease Forum

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  1. moogie

    Pain after eating

    Does it hurt with every food you eat or only specific foods? For me I have no inflammation but depending on what I eat I can have pains.
  2. moogie

    Ileostomy Reversal Surgery

    I've had three re connections in the last 10 years. Every single time I have to go to the bathroom 3x more than usual. I lost the ability to hold it in, so when I got reconnected I was camping in the bathroom. We are all different but I would think that this is normal. After 1 month or so it...
  3. moogie

    Keeping your job?

    The first thing that came to my mind is who is paying the hospital. If it,s you then they have to service you the way you need. I've always been lucky enough to get the dates I want. But then again I'm quite forceful when it comes to treatments. I do everything or almost on my terms. I need my...
  4. moogie

    Night sweats!

    I've been having sweats on and off for the last 15 years. The more pain the more pronounced. But I've had them on occasion when I've had no pain. Sweat enough that when I took off my t shirt the shirt would drip on the floor.
  5. moogie

    Do you buy generic or brand?

    My insurance covers Generic first. In Canada there are strict laws on medication. Generic is 100% the same or it's not allowed. So no worries here.
  6. moogie

    Gone and back again.

    Hello everybody, I as gone a few months trying to get better. In January I had a pulmonary embolism and was admitted to the hospital. Stayed 3 days and then out I went. Had many treatments and I am now on coumadin (blood thinners) for the rest of my life. Then in February I had an abdominal...
  7. moogie

    Bubble has been burst!

    I've been on remi for years and I still get flares from time to time. But a lot less often than without the medicine.
  8. moogie

    Smoking Marijuana Causes ‘Complete remission’ of Crohn’s Disease, No Side Effects, New Study Shows

    Do you have to smoke it? I just hate smoking, could it be taken in another form?
  9. moogie

    The flu

    I was told as long as you don't have any fever you are fine for the remi treatment. Last year I went with flu symptoms and no fever and nothing bad happened.
  10. moogie

    Insurance (Anthem) denying Remicade

    In Quebec, Canada we have the option to have a private insurance or be covered by the public system. if you have a private insurance no worries however when you are covered by the public system you have to have tried everything else before they will pay for Remicade. i gather that they want to...
  11. moogie

    Question for Canadians

    Did you actually talk to your insurance company? i mean why dont you get them on the phone and see what is happening.
  12. moogie

    Your opinions...is it working?

    yeah remi is a tricky thing right at first. it took me 4 doses before i notice anything and then at the 11th dose i had to double it and take it at 6 weeks. if you are at 8 weeks and its to long in between ask to get it at 6 weeks. it did wonders for me.
  13. moogie

    Worse before better?

    Hello Jessica, it's really unfortunate that your son suffers so. My remi treatment started to work after my fourth infusion. yes it is possible that he will feel better soon. everybody is different some faster as others takes longer. all my good wishes for your son!
  14. moogie

    Remicade - How do you feel immediately afterwards

    right afterwards i am very very tired. like i could sleep for days. i get home at 6pm from my treatment and i sleep until the next morning.
  15. moogie

    Remicade #2 reaction?

    you can also get a reaction if you have taken Remicade then stop for a while and starts back on it. same reason as above.
  16. moogie

    Frequency of Remicade Infusions?

    that is really short minded. In Canada if you do not have insurance it is paid by the government however the doctor says what you need not a bureaucrat. that's nasty... I've been going from 8 to 6 and now back to 8 weeks. whatever it takes for me to feel good.
  17. moogie

    Remicade Levels in Body

    Speeding up the treatment? this is the first time I ever hear about it.
  18. moogie

    Had 2nd Infusion - feel great today!

    remicade is a wonderful thing when it works!! enjoy
  19. moogie

    First Gastroenterology appointment

    I always prepare a sheet with all my questions for my doctor so i don't forget anything i wanted to ask. then we check how i am doing then decide on an attack plan. that is usually how it goes.
  20. moogie

    Question for Canadians

    it took me about 10 days to get my 2 letters from my two insurance company. I've done the process twice up to now and both times it took about the same time. If you feel it's taking to much time call your insurance company directly and ask for an update. you are paying them so it's all good to...
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