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I'm on a combination of Remicade, Methotrexate and Sulfasalazine for all the symptoms. In my case they had to add others to take of all the problems. I'm in remission now.

I agree with both of you - Remicade is a miracle drug. I'm hoping to get good news after my colonoscopy at the end of February.

The other thing that happens at night is you begin to slow down and begin to relax in order to sleep. At that point, I find that I begin noticing pains, gas, cramping - it's like I've been busy all day and able to ignore them but at night without the distractions, the symptoms begin to be...

Welcome Andy! This is a great source of information and support. I've been on Remicade for 2 years now and it is a miracle drug for me. Good luck and take care. Alison

Relax and enjoy the 2 - 3 hours down time. Not everybody has a reaction - I don't have any Benadryl/Tylenol before mone and I snooze while being infused. I feel rested afterwards and the next day feel great. Good luck!

Suzy: If you're passing blood, I would suggest that you see your doctor again. Is he a GI doctor or just your family doctor? Are you on any Crohns medication? If you're passing blood it sounds like something's wrong to me. Take care!

Have been injecting Methotrexate for 2 years now. Haven't had any issues with nausea ever. I only get a headache on the day of injection (I don't take my folic acid on that day). Dr says that's normal and the folic acid is the thing that keeps the headaches away.

I've been on both. Humira worked for my gut but did nothing for the secondary symptoms - joint pain, psoriasis, D. Remicade has worked very well & I enjoy the 3 hours I get to have away from the world. My infusion clinic is my "escape".

Valley: I had endometriosis for years until I finally got a female gyn doctor who did a lot of investigation but none of the many doctors I saw were able to know the extent of the damage. Endometriosis doesn't show up well on ultra-sound, X-rays, etc. if the surgeons weren't looking for it...

Pneumonia yes, TB no. I was vaccinated for absolutely everything - flu, pneumonia, hepatitis, polio, diphtheria, tetanus before I started the Remicade. Still got pneumonia though.

CLCH87 - I'm like you - small veins and they hide away when I'm under stress. My nurse suggested along with drinking water, to eat a bag of chips or something salty to help hydrate. Also I have my infusions every 8 weeks and find the 3 hours the most relaxing time. I read, snooze, watch TV and...

If the shingles vaccine is a live one - my GI told me not to get it. You should probably check it out with your doctor before getting it. Your GI may have forgotten that it is a live vaccine. Most aren't live.

In Alberta health care is free. The government estimates that you should be covered to $25,000 per year - if you go over that with Remicade, you just call them and they increase it. With me, as I'm on Remicade, they cover everything except a $25 deductible. I have 2 private health plans (one...

I have both. Was diagnosed with fibromyalgia years ago then diagnosed with Crohns. There are some good medications out there that help deal with both diseases so I'd definitely tell your Nurse/Doctor about your symptoms.

I've had a number of incidents of vertigo - really bad ones - dizziness, nausea and unable to do anything but sit quietly. Also tinnitus constantly. So my GP's associate had me see an ENT. Unfortunately he was one of those types that knows nothing about Crohns & isn't interested in learning...

Remicade has done wonders for me. Humira and Imuran were failures (just felt sicker although my GI said the Humira did wonders for my gut). It could be the Crohns instead of the Humira. The ENT I saw was a total loser. Knew nothing about Crohns and how it can effect the different parts of the...

I know my hearing is changed since I started Remicade. I had a hearing test and everything was normal but I've had tinnitus for 2 years now (since starting Remicade) and I've had hearing loss on and off during that time.

I've been on Amitriptylene for about 20 years. My drs & I have used it for pain control with my fibromyalgia. It helps me sleep (sort of turns down all my racing thoughts at bedtime) and we adjust the dosage as needed. There is one side effect that my dr mentioned that is a positive -...

I was on Humira & Imuran for about 9 months. High fevers with the Imuran and huge joint pain, fatigue with both Humira & Imuran. GI said that my gut responded but the secondary symptoms were horrible still. So she put me on Remicade & Methotrexate which dealt with everything except the joint...

I'm on an 8 week schedule. Symptoms reappear about 7 weeks but not terribly - just a couple of bouts of D and some fatigue. But nothing like before Remicade. The only thing the Remicade didn't help was the arthritis but I'm also 55 years old and some of it is probably age related. My...