Hello all.
As some of you know, last June I had a resection to remove part of my TI, and since then I've apparently been in remission.
I've had bloods and stool checks and they've come back fine, but I'm still getting quite a large amount of abdominal pain. The pain is in the lower right quadrant, and is sometimes just a dull ache that I can easily ignore, tonight, however, is one of those pretty frequent times where it feels like a knife is cutting through my insides.
I'm currently at a loss for what to do. I saw my GI in January, and he was unconcerned because of my test results (although my vit D and iron are 'a bit ' low) . He even went as far as to say he isn't sure I even have crohns ( although a top professor in England says I do) . The GI I see regularly isn't an IBD specialist, but trying to get in with one who is, is like getting blood out of a stone, I'd be waiting months and might not even get to see them even after that .
One thing that has crossed my mind is endometriosis, but, surely that would of been picked up during my resection?
I'm tired all the time because I'm hardly sleeping from pain, and I'm not really able to do much to make me sleepy either.. I'm also getting a fair few headaches. I don't know if it's linked, but I've been getting some chest pain (I've had ECGs, all fine) and I've been noted to have fluid around my lungs on both CT and Mri scans
Also , recently I've had a massive increase in joint pain and swelling, with my hands sometimes being too stiff and sore to type on a computer or hold a phone, or even to cut up dinner. I see a rheumatologist on the 20 th of this month.
I feel like I am at the start of another vicious cycle
. It took me almost 5 years last time to make Doctors listen and I'm determined that this time I'll have better control of the situation and better knowledge of what I could be dealing with.
If anyone can shed some light I would be very very grateful!
As some of you know, last June I had a resection to remove part of my TI, and since then I've apparently been in remission.
I've had bloods and stool checks and they've come back fine, but I'm still getting quite a large amount of abdominal pain. The pain is in the lower right quadrant, and is sometimes just a dull ache that I can easily ignore, tonight, however, is one of those pretty frequent times where it feels like a knife is cutting through my insides.
I'm currently at a loss for what to do. I saw my GI in January, and he was unconcerned because of my test results (although my vit D and iron are 'a bit ' low) . He even went as far as to say he isn't sure I even have crohns ( although a top professor in England says I do) . The GI I see regularly isn't an IBD specialist, but trying to get in with one who is, is like getting blood out of a stone, I'd be waiting months and might not even get to see them even after that .
One thing that has crossed my mind is endometriosis, but, surely that would of been picked up during my resection?
I'm tired all the time because I'm hardly sleeping from pain, and I'm not really able to do much to make me sleepy either.. I'm also getting a fair few headaches. I don't know if it's linked, but I've been getting some chest pain (I've had ECGs, all fine) and I've been noted to have fluid around my lungs on both CT and Mri scans
Also , recently I've had a massive increase in joint pain and swelling, with my hands sometimes being too stiff and sore to type on a computer or hold a phone, or even to cut up dinner. I see a rheumatologist on the 20 th of this month.
I feel like I am at the start of another vicious cycle
. It took me almost 5 years last time to make Doctors listen and I'm determined that this time I'll have better control of the situation and better knowledge of what I could be dealing with. If anyone can shed some light I would be very very grateful!
Last edited:
