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Crohn's Disease Forum

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  1. Astra

    I want to stop humira for good

    Hiya InstantCoffee I've just posted the exact same thing! I feel horrible on this Humira, nasal sores and sore eyes, etc, worse than I did before I took the bloody thing! I don't know what to do neither! xxx
  2. Astra

    I don't feel good on Humira!

    Not been on here for a while, feel horrible, so permission to moan! I've had 6 injections now including the loading doses. I feel worse than ever, not as bad as when I was blocked and in hospital 3 years ago and drugged up to the eyeballs on Pred etc. But, I got a cold the week before Easter...
  3. Astra

    Where in this world do you live?

    http://www.crohnsforum.com/showthread.php?t=20514&highlight=where+you+live+map have you seen this ^^
  4. Astra

    Helping Others Understand

    Hiya odeto and welcome I read your story, so pleased the Humira is working for you, can't help with the finance tho. Regarding your question. I had the same problem, people just didn't understand. So I invited all my friends round for wine and food, and my Power Point Presentation on...
  5. Astra

    Keep messing up my Humira shot :(

    Hiya Hannah I think it was sheer determination that's all. Humira is my last chance saloon, or it's surgery. I can't believe how I didn't feel a thing when the needle went in, it's the liquid that stings, not the jab. I guess it's cos I've got tons of belly fat too!
  6. Astra

    Please help with side effects of prednisolone!!!!!!

    Hiya Debbielouisa whilst you are on Pred it's vital to drink tons of water, the moonface is water retention. Also, reduce your salt intake, it's the sodium that swells you. Also, don't fight Pred, it's fruitless, go with the flow! When you have a desire to bollock someone repeat 'It's not me...
  7. Astra

    Diagnosed (more or less) in February, unsure about medicating

    Hiya Panza I think it can manifest elsewhere over time, yeah. They found some in my colon during my last scope, hence the Humira now. I was put on Pred when I was in hospital 3 years ago, my CRP was 261, very high, but it healed me well. I wouldn't hesitate going back on it, but only if I'm...
  8. Astra

    Keep messing up my Humira shot :(

    Hiya Hannah I wanted the pen, but they didn't have any left so I got the syringes. I was scared to death! I am so delighted with the syringe, it is so easy. I just grab hold of belly fat and stick it in, the initial jab doesn't hurt, but it stings a bit when the serum goes in. To answer your...
  9. Astra

    Diagnosed (more or less) in February, unsure about medicating

    Hiya Panza and welcome Sorry you're feeling so rough. Cos your Crohn's is in the terminal ileum, Budesonide (Entocort) might be a better steroid for you than Pred. Unlike Pred, Entocort is non systemic, only goes to the small bowel and start of the large. Pred does the Full Monty, hence the...
  10. Astra

    Long depressing road

    Hiya Mooney, just wanted to welcome you. sorry can't help, never had a resection, yet. Someone will come along soon to help, in the meantime our sub section on surgery might have the answers for you. Speedy recovery xxx
  11. Astra

    My story :)

    Hiya Sophie and welcome Well done for getting a quick diagnosis! I've had a blockage too and it's the most horrendous pain ever, I was put on the same meds as you and healed very well. So, just to confirm? Was it a gastroenterologist who said it was an obstruction and was it he who put you on...
  12. Astra

    Seven Years Diagnosed & Still Trying to Find the Right Meds....

    Hiya James and welcome Good luck with your new meds regime, but keep a close eye on the mercap (6MP) which is related to azathioprine (Imuran) and make sure you're on some calcium supp with the Pred, which is a bone robber! Lotsa luv Joan xx
  13. Astra

    I'm New Here!

    Hiya ehCrohnie and welcome Glad you found us, you'll be a major asset to the forum with your wealth of knowledge on meds! Good luck ditching the Pred! Joan xxx
  14. Astra

    Proctectomy in 4 weeks

    Good Luck Rachel, try not to fret, and to be brutally honest, this isn't your Mam's shout! xxx
  15. Astra

    Lessons on taking care of yourself

    Thanks NewRoad, wise words indeed, and something that a lot of us advocate too, not to become complacent and flippant about this disease. Take care xxx
  16. Astra

    Updates on Afidz' Surgery Today

    Good news! Speedy recovery Ashley xxx
  17. Astra

    Delaying my shot

    Thanks Mary, you too xxx
  18. Astra

    Delaying my shot

    Thanks Trysha xxx
  19. Astra

    Delaying my shot

    I've been off work all week with a horrendous heavy cold, sore throat, sinus pain, headache, the works. My Humira shot is due tomorrow so I spoke to my IBD nurse and he said to delay it for a week. He said to get well fully first. I didn't question him, I wish I had now, you just don't think at...
  20. Astra

    Worried and alone

    Hiya Amy no wonder you're feeling rough, anti biotics always flare me, they're good, but they strip the gut's good flora too. You could try some probiotics, yoghurts. Also stick to a low residue diet til you get seen to. No more alcohol, this will hurt. It's ok, in moderation, depending on what...
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