- Joined
- Sep 15, 2012
- Messages
- 24
I've been off this forum for several months, I THOUGHT I was feeling better, I THOUGHT I had this Crohns in the bag, i.e. watching what I eat, getting proper rest, etc. I had not started any medications, since the doc I was going to didn't prescribe anything at the time... (The doc had me chasing a bladder condition before I could start anything).
My horrible pain went away, the diarrheah went away, I went back to work and put the whole thing into the dark recesses of my memory and went back to self-treatments. WHAT I DID NOT KNOW:
The supposed bladder condition (pressure, urgency) was apparently a recto-vaginal fistula festering. Now I have vaginal bleeding (no parts in there to bleed anymore, hysterectomy 10 years ago) so that development was a wake up call. Then stool matter coming out the wrong hole, UH OH! Now a secondary infection, what a mess I have!
I'm out of work for the week until I see the colo-rectal surgeon on Friday. So my advice: If you think you feel better, you might, but do NOT just walk away and pretend you're all better! Follow up with your appointments, take your meds, continue watching your diet. Why?
I had NO idea my intestines were SO inflamed, since I had no pain anymore. I had NO idea a fistula was in there happily tunneling it's way into places off limits until I found myself in an emergency situation.
Another thing: My local doctors did NOT take proper care of me, I am now driving 180 miles one way to a University Hospital that specializes in Crohns among many other things. If you feel you are not getting answers, find a specialist. Crohns is nothing to play around with, as I'm finding out!
That's my lecture, (to myself more than anything), and I'm sticking to it!:ybatty:
My horrible pain went away, the diarrheah went away, I went back to work and put the whole thing into the dark recesses of my memory and went back to self-treatments. WHAT I DID NOT KNOW:
The supposed bladder condition (pressure, urgency) was apparently a recto-vaginal fistula festering. Now I have vaginal bleeding (no parts in there to bleed anymore, hysterectomy 10 years ago) so that development was a wake up call. Then stool matter coming out the wrong hole, UH OH! Now a secondary infection, what a mess I have!
I'm out of work for the week until I see the colo-rectal surgeon on Friday. So my advice: If you think you feel better, you might, but do NOT just walk away and pretend you're all better! Follow up with your appointments, take your meds, continue watching your diet. Why?
I had NO idea my intestines were SO inflamed, since I had no pain anymore. I had NO idea a fistula was in there happily tunneling it's way into places off limits until I found myself in an emergency situation.
Another thing: My local doctors did NOT take proper care of me, I am now driving 180 miles one way to a University Hospital that specializes in Crohns among many other things. If you feel you are not getting answers, find a specialist. Crohns is nothing to play around with, as I'm finding out!
That's my lecture, (to myself more than anything), and I'm sticking to it!:ybatty:
have you now been started on a treatment regime for the fistula and inflammation? Please keep us updated on how you are getting on.
