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I got email back from nurse this morning saying. Dr.P thinks it would be best if you come in and discuss results in person. Uh duh thats what I wanted I wanted and thought the plan was until you called last night and said he needed no follow up. So we go the 28th to talk with dr.

EXAM: MR ENTEROGRAPHY W AND W/O CONTRAST HISTORY: Crohn's disease. TECHNIQUE: MR enterography was performed following the administration of approximately 1350 mL of VoLumen via nasogastric tube over approximately 60 minutes. MR imaging was performed using coronal T2 SSFSE with fat sat...

Just emailed Doctor also asking for him to call me.

I was just able to go online and pull up the final report. But there's so many words and things that I don't know or understand

Thanks Jacqui I am calling tomorrow and also emailing now. I was in the car when she called. I was in complete shock when she said nothing was seen and no follow. Let me ask when Jack was in remission. Was he on any medicine for his crohns or to help him stay in remission? Ko is off of...

I am so confused and really don't know what to think right now. I am happy for the results if they are right but confused at the sametime. Ko was weaned off the steroids. He took his last dose of the Entocort on the 20th of November. Dr wanted him weaned off steroids before he had a MRE. We had...

We use Dallas Childrens and Love them

We go to Dallas Children's. We love it there and have an amazing GI there. He specializes in Crohns disease. And you can tell his passion is kids and this disease. Kota is a part of the Improve Care Now Program. We were at Cook Children's and so glad that we got our second opinion at Dallas and...

Well he slept until 12:30 pm today. Its been a ice day. We had about 3 inches of ice covering everything. Everything is closed and no school all around us. I told him I needed to be told when he went to poop. I wanted to see it and make sure it looked okay. Well it seemed he pooped while I was...

Ko always eats ice

I know this is the right place to come to talk about poop lol. As you know Ko went and had the MRE today and it wasn't successful at all. He has had a MRE in the past but right after he had it done they decided to do a colonoscopy. So they started the clean out process. Well tonight he cant...

Well we are home now. Today was a total waste. Ko has been halfway to hell and back and nothing to show for it. I finally blew up. I told the nurse this was the worse experience ever. I said no one has bothered to listen to Ko or what he needs. I said no one here knows him better than he knows...

Ko is here having Mre. We have never been to this specialty clinic before. Dr.P wanted this done Asap so this place could get us in the soonest. It seems Moms and patients know nothing here. They had to start an iv. Couldnt listen to us that Ko usually has to have iv team start it. He only has...

Ko and I were talking about this not very long ago. One of our friends little girls made a wish. Ko said if he ever got the wish he would wish that he could meet WWE wresters like John Cena.

Just wanted to pop in and say hi to everyone and give a little update on Kota. I am not sure where to start. Today is 2 weeks since his last dose of Entocort. This is the longest he has been off steroids in 22 months. We went last week to see Crohn's specialist. Let me just say I still totally...

Thanks for the input. Kota has never really said much about his Crohns or his treatment. But when he came to me and said he had been thinking alot about it and really thought surgery was the way to go it made me stop and think. I have always told him I wanted him to be a part of our desisions on...

I am sorry I havent been able to come here and update like I want to. It seems everything is always so crazy lol. Last year was a bad year all around. Not only did we make it through crohns dx with several hospital stays, broken wrist, malformation on the brain, horrible learning delays...

We took Ko back today for his checkup with GI. Let me just add we love him more with each visit:thumright: Kotas heart rate was good 93. Way down from being close to 200. All his labs look good. His weight was up even more. He has gained 40 pounds since Feb 2012. Dr said he thought alot of it...

I know its been a while since I have been on and gave an update. I am not even sure the last time I came and what the last update was. I believe last update was that we had just went and seen new doctor and we totally loved him. Well that part is still true. A couple of weeks after we seen new...

Thanks everyone. Its great to hear positive things about Methotrexate. I was so scared when he mentioned that medication. All I had heard was bad things. ANd I am a little scared of any medicine after taking 6mp. Another good day. He has been laughing and playing all day. Thanks everyone for...