Search results

I just wanted to say that just because your doctor is supposed to be 'the best' - doesn't mean they're the best for you. I had a paediatric gastroenterologist who had IMO an awful bedside manner, and I struggled to get along with him for 4 years before finally deciding to change. I was under a...

I was in this situation a little bit in primary school. I was diagnosed when I was 9 and wanted to keep it all my shameful secret - but by the time I went to secondary school I thought, screw it! I'm not going to let this ruin my life, if they don't like me because I'm ill then they're...

I also think it's time for you to get a new doctor! I know how it feels being left out of all the fun stuff because of being ill - I was on holiday when I was flaring and it was awful because I couldn't even leave the house. Anyway, if you're really unhappy with your doctor, just go to your GP...

I spent about a week in King's College Hospital after being admitted immediately after a scope for IV steroids. The food was... well, there are much worse out there, but there are also a lot better! Even with my pred-induced munchies I begged my parents to take me with them to the visitor/staff...

Hey everyone!! So I'm set to have an iron infusion within the next few weeks, and I was wondering if anyone else'd had one and how it went. I'm having Ferinject - the new, fast one that supposedly takes about 15 minutes at most - but I'd also like to hear your stories on basically having...

I don't see why not! I use one, but it's too small for all of my meds (my Pentasa tablets are huge) so I'm thinking of getting a bigger one :)

Bottom-up. By choice, though. My GI wanted me to start on Remicade even though I actually didn't fit the NHS guidelines for prescribing it - as I hadn't even tried Azathioprine and responded really well to Prednisone. I'm glad I chose to go on Azathioprine, though, since I'm doing great on it!

I've had one of these. I didn't have the patency capsule (which alarms me in hindsight) but there were no serious strictures along the way - yay me? It's not too big. Actually quite easy to swallow! The only 'pain' I felt during the whole procedure was when they had to remove the (what're they...

Hello and welcome! I was on Modulen for a REALLY short time when I was 11, so sorry if anything's inaccurate since it was a few years ago. The taste wasn't great for me, nor was the texture. I hate anything milkshake-y, so I moved onto Elemental 028 instead because it tasted a little better and...

Tomatoes :( makes me sad since I love them - but clearly my gut doesn't! I would probably swap popcorn for pizza at this point D:

Now you mention it, I get quite a lot of cramp too - but mainly in my feet and legs. It happened the most when I was on Prednisone, though - could barely move for cramp then!!! Hope you find some relief :)

I'm so happy right now. It's been a year since I started on Aza, and it's been slow going, but my appetite is back and I've put on a stone and four pounds since January. I hope it continues! I hope everyone else is doing well :D

I'm so jealous of you all! I would have loved to be there D: oh well, there's always next year I guess!

Once I had a combination of liquid and pills, but never only pills! I think I'd prefer it that way, though. Let us know how you get on, and good luck!

I take both Azathioprine and Pentasa and my Crohn's is in the small intestine.

I already signed up with my parents - but then school sprung on us that it's the date of our Duke of Edinburgh's expedition, so now I can't go. Booo! Have fun for me, though :D

I'm very open about my Crohn's - I did a presentation on it as part of my GCSEs, hahaha! I think the more people know the less 'afraid' they are. And yes, I've gotten some stupid comments, like "I'd love to be as skinny as you,", but for the most part everyone is really good about it. I don't...

I'm really late with this (sorry!) but I had a small bowel resection in 2009. I was 11 and kind of supremely uninterested, so I'm not really sure where in the small intestine it was, but it was a pretty easy surgery (and I think it was due to scar tissue). They did it laparascopically and to...

Hmm, well, this happened a good while after I'd been diagnosed with Crohn's - five years, in fact - when a doctor looked my mum in the eye and asked her if she felt I had an eating disorder. I was in the room, as well! Needless to say, she got rather offended, since the point we were trying to...

Ugh, I just feel like I need to vent right now. I was diagnosed with Crohn's when I was 9, and since then I've just never been any good at sport. Like, when I was young and new to being ill and everything I was told to hold off on the exercise, etc. It probably didn't help that I'm tiny, pale as...