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Crohn's Disease Forum

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  1. J

    I messed up Stelara injection!

    I inserted the needle into my son’s leg and when I pushed the plunger down all this liquid came up and pooled on his leg. I removed the needed and reinserted to complete the injection. Quite a bit of liquid was pooled on top of his leg and I would say he only got about 1/2 of the dose. I’m upset...
  2. J

    I messed up Stelara injection

    I inserted the needle into my son’s leg and when I pushed the plunger down all this liquid came up and pooled on his leg. I removed the needed and reinserted to complete the injection. Quite a bit of liquid was pooled on top of his leg and I would say he only got about 1/2 of the dose. I’m upset...
  3. J

    High Bilirubin- On Stelara

    My 17 year old son started Stelara in February. His blood work with the GI showed normal bilirubin in April. He just had his physical with his PCP and his bilirubin came back higher than normal. Nothing crazy high, but higher than normal. Could the Stelara potentially cause your bilirubin to...
  4. J

    Hepatitis B Vaccine while on medication for Crohn’s

    My son is 17 and has Crohn’s. He takes Stelara every 8 weeks. When he was diagnosed last July, his bloodwork showed he did not have sufficient antibodies to Hepatitis B to be immune to this infection. The GI said he will need a repeat booster shot, but wanted to wait until he wasn’t is such an...
  5. J

    Burning Sensation Upon Wiping

    Hello, Quick question. My 17 year old son was diagnosed with Crohn’s about 8 months ago so we’re still figuring things out. He used to have blood just dripping into the toilet. That’s gotten much better. Now he said he really only notices the blood when he wipes (so it’s only on the toilet...
  6. J

    Combined treatment with Humira & Stelara

    Quick question. If taking both Humira & Stelara for Crohn’s, how do you space the time between the 2? How many days between the 2 biologics.? All I’m wondering about is how many days between. Thank you!
  7. J

    Humira Frequency Changes/Switching Biologics

    For anyone with experience in their child using Humira, if your child hasn’t really responded to biweekly injections since initial Crohn’s diagnosis, is it normal practice to increase the frequency to 10 days and wait, if no response increase the frequency again to weekly and wait before...
  8. J

    Prednisone

    Does anyone know how long you have to be on Prednisone before it starts lowering your immune system? Is once you start it, after 3 weeks, 6 weeks, etc? Also, when do some of the side effects such as acne and moon face set in? How long does it typically take?
  9. J

    Pfizer Booster while on Humira

    Thoughts/research on the Pfizer booster while on Humira? I see the booster is now available for 16 & 17 year olds. I’m trying to decide if my 17 year old son should get it. I worry a little about the myocarditis that’s been happening from the vaccines in young men.
  10. J

    Tips for Wisdom Teeth Removal and Pain Med

    My son has Crohn’s and he’s on Humira and uceris foam right now. He needs to get his wisdom teeth removed so I’m in the process of looking for an oral surgeon. Does the fact he has IBD change the way I search for an oral surgeon? I don’t mean that to be a dumb question. But, are there things I...
  11. J

    Prednisone/Entocort

    Does anyone know if there’s any benefit to alternating between Prednisone and Entocort (Budesonide) when needed for Crohn’s to potentially help with dependency/resistance?
  12. J

    Humira Level

    My son’s Humira levels came back tonight. ADALIMUMAB DRUG LEVEL = 5.13 Is this low, normal, or high?
  13. J

    Treatments for Crohn’s - Colon and Small Intestine Affected

    Hello, In your experiences, what treatments/Biologics are used when there is mostly colonic inflammation with some small intestine inflammation? My son has severe colonic ulceration and most of the information is in his colon, and he also has a lot of inflammation in his rectum. I’m trying to...
  14. J

    CRP Level

    Does anyone know if having a cold could increase CRP? My son has a little cold and just had lab work done. His CRP was quite a bit higher than last time. He’s on Humira. Could having a cold play any role at all in a higher CRP level? Or is it more than likely attributed to him being in a flare...
  15. J

    Uceris Foam/Any Rectal Foam

    My son just started Uceris Foam last night and he said it burned a bit afterwards. He used it again this morning and said the same thing. I can’t seem to find any information on this. Wondering if it’s common to feel a little burning/stinging immediately after use…? Thank you!
  16. J

    Treatments for Crohn’s and Colonic Ulceration

    Hello, I’ve been posting a lot lately because I’m trying to understand this diagnosis my 17 year old got in July. GI calls it Crohn’s because the pattern of blotchy disease through the colon presents itself as that, but he also has severe colonic ulceration. The small intestine is also...
  17. J

    Biologics/Steroids-which are used for specific areas

    Hello, Does someone have information on all the Biologics and oral/rectal steroids in terms of what areas of the intestines they work best in? I can’t find any charts or information online that discuss what areas are treated best by the various treatments. People have mentioned certain...
  18. J

    Colonic Ulceration

    Hello, My son was diagnosed with Crohn’s in July. His symptom before diagnosis was bleeding. He started on Humira and although bleeding has gotten slightly better, he now has increased frequency and urgency. Going about 5 times a day with urgency. Waiting to test blood levels later this week to...
  19. J

    Steroid Acne

    My 17 year old son might have to get on another round of Prednisone. It breaks my heart because he got pretty bad acne and started getting a little fuller in the face during the first round of Prednisone when he was first diagnosed in July. Is there anything at all to help with the acne? We’ve...
  20. J

    How do you get a 2nd Opinion?

    Sorry this may seem like a dumb question, but I’m wondering if someone can walk me through the steps of getting a 2nd opinion, and do we stick with a Pediatric GI for my 17 year old son or look into adult GI? We’re not quite ready for a 2nd opinion, but I want to know how to get one if/when...
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