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Thank you, I went ahead and edited it... great ideas. Patient relations always says something stupid so I'm sure it won't be that difficult to catch them...

I'm so sorry...

They have gotten worse... which I didn't think was possible lol. I was flaring and on 10 mg/kg of Remicade and 40 mg of prednisone when I got pregnant (I'm still on the same meds), that's why everyone was so shocked when I got pregnant and even more shocked that she's still doing so great...

The CCFA is all a money making scheme. If marijuana was legalized, drug companies couldn't make as much off of it. I can't stand the CCFA. I want to know what cocaine cartel is laundering their money through it.

I'm from Cincinnati and this lovely treatment happens at a lovely learning hospital there. My doctor is amazing, this other doctor... not so much. Every nurse hates this man and calls him a sadist. I've taken to calling him Dr. Mengele whenever he walks in (which made my Jewish doctor giggle...

I was diagnosed at 13 as well, I'm sorry to hear that. I honestly didn't find any real difference between entocort and prednisone.

Everyone here can probably agree that CCFA sucks. It's basically a money making scheme to get drug companies more money with little to no resources being allocated for the well being of the patients. I'm wanting to start a patient advocacy group (CCAI: Crohn's and Colitis Advocacy Initiative)...

I'm finding that each day is getting harder and harder to get through. I sob a lot from the pain and just don't want to move. I just want it over with but I still want my little girl to be healthy and full term. These last 10 weeks are going to seem like an eternity... I don't know what to...

So, I kept getting stuck with this one doctor whenever I was hospitalized who worked with my actual doctor. I hated him. He hated me. It was super. I would always demand a new doctor and he would refuse (which is apparently against the law and they were just doing it hoping I would leave...

Thank you, hello to you :) I'm currently on 10mg/kg of Remicade every 8 weeks, 40 mg of Prednisone daily, 2 prenatal vitamins daily, 20mg Prozac daily, and Phenergan as needed. I've tried Cimzia, asulfasalazine (sp), Asacol, antiobiotics, Librax, various antispasmodics, colestipol (sp) and a...

I live in the US, it took about 2 years to get approved... but only had to talk to the judge for about 10 minutes in the courtroom before he told me I deserved it. I've had the same argument about the port/drug addict thing. They haven't wanted to put a new one in since I got mine removed a...

The past 14 years have been hell, okay... maybe not the past 14 but certainly the past 7. I was diagnosed on my 13th birthday after being sick for about 6 months before hand. Before I was diagnosed, I was defecating pure blood about 15 times a day. My sisters and I would have to battle for...