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Crohn's Disease Forum

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  1. The Real MC

    What happened to David and many of the old members?

    Who ‘ya calling “old”? LOL I got an email from this forum too, been away for a while. Still walking and breathing. Bigger priorities over this forum happened in 2020 when Covid lockdown killed my job of 14 years along with 300 others. This happened in NY where unemployment was going up, and...
  2. The Real MC

    What does your Crohn’s pain feel like?

    Last serious flare up was 2011 - constant abdominal pain that would interrupt my sleep, chills, loss of appetite, fatigue Since then I have "mini flare ups" in which certain "trigger foods" would cause abdominal inflammation and "waves" of abdominal cramps lasting anywhere from 4 to 12 hours...
  3. The Real MC

    Diet Help and Advice

    There is no single diet that fits every crohns patient. The perplexing thing about CD is that no two patients have the same trigger foods. There are foods on the JCC "not allowed" diet that do not bother me at all.
  4. The Real MC

    Diagnosed after 40?? Anyone???

    First symptoms and diagnosis in 2005 at age 42. Symptoms started right after a bad flu. That virus messed with my system, there is a suspected connection between the flu virus and crohns.
  5. The Real MC

    Feels like labour pain.

    Anything that is a natural anti-inflammatory seems to control it. Dark chocolate is one (YAY!) If you had resection surgery, avoid spicy condiments and artificial cheeses (beware of restaurants). The spicy condiments can aggravate the adhesive from the sutures, causing it to swell and...
  6. The Real MC

    Feels like labour pain.

    Male here with no experience in labor pains but plenty with abdominal cramps from CD. When I get "the cramps" I mix 8oz of greek yogurt with a heaping spoon of honey and eat it. The yogurt has probiotics that is friendly to the piping, and the honey is a natural anti-inflammatory. This helps...
  7. The Real MC

    Feels like labour pain.

    I had a case of shingles back in March. Shingles is contagious and is spread by the flaking of dry skin from the blisters. Only people who never had chicken pox or have not had the vaccine are vulnerable. While the same virus causes both shingles and chicken pox, a person who contracts the...
  8. The Real MC

    Why Don't GI Doctors Take The Role Of Diet Seriously?

    Diet will not prevent or cause Crohns. In some patients - such as myself - diet can be used to CONTROL Crohns. In my case, I developed abdominal cramps about 8 years into the disease. I began to suspect food triggers, and ultimately succeeded in isolating the trigger foods that caused the...
  9. The Real MC

    Does anyone share the Crohns issues in having

    Sounds like a real bad malnutrition problem and your body is not retaining water or nutrients. The split/broken fingernails and drop in weight are telltale signs. Do you have frequent urination? If so you really should get checked for diabetes.
  10. The Real MC

    Telling your employer about crohns

    I've been at my current employer for 13 years and they knew of my Crohns from day one. I had no restrictions until my resection; when I returned to work after the surgery, one restriction I found was I could not work in a tight crawl space. That caused a few sick days so I was relieved of that...
  11. The Real MC

    Do you have a lot pain after a bowel blockage?

    When I have a blockage it usually includes abdominal cramps. These cramps tear the abdominal muscles, and that is the pain that I feel after the blockage has cleared. So for 3-4 days I will eat a high protein diet to heal the muscles - same technique I learned when doing free weights. The...
  12. The Real MC

    Another trigger food uncovered

    The last five years the only issues I have with CD is abdominal cramps due to a trigger food. I managed to identify the culprits but CD can develop a new reaction at any time. I recently had to add popcorn to the list, and I had been eating it regularly without issues - no more. I like the...
  13. The Real MC

    How often do you need a colonoscopy

    Usual frequency is every five years. Can be more frequent if CD is active. I learned to control CD through diet. Only issues is occasional abdominal cramps due to reaction to a trigger food. I had CD under control so well that my GI put my next one out ten years because my last colonoscopy...
  14. The Real MC

    When to go to the hospital?

    Abrupt weight loss is a sign that you need serious medical help.
  15. The Real MC

    What were your symptoms at diagnosis?

    Abdominal pain, inflammation, diminished appetite. Another telltale is your abdomen hurting as you drive your car over even the slightest bumps.
  16. The Real MC

    Sleep requirements

    Normally 6-7 hours. Following a bout of abdominal cramps - a lot longer. They really take the wind out of you.
  17. The Real MC

    Do you live a "normal" life?

    I've had some road bumps along the way but I live a normal life. Full time day job, household life/chores, travel, etc. I had to give up some foods because they triggered abdominal cramps, those were the road bumps. Once I identified those trigger foods and cut them out of my diet, my life...
  18. The Real MC

    Looking for success stories and opinions about dieting as a treatment for crohns.

    Only medication was Pentasa. Figuring out trigger foods involves recognizing patterns and keeping a log. For instance, if I ate the same lunch with the exception of dessert and I had abdominal cramps following one of those lunches then something in the dessert was a trigger. That's how you...
  19. The Real MC

    Looking for success stories and opinions about dieting as a treatment for crohns.

    The perplexing thing about Crohns is that every CD patient has different food triggers, so no one diet works for every CD patient. Case of point - many CD patients cannot consume dairy foods, yet they do not bother me. I isolated the triggers foods and eliminated them from my diet. It was a...
  20. The Real MC

    What is Crohn's remission like

    Precisely how I kept CD in remission
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