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Crohn's Disease Forum

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  1. M

    Anyone experiencing problems with “Gag.”

    Something is changing with my body and I’m a little confused. I’ve never had problems with “gag” but in the last 2 years I’ve had on and off bouts of gag. Almost sounds like I’m about to vomit but obviously I don’t. Happens any point in the day.
  2. M

    Introducing myself - Hi!

    The colonoscopy is what revealed the disease for me as well. My numbers were always borderline
  3. M

    Low Platelet Count on Humira?

    Hi you guys, Any of you had blood work that showed low platelet count? According to that same blood work I am not anemic and I don’t have any deficiencies. I have been losing hair which is why I did the blood test. Any ideas? Stories?
  4. M

    BC pharmacare coverage for Humira

    Ugh unbelievably stressed over this
  5. M

    BC pharmacare coverage for Humira

    speaking with my team they said that It is very unlikely they will approve anyone who is required to stay on a biologic. Very strict
  6. M

    Any British Columbia people on humira who might be forced into taking a biosimilars. Help! Don’t...

    Any British Columbia people on humira who might be forced into taking a biosimilars. Help! Don’t know what to do. There are 6 options... can’t find any research on which one is being prescribed more
  7. M

    BC pharmacare coverage for Humira

    Hi all, this post is more for those us living in British Columbia but I was recently sent a letter saying Bc pharmacare is switching over to biosimilars. So everyone who takes humira has to switch to an alternative injection. This makes me worried obviously. Has anyone already started the...
  8. M

    BC pharmacare switching to biosimilars

    Hi everyone, im hoping to reach out to some BC humira takers. Recently got a letter in the mail about pharmacare now requiring us to change to a covered medication. Anyone speak with their gastros yet about whether this is smart? kind of worried...
  9. M

    Not having it

    It’s been awhile since I posted on here but I’m feeling incredibly down.—-I don’t want to get into to much detail about it but many of you would understand the saying Crohns continues to give you all sorts of other complications. I’m so exhausted being sick like this all the time.
  10. M

    Slow functioning bladder. HELP

    Mid 50’s and yes he does have an enlarged prostrate. He recently had that green light procedure to fix his narrowing urinary tract. Looks like it reverted again.
  11. M

    Slow functioning bladder. HELP

    I could use some advice. My father has long been diagnosed with Crohns and I think has now hit a major roadblock. He’s having more difficulties with urinating. (It’s gotten really bad over the last 6 years) A test showed that his spincter muscle and his bladder are slow. He’s been on and off...
  12. M

    Ignorance

    some of my family make inappropriate jokes about having this disease.—-like as if enjoy being in the bathroom. They like to throw around that I must be reading in the bathroom or doing ‘expletive’ things which is why I’m in there for so long.
  13. M

    Dating!

    I wish I was as brave as you to get back into dating. I’ve had some really terrible experiences with dating and crohns—-and just the thought of doing it again gives me extreme anxiety.
  14. M

    Arthritis and Crohn's Disease

    I saw a rheumatologist not too long ago and they determined I have inflammatory arthritis. I’ve got a hernia in my lumber spine and issues with all my joints. It’s good to know where your joints stand. I go for yearly bone density exams as well.
  15. M

    Telling your employer about crohns

    I had to put in a medical accommodation and it had to be one of the worst days of my life. I did it to protect my job and in the long run it has been a good thing but boy did it crush my self-esteem. The disease in itself is very taboo and having to write it down on paper makes it seem like...
  16. M

    Insomnia...

    Insomnia is a common side effect of humira. I have arthritis as well so the struggle for sleep is real as my body just can’t get comfy enough. I end up having to surround my entire body with pillows. Knees prop up. Pillows under my arms. The pain makes it unbearable at times. My doctor...
  17. M

    Will I ever live a productive life with crohns>

    What is productive, really? Is productive, adulting because I feel like I’ve been doing that for a while. I continue to press on with the hope that I have another good day—-and at this point I almost feel like I’m in a blur of time. Is simply trying to be a fully functional 26 year old being...
  18. M

    Stress, Anxiety and/or Depression

    Im currently on amitriptyline and I take it before bed. I wasn’t sleeping.. my mind was constantly on. I was paranoid and nearly suffered a mental breakdown I’ve been on and off various anti anxiety—-antidepressants since I was 13. I should preface by saying that my anxiety issues 100% are due...
  19. M

    Feeling alone because of Crohn's

    Definately know where your coming from. Know that we understand what your going through and we’re here to listen and sometimes vent occasionally Fatigue and just general unwellness is something that plagues me everyday. I use the word plague because it literally feels like a black cloud just...
  20. M

    Acne and weight gain anyone?

    Definately a side effect of your Meds but like someone said above, ask your doctor. I’m on Humira and I’ve seen quite a bit of weight gain. The moon shape face is also a highlight as well as acne. I’m 25 too and the acne is heck embarrassing.
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