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I probably should be posting this in the pregnancy section but afraid not everybody will see it. Im currently taking 40mg of humira weekly and also on 25mg of 6mp daily. As there is very little patients on combination therapy in my region my crohn's doc is very very reluctant about the...

Im on 50 im going to gp this morning to see if she can contact myGU

can't postpone I am actually getting married :) :)

hey all I just got bloods back today with wbc 2.7. I have to have routine bloods every two weeks because my TPMT level is low for 6mp. Anyway I am concerned about the wbc being low as i am going to spain for 10 days. Also by GI did say that if my wbc dropped id have to come off 6mp :( any of...

hi everyone I just wanted to update on how I am feeling since. I have to say I don't know myself. Since about last Monday I feel like a new person. Feel a lot more energetic, my mood has improved also and my appetite very good. Just goes to show the symptoms that I was putting down to my...

also i'm also worried that my result was not accurate because I was already on 6mp for about 25 days. (the doctor didn't send the result the first time). So I have no idea if the result is even accurate. My level is 47

Any of you out there have low tpmt levels and allowed to stay on 6mp. I am very nervous, this morning I got a call from my GP saying my TPMT levels came back low which put me on a high risk of being too supressed on this drug. I had the test sometime in late january, it took ages to come back...

i tried a gluten free diet for a while. I still kept flaring while on it, maybe i didn't stick to it for long enough but i found it very limiting since it can be found in just about everything. i am eating normal now and have no crohn's symptoms due to starting new medication (besides anemia)...

It is hard to say really which medication to avoid because everyone reacts so differently. Because of the horrible side effects I would say prednisolone, but sometimes it can be the only answer in a situation. My GI started small and worked his way up from steroids, to pentasa, to remicade, to...

Probably safer to call the doctor alright, it could be suppressing you too much. I am on 6mp since Christmas and for about a week my eyes were itchy and red and I was waking up with all yellow scum around them, but none of the swelling you describe. Mine settled after a week I think I was just...

No you are definitely not alone there. I go through phases all the time where I do tonnes of research on the internet on food and crohn's. I stayed off sugar for a lot of months, I was also off dairy and wheat. I was trying oats instead and the oats actually seemed to make me flare, and I...

I was using probiotics for a while but I honestly didn't really notice much of a difference and the bottle prescribed to me by my nutritionalist was costing about 60 euro a bottle. But maybe I was just flaring too much at the time and she put me on a lot of suppliments at once and could have...

I hAd the infusion all went well. The one i had is a once off thing. She said i will notice a difference in ten days or so. If i get very positive results i will certainly post them!!

I have had night sweats in the past when on prednisolone but they sometimes happen when im flaring also.

Yes, I definitely have not been proactive enough anyway with it comes to taking blood tests , my new years resolution was to keep more of an eye on myself and be proactive rather then reactive. Were you loosing blood at the time?

I'm looking forward to it, I am really looking forward to being able to do some exercise again without feeling like I'm going to have a heart attack! Exercise is so important even a tiny bit and I don't seem to be able to do that lately. I get breathless very easy. I'm a bit annoyed that they...

It does say that Crohn's affects our emotions so quite possible

I am getting in on Monday only few days to go. Can't wait!

Also im just wondering does mood improve. I just cant shake off the bad humour that i am in lately. The kind that you can't really put down to any one thing only that you are irritated and down and don't know why

Thanks for the comments, I will definitely be vigilant and wait around as when I had the reaction to the remicade it was very scary! On the H Pylori, I had this in 2004. This is actually the reason why I think I developed crohn's disease, I had symptoms that time, very bad ulcer pain directly...