1 year this month

[Becca1991]

This month one year ago i came off prednisone after being on it for more than 9months.

Ive lost a total of 10kgs after putting 20kgs on was 45kgs when i went on it and 65kgs after comming off it.

Did anyone loose all the weight they put on while being on it.

My crohns is now in remission after being diagnosed in 2009

 

[soretum]

Happy anniversary Becca! I'm still on the pred as you know so I dont have any good advice for you sorry....but am pleased to report that after 5 weeks I've only put on 1.5kg and I'm fairly convinced that 500gms has gone to my right cheek, 500gms has gone to my left cheek and 500gms has gone onto my chin....hello moonface!!!

 

[xoxava]

All the weight I gained from pred I lost when I came off it. But I was flaring bad and not holding food well. I know the feeling I took pred for around 8 months...not fun! My face was the first thing I noticed to down size.

 

[Becca1991]

Happy anniversary Becca! I'm still on the pred as you know so I dont have any good advice for you sorry....but am pleased to report that after 5 weeks I've only put on 1.5kg and I'm fairly convinced that 500gms has gone to my right cheek, 500gms has gone to my left cheek and 500gms has gone onto my chin....hello moonface!!!

Ha ha thanks, 1.5kg thats good, did u crave for food, i did and i was born a really fussy eater and was always told ill be small but after pred i can eat almost anything.
yea i got the moonface have a photo from last year of it and looks so horrible.
How have you been??

 

[mallenfaye]

Hi, I too have the dreaded moonface just now, currently tapering my pred so not long before I go back to normal, heres hoping!
In total I have put on a whole stone in weight, very depressing and I hope once I come off the pred my greedy pig appetite goes away! I do love food anyway but this is ridiculous the amount I can eat hee hee!
I have been on steroids since feb, not nearly as long as you but long enough and I hope I can avoid them for a loooong time! I cant wait to get my teeth back too, they have been numb since i started the pred!

The joys of this disease eh??

F x

 

[soretum]

Ha ha thanks, 1.5kg thats good, did u crave for food, i did and i was born a really fussy eater and was always told ill be small but after pred i can eat almost anything.
yea i got the moonface have a photo from last year of it and looks so horrible.
How have you been??[/

Not really craving food just more interested in eating, really trying to be sensible though as don't want to put on weight, the weightless is the only good thing about all of this!
Think I'm doing ok, seem to be where the docs expect me to be...don't know if I'm Arthur or bloody Martha some days! But having more good days than bad so that's a good thing...am stuck at 20mgs of pred at the moment, had blood work done to hopefully start aza in a couple of weeks and biologics were mentioned if the aza doesn't work. Getting lots of headaches last couple of weeks which are very annoying!

 

[serbas]

Hi there ! I have stop eating prednisone for like 1 week + , still have my moonface Really really upset about it T.T have been on prednisone for 3 month + , just hope that my face will go back to its v-shape again My weight is back to normal again but my skin flare ups more usual after stopping prednisone , is this normal ? And my doctor told me that she might want to start me on prednisone 5mg alternate day for 2 weeks again ... Si

 

[littlemissh]

I've been on oral Pred for 14 months now but only put weight on when I felt better in spring. I don't seem to put on weight when symptomatic in fact lose it despite Pred.
Iv steroids are a different story- I put 10kg on in 2 weeks on iv steroids ands fluids- wow. All came off and more within2 weeks of stopping iv and going to oral.

 

[Angrybird]

Hi, I was on pred for about 18months and put on loads of weight, the last year has been a bit rubbish with an op and now a flare up so since Nov 2010 have lost 20kgs. Have been on pred now for 10 days have lost 500g - wahoo! Waiting for the moonface to kick in, feeling very peckish all the time but am concious not to snack in the evenings.