2nd Remicade induction series question
- Thread starter Twosons
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It was for us....
DS did not see an improvement until a week or so after the third infusion .
But once he did ... :wow;
Total amazement on our part - he is almost normal with few off moments now.
Good luck
And hugs
Btw DS has had 5 doses so far and continues to do well overall.
DS did not see an improvement until a week or so after the third infusion .
But once he did ... :wow;
Total amazement on our part - he is almost normal with few off moments now.
Good luck
And hugs
Btw DS has had 5 doses so far and continues to do well overall.
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C has a remicade buddy that couldn't taper completely off pred until after the 4 dose of Remicade. Every time he started to taper pred during the loading doses of Remicade all the symptoms would return. Their GI had wanted him off pred as soon as possible but it took until that fourth dose of Remicade. So I think it is different for each individual. I hope he sees some relief soon!
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Thank you. Reading your reply helped ease my mind. I'm doing my best not to worry but its just hard when I see him hurting. He finally took a Tramadol and says his pain is only a 7 now. He really holds off too long I think but I don't want to force him to take anything. I feel like he will eventually learn the best steps for his body. I hate Crohn's
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Hot pack or warm bath....
Really help
I know a lot adults who have hot tubs just for crohn's
Really help
I know a lot adults who have hot tubs just for crohn's
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I know C had been px'ed tramadol at one point and he didn't like the way it made him feel at all so he never took another one. He did use a hot pack or heating pad but it is so hard to watch them in pain and not be able to take it away so I can understand your frustration.
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Sorry no knowledge of Remicade here, really hope it starts to work soon! Is he on anything else? Is it worth asking for something to help till the Remi works? Like EN or the Pred? We also used a hot water bottle alot when Andrew had sore tummies. Paracetamol never seemed to do much.
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He's still on prednisone. He's been on it for 7 months now. He also did 40 days on an NG tube and came off last month as his symptoms never improved. My son is probably odd in that he prefers cold when he's hurting. Cold wet towels on his neck and tummy usually help him but yesterday was just a bit worse that usual. He hates any form of medications. He had full open chest surgery in 2011 and refused the morphine pump. Once discharged he never took one pain pill so for him to ask for something really shook me up. He's still hurting today so we're off to the ER
My DD used Remicade only got to the third infusion for UC. The first one was great the second one was back to back, four days later, we were avoiding surgery. It slowed the bleeding enough to start HgB to go up. Got her third infusion she did good for 2 weeks with lite bleeding then she needed a blood transfusion. Doctor considered her failed. It is such a tailored disease and you just don't know if it is working until it is all in or when it will stop working when it does. Sorry I don't have many words of encouragement to share. Maybe moving this into the Remi treatment area would get you better advice. DustyKat?
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For what its worth they did a CT scan and labs. I don't especially view the CT as helpful but understand why they did it. The doctor felt that the colon is the source of his pain. That's basically my thought too since his scope in December showed the entire colon is affected. He's home resting now. Thank you for the words of support and advice.
