6MP - Long Term?

Crohn's Disease Forum

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Joined
Apr 19, 2011
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Hi all! So relieved there is forum that helps people like us. I absolutely love this site.

My issue is this: I am in the middle of a flare up and my GI doc wants to put me on 6MP. He says that if he puts me on it, he’ll keep me on it indefinitely. Those words ring caution in my ear. Are there any of my forum buddies taking this drub “indefinitely” and if so, how is it working for you thus far?

I have been having flare ups here and there but they had been short lived after I had surgery. I had a shoe string for intestines – about two feet worth taken out. There is activity and inflammation at the surgery site (marvelous!) now. I thought I’d at least be free of Crohn’s symptoms after my surgery for a few years. That’s what I was told and had read… gerr. My mother died a little over a month ago (long story there. I had little faith before in hospitals but after her death – not much now) and I believe the stress from the loss of her threw me out of remission. I didn’t realize that my body would react that way – duh for not thinking that it would but geeez. I’m afraid of the drug re the side effects. Any information/experience with 6MP that you can pass on to me would be greatly appreciated!

In the meantime, I’ll be dreaming of eating something crunchy. I’d kill for a bite of fresh veggies or fruit! lol
 
I'm sorry to hear about your mother, and I hope the flare you're in passes soon.

I was only diagnosed in March, and have been on 50mg of 6-MP. I've had no side effects whatsoever. (Well I do have major mood swings, a puffy round face & increased appetite, but my steroids are to blame for that.) But yeah, 6-MP seems to be doing wonders for me as I haven't had any symptoms since being diagnosed.
 
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