A bit of an update

[my.december]

Hey everyone! Just wanted to thank you all for putting up with me, especially the last two days or so. I guess I needed a bit of time to fall apart and being angry and upset that we were no closer to (heck, really, further from) an answer than we were before. I needed a day or two to accept that I wouldn't be getting any sort of "fix" right away and would probably be dealing with the pain and problems for a bit longer while we work to straighten everything out.

I'm still quite lost and HUGELY confused, but I'm picking myself up slowly and trying to work through it. Last night was a bad night again, with me curled up on the bathroom floor as waves of pain ripped through my gut. I cried a bit more, but I think that also served as a turning point for me. SOMETHING is wrong. Normal people don't find themselves visiting the bathroom every 1/2 hour or curling up on the floor of the bathroom because the pain is so intense and they know there's no point in going somewhere to lie down because soon enough, they're gonna have to go again. There's no way to "imagine" that. No way that it was just in my head.

I talked to one of the women in the doc's office. My abdominal CT is scheduled for the 20th at 9AM. I'm crossing my fingers we'll figure out something there. She said my bloodwork WAS a bit off, especially with the iron, so that explains the hemochromatosis thing. So, idk, that's a possibility I guess. However, I don't think it's THE answer. It doesn't explain the bleeding or the frequency/urgency. It doesn't explain the ulcerations he saw last year. I'm still confused by it.

I don't know. There's an answer... or a few answers... lurking somewhere in my body. It's frustrating and upsetting, but it seems it's gonna take some time to iron everything out.

So... thank you all for listening to and dealing with me through this. I hope soon enough I can tell y'all that we've figured it out.

 

[tamesis]

glad to hear you're on your way to feeling a little better, emotionally. I really hope they find some answers with your bloodwork, or the CT.

 

[my.december]

So, when's your scope hon? I can't wait to hear the results.

 

[Steve]

Gosh - as much as i can imagine what you are going through, i cant. my diagnoses came without much question. In my mind i'm thinking through which one is better. idk. its just a shame you cant function and i feel for you there.
We are here for you.

 

[tamesis]

Couple hours. We might be pity partying together later today.

 

[my.december]

I doubt it. You're gonna get some great answers!

 

[Peaches]

Good luck today Pam!! Jess...sounding better today :O) You have a few pieces of that puzzle...just have to keep looking - you'll figure it out. Hope you can get some better rest tonight - maybe even have a quiet weekend ahead. Fingers crossed that the CT will shed some more light for you!

 

[my.december]

lol, enjoy it while it lasts. I'm trying to be positive, but I'd still like to throw myself on the ground, kick, scream, and throw a major temper tantrum. However, that's not putting me any closer to having my life back. So, I guess I must chug along.

I'm feeling impatient at the moment. I just want to speed up time so it can be 2 months from now, and I can have my follow up and really start trying to make ALL the pieces click with him. In the meantime, I guess I'll do as much as I can to help.

 

[misscris]

Hey Jess, sorry to hear you still aren't getting any answers. It can be frustrating and discouraging to get no answers. Keep your chin up, we're still here for you. Doesn't help your medical conditions or give you answers, but at least you have people here for you to talk to and vent to.

 

[kenny]

I don't believe a "Definitive Diagnosis" for crohns exists. It is more like a process of elimination to screen out other named diseases that would have known root causes or treatments. There is no treatment Of Crohns. All anyone can do is treat the symptoms by cutting out the worst diseased material and suppressing the immune system so it does not attack our guts as much. We can also try stuff like diet and lifestyle changes to reduce the impact of the disease.

This might not be helping at all, but what I am trying to say is don't sweat the diagnosis. If it walks like a duck, quacks like a duck and looks like a duck, They will Treat It Like a Duck.

Just hang in there. The Ct is a great diagnostic tool. But even that just gives them a better idea of exactly where to go looking.

 

[shazamataz]

Glad you are feeling better mentally at least. A good meltdown can be necessary sometimes, but best not let it last too long in case you get stuck there!

((((((HUGS)))))

 

[pain in the butt]

Hang in there .

 

[Pirate]

I knew you were a fighter, Jess. I knew you wouldn't be down long before you come up swinging. You will get your answers.
I'm sorry to hear that you had another rough night, though. I spent many a night curled up on the bathroom floor just so Janis could sleep. I really tried to hide things from her so that she wouldn't worry so much.

Keep us updated with everything.