Advice

[xoxava]

advice

i apologize i have been MIA the past few days. my dad scooped me up friday to take me to the ER because i was in the floor for hours crying and not able to move. of course they did nothing, but they did want to admit me to a psych ward!!! and i KNOW i am not crazy. the doctor there was just like "oh its just IBS on top of your crohns youll be fine just suck it up" no. how about you suck it up cause you probably have no damn idea what this is like. ughh. so. now i am planning on going back to the university i went to before and having the doctor there check me out. i know i still have options but at this point im tired of trying and taking harmful medications that give me temporary relief but can screw me later. i just want something done. so my question is, where do i go from here? i am in the process of getting my medical records so i dont have to keep redoing every test. im not sure which options to discuss with the dr (ex: other meds, surgery, etc) so i know there are people much worse off than i and i figured you guys would be able to point me in the right direction. i really am starting to feel insane :ywow:

oh and i have these weird things on my bottom area.. they arent hard like hemorrhoids but rather like a flap of skin? idk really how to describe it.. what the heck could this be?!

 

[Jer's Girl]

Oh my gosh, if you want to know for sure that someone knows how you feel, read my post “Boy I feel like crap today” in the Support Forum! Basically I have been getting the condescending, “you’re actually fine” crap. It is so frustrating and terrible! At least I am not in that much pain right now. It is the most awful thing when they treat you like you came in to the ER to pick up a band aid. I’m sorry you are going through this.

The things on your bum might be large skin tags. I have them too and I hate them, but Drs have always told me that it would cause more problems than it would solve to get them removed and they would also probably come back. I hate them, but I have come to except that they are a part of my life. Sorry you are dealing with them too.

Just for the record, you are not crazy, and you are not being a baby. If you are like me, you would rather be anywhere than be in the ER, and yet you were brave enough to go, and then they have the gall to make you feel bad about it. I wish I had the power to make Drs feel what we are going through, just for an hour, and see if they would treat us like mental cases then. Hang in there. I hope you are feeling better soon.

 

[xJillx]

Gathering your records is a great first step. From there, I suggest either going to the university you previously went to, if you were in fact pleased with their care. If you weren't 100% satisfied with them, then maybe it is time to go to one of the facilities leading in IBD care such as the Mayo Clinic, Cleveland Clinic, or Johns Hopkins Hospital. Unfortunately, none of these are local for you, but I am sure the travel would be worth it. I wish you luck, and I hope things turn around for you soon.

 

[Walt]

flaps down...

Hi Ava,
Sorry to hear you are suffering.

Here is a link to a thread where I mentioned crohn's skin tags.
http://www.crohnsforum.com/showthread.php?t=11642

It's like having little curtains on your butthole.
Hard to keep clean.
Mine's a busy street, and a bit of a rocky road!

in the hard moments, I try to be graceful.
in the good moments, I try to be grateful.
what more can we do?

wishing you well,
w

ps hang in there