afidz
Super Moderator
- Joined
- Jun 7, 2012
- Messages
- 2,678
Over the next 6-8 months, my life and everything in it is going to start drastically changing. I was thinking that instead of creating multiple threads about updates and what have nots, that I would just have one thread.
So- Update #`1
Well, on Monday I am starting Remicade. For some reason, I am very nervous about this change. Once its all said and done, I am sure I will be fine and on my way to feeling better. My joint and back pain are through the roof. My Crohn's symptoms aren't too bad, I have been nauseous for the last 2 months and I have had some cramps, some acid refulx, but as far as Crohn's goes, its been ok.
So, once I have my first Remicade infusion, my rheumy will start me on an extreme diet to where I will lose about a pound a day. I will lose about a pound a day for 40 days and then the remaining 20 days will be used to introduce the a normal diet into my day to day activities. If the weight loss program is successful, I will have lost enough weight to have the next surgery that I so desperately need. I feel like once I have that surgery, my life will be better. I am in this horrible viscous cycle that I can't find a way out of, and fixing my hernia is the first step to fixing me.
I intend on going to inpatient rehab after surgery, whether I can get the surgeons to agree to write the order is a different story. I want to spend a couple weeks in rehab to start to rebuild core strength in my abdomen and general muscle loss of being in bed for the last 2 years. If I can't be inpatient, at the very least, I will be an outpatient. I NEED help rebuilding my body.
If I am still over weight at that point, I want to do the extreme diet one more time. With my problems with recurrent hernias and to avoid getting another hernia, I need to be at a healthy weight. But, I will judge that when the time comes.
I have discussed this plan with my boyfriend and close friends in depth. I feel like I have a really good plan, but I am worried that I am being naive in it all. I just want my life back. Thoughts anyone?
So- Update #`1
Well, on Monday I am starting Remicade. For some reason, I am very nervous about this change. Once its all said and done, I am sure I will be fine and on my way to feeling better. My joint and back pain are through the roof. My Crohn's symptoms aren't too bad, I have been nauseous for the last 2 months and I have had some cramps, some acid refulx, but as far as Crohn's goes, its been ok.
So, once I have my first Remicade infusion, my rheumy will start me on an extreme diet to where I will lose about a pound a day. I will lose about a pound a day for 40 days and then the remaining 20 days will be used to introduce the a normal diet into my day to day activities. If the weight loss program is successful, I will have lost enough weight to have the next surgery that I so desperately need. I feel like once I have that surgery, my life will be better. I am in this horrible viscous cycle that I can't find a way out of, and fixing my hernia is the first step to fixing me.
I intend on going to inpatient rehab after surgery, whether I can get the surgeons to agree to write the order is a different story. I want to spend a couple weeks in rehab to start to rebuild core strength in my abdomen and general muscle loss of being in bed for the last 2 years. If I can't be inpatient, at the very least, I will be an outpatient. I NEED help rebuilding my body.
If I am still over weight at that point, I want to do the extreme diet one more time. With my problems with recurrent hernias and to avoid getting another hernia, I need to be at a healthy weight. But, I will judge that when the time comes.
I have discussed this plan with my boyfriend and close friends in depth. I feel like I have a really good plan, but I am worried that I am being naive in it all. I just want my life back. Thoughts anyone?