aj recently diagnosed
After many months of unbearable stomach pain which started in june 2011 and many trips to my docs who told me i had ibs or maybe acid reflux would you believe!! I finally couldnt stand it anymore and i insisted they scan me or do something as i was certain there was something very wrong. Finally i had an ultrasound scan which showed a mass in my bowel, the docs then moved pretty quickly and got me an mri scan which showed what they thought was a malignant tumour, i was told this news a week before xmas last year. I had already lost my mum in april to ovarian cancer and then my uncle to kidney cancer so my family had already been through an awful year and then to be told this almost finished me off.
I saw the surgeon beginning of jan and was booked in for a rightside hemicolectomy jan 13th. Surgery went well and the surgeon came to see me straight away after to basically tell me that they were completely baffled because they had found no evidence of a tumour just a huge amount of inflammation. I was so relieved that it was not life threatening and when they finally told me i had crohns it was such a huge relief to finally know what it was and that it was managable.
My recovery has been slow almost 9 weeks down the line i was still in so much pain, not surgery related but infact they told me that the surgery had triggered off my crohns in another part so i was getting pain now in my navel, whereas before it was just my rightside. I have yet to see a gastro specialist typical british nhs cannot see me until end of may so i have been waiting in limbo really with no specialist advise, im just going on the internet and talking to the nacc members to get advise etc. I have also been reading a very good book about self healing of crohns and colitus which has been a really good read, i would very much like to heal through diet if this is possible, but at the moment i have been advised to start taking pentasa to calm things down and see how things go, im hoping i dont have to stay on this for to long.
I have been on an elimination diet and have stopped all dairy wheat and sugar which has helped a lot, i have up and down days and not your typical crohns symptons, no weight loss, no diarrhoea, no bleeding, but i do get bad stomach pain and bloating, and sometimes constipation. I would love to hear about other peoples experiences and to chat about how other people are coping and living with this disease
After many months of unbearable stomach pain which started in june 2011 and many trips to my docs who told me i had ibs or maybe acid reflux would you believe!! I finally couldnt stand it anymore and i insisted they scan me or do something as i was certain there was something very wrong. Finally i had an ultrasound scan which showed a mass in my bowel, the docs then moved pretty quickly and got me an mri scan which showed what they thought was a malignant tumour, i was told this news a week before xmas last year. I had already lost my mum in april to ovarian cancer and then my uncle to kidney cancer so my family had already been through an awful year and then to be told this almost finished me off.
I saw the surgeon beginning of jan and was booked in for a rightside hemicolectomy jan 13th. Surgery went well and the surgeon came to see me straight away after to basically tell me that they were completely baffled because they had found no evidence of a tumour just a huge amount of inflammation. I was so relieved that it was not life threatening and when they finally told me i had crohns it was such a huge relief to finally know what it was and that it was managable.
My recovery has been slow almost 9 weeks down the line i was still in so much pain, not surgery related but infact they told me that the surgery had triggered off my crohns in another part so i was getting pain now in my navel, whereas before it was just my rightside. I have yet to see a gastro specialist typical british nhs cannot see me until end of may so i have been waiting in limbo really with no specialist advise, im just going on the internet and talking to the nacc members to get advise etc. I have also been reading a very good book about self healing of crohns and colitus which has been a really good read, i would very much like to heal through diet if this is possible, but at the moment i have been advised to start taking pentasa to calm things down and see how things go, im hoping i dont have to stay on this for to long.
I have been on an elimination diet and have stopped all dairy wheat and sugar which has helped a lot, i have up and down days and not your typical crohns symptons, no weight loss, no diarrhoea, no bleeding, but i do get bad stomach pain and bloating, and sometimes constipation. I would love to hear about other peoples experiences and to chat about how other people are coping and living with this disease
