Alyssa's story! (new member)

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iamalyssa

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alyssa's story! (new member)

Hi everyone! I am a new member, and my name is Alyssa. I didn't feel like writitng a whole OTHER thing about my history with Crohn's when I already wrote a perfectly lovely essay (for a scholarship) already. So I'm just going to use the essay as my story. I added some more recent details of my life at the end that are not a part of the essay (if you don't like to read a lot, at least read that), sooo... The topic was "how do you attain success in life while living with Crohn's disease". So, here goes:


I tossed my plate onto the table, knocked over the chair (as I nearly fell on my face tripping over it), positioned myself into balance, and made a mad dash down the hall for the bathroom. Anytime I ate, it seemed, the "race" was on. "Nothing is wrong with me," I insisted each time my mother interrogated as to why I spent half of my day in there. However, after several months of withstanding severe abdominal pain, incessant diarrhea, significant weight loss, and canker sores within my mouth at the age of fifteen, I finally humbled myself, and conceded to my mother's perpetual nagging to see a doctor. After seeing a general practitioner, I was referred to a gastroenterologist. The specialist's first speculation was that I had Crohn's disease, which is inflammation of the digestive system, often starting in the ileum and spreading to the colon, characterized by diarrhea, abdominal cramping, loss of appetite, weight loss, and local abscesses and scarring. My mother was diagnosed with Crohn's disease in years past. Nonetheless, no assumption could be concluded without proper verification: thus, he ordered a sundry of tests to be performed on me (and though I will not elaborate on those I will affirm that they were quite unpleasant).
During the extensive process of determining my ailment I faced a period of confusion: my mental ambition was not coinciding with my body's condition. I decided to take all honors classes my junior year in high school to challenge myself (I have always been one to push myself a little harder all the time, and I had only taken some honors classes in years past). I was excited about the challenge and worked diligently to achieve superior grades—at first. However, stress began to intensify the burdensome symptoms that I had been experiencing. I refused to consider myself handicap, and detested when one would "baby" me. Nevertheless, it was very discouraging to pursue school with earnestness when the symptoms (rather than my future) were bellowing for attention.

On November 22, 2005, at the age of sixteen, weighing ninety-eight pounds, I was officially diagnosed with Crohn's disease. I was immediately given Prednisone, a steroid used to reduce inflammation. This medication caused extreme mood swings, weight gain, a ravenous appetite, acne and oily skin, and intermittent hot flashes. For a teenage girl, the few months that I endured the side effects of this medication felt like an eternity. The abdominal sensitivity I previously experienced minified, I gained weight, and actually wanted to eat; but those were the only positive effects I could account for due to the consumption of this steroid. Other than that, I still endured diarrhea and some abdominal pain (plus the grueling side effects).

I soon became bitter. I wondered if there was hope; hope for healing, for a brighter future, for a day of peace… I was frustrated with people: I felt that they had no right to be depressed, lazy, or take self-pity, unless they, too, had some sort of ailment. I was in denial that I truly had Crohn's for nearly a year. I also felt lonely. When I began to miss several days of school or would be stuck in the bathroom, people would become curious as to why; I didn't know how to respond to their interrogation. They simply did not understand. They tended to belittle the effects of the disease, and would assume I was being overly dramatic. They insisted that one is able to carry on in life with Crohn's disease just as any other; even now, I would disagree.

One with Crohn's disease cannot carry on in life as a "normal" individual; however, they can accomplish their goals. The method for doing so is merely different. I learned that the summer of 2006.
It was the summer between my junior and senior year, weighing eighty-eight pounds, that Crohn's symptoms were at an all-time peak in my life thus far. I became so discontented with the status of my life, and the role that Crohn's played in the dormancy of my success. I engaged in baby-sitting and searching for employment that summer. I also became very active in my church's children's ministry. I had/have many interests, which (to name a few) include filmmaking, cooking, music, children, making new friends, and talking with others. After rediscovering my passions, I engrossed myself in them with vehemence. With the help of God and a drive for change, I was determined to press forward lucratively.

Crohn's disease may factorize the amount of time it takes or the physical ability to carry out an objective; however it is the vision of the "end of the tunnel" that gave me hope. Hope is the light at the end of the tunnel. Without hope, one may as well give up on ever attaining success.

It entailed time and maturity to conclude that concept. But I determined that Crohn's was not going to obstruct my success. Crohn's is indeed a vexation that involves much tolerance and patience in order to carry out an objective, so do not deem this revelation as disparaging. The reason I had no hope in the past was that I thought that the symptoms and diagnosis were an indication of the end of my life as I had planned it. Little did I know it was still only the beginning; I simply had more to deal with.

The tactics I use to overcome the symptoms of Crohn's for ultimate success are to always have hope, to understand that it is okay to push myself but to not forget to rest, to remember that there is always "plan B", to retain my personality (instead of letting depression take over), and to maintain a sense of humor.

I am currently seventeen years old, in a state of remission (with occasional set-backs), and weigh approximately one hundred and five pounds. I have become a very ambitious person. I have chosen not to let Crohn's disease hold me back from living the extraordinary life God has in store for me. I aspire for a lasting period of remission, but will always hold fast to the strategy for achievement.


*Actually, I am now eighteen years old, and have been experiencing quite some problems as of late. It's funny because I look back on this essay (written while in remission, mind you) and think to myself that it is much more difficult to live life with Crohn's than I made it sound. There are new problems and new setbacks that can arise at anytime, and no amount of ambition can make one get up and out of bed to go to work when (for example) one is laying there in excruciating pain, unable to move from burning...or unable to eat from mouth sores (which, in turn, makes one unhealthy)...or constantly in the bathroom instead of working/going to school/raising kids/whatever it is that equals success for each individual. I guess experiencing the bad has made me more appreciative of the good times, and will hopefully make me a stronger person in the end.
 
Yeah I wrote a similar essay last year when I was going for scholarships and also my college essay. You will always have ups and downs and stuff the thing is to not let it get to you which seems much easier then it sounds. Surrounding yourself with really good friends is something that will help you a lot. Once I went to college I have had really good friends around me for most of my time. I have gained weight and I feel much better. One thing I learned the hard way has been to not just lie around and look at yourself with pity. Get up walk around and do something. Keep your goals and don't let them fade aways into the darkness.

I hope you feel better soon.
 
Hi Alyssa. Welcome to the forum. That's a wonderful essay, and a great outlook on life. Don't be too critical of yourself as you look back on it. You were in a different time and place. Hindsight is always 20/20. And life is a constant learning experience with or without Crohn's. Here's hoping you learn a thing or two from this forum, OK?
 
Nice essay. I used to teach English, so it's nice to see a young person write well. I rarely saw that, being in an economically unsuccessful area (I'm being polite describing our socio-economics).

Hang in there. It's great you plan to achieve great things anyway rather than letting this be an excuse to curl up and whine. Keep at it! And welcome to the forum.
 
Hi Everyone,

I am new to the forums, but I read them a lot when I need to feel like I'm not the only one with this crazy disease. I have had CD/UC since high school, and I am in my mid-thirties now. Up until this year, I have had little or no difficulties with my CD/UC, but have been having more trouble in the last 6 months or so. I have been on sulfasalazine for the entire time since I was diagnosed. Unlike many, I become constipated with my disease and have developed fissure problems. My husband and I have been trying to conceive for 4-5 years with no luck. Last summer I had a laproscopy to see what was going on in there, and since then, my life is one big flare. My doctor put me on a 5-day stint of Pred. to calm the inflammation (first time ever) and I've been following the SCD ever since. (my brother has severe CD and recommended the diet). I have never gotten used to coping with this condition, and it seems that when I get into a good groove, things go awry somehow. I guess if I knew what I did to cause the pain, fissure bleed, bloat, etc. I'd feel like I could control things better. I would like to know, how long do most people's flares last? I do not want to go on Pred. because my brother was on it for too long, and has been completely debilitated by his disease...I can't let that happen to me...besides, we all know that the use of corticosteroids are fraught with horrible side effects.

By the way, the SCD seems to be working for me (except for the occasional flare), I haven't been constipated once since I started it, and have lost a bit of water weight. I do miss bread though.....sigh......

Jana McG
 
Hi Jana.. Welcome to the forum. You've inadvertantly hijacked Alyssa's intro thread, but as you are new to the site, I don't think anyone will hold it against you. We all are familiar with the feeling of being the only one to have this crazy disease. One of the best parts of this sites is the sense of comradery. Here we are in the majority. I hope the SCD works for you, I looked at it, but tho I consider my present diet as too restrictive, I knew I just couldn't cope with SCD. As for pred, I think you'll find that it isn't prescibed long term anymore. Typically just used as a stop gap treatment till moving a patient to something better long term.
My symptoms typically involved way too much diarrhea... thought nothing could be worse. I've since had the pendulum swing the other way. Constipation is no fun either. Perhaps a bit easier to cope with socially, but that's about it. I balance my food intake from solids to liquids to try to keep things on a pretty even keel. So far it's worked as a compromise. Now I'm battling to avoid a colostomy, trying a short list of medicinal alternatives, and living each day to the fullest my disease permits. Think that's about the best any of us with this disease can do. Anyway, welcome!
 
Welcome Alyssa to the forum!! :)
What a fantastic essay!
You would make a great motivational speaker.

"One with Crohn's disease cannot carry on in life as a "normal" individual; however, they can accomplish their goals. The method for doing so is merely different."

This is so so true! We have to find another way around things.

We're so glad you came here.
Please feel free to browse the forums, throw in your comments and opinions.
relax and have a few laughs even!

Again...welcome!
Hugs~Nancy


Hello Jana!
May I welcome you as well to the forum.
Please feel free to join in on discussions or if you have any questions of your own start a thread and ask away!

We're here to support one another!

Healing hugs~Nancy
 
To Jeff: Yeah, I know...having good friends is very important! And having goals IS having hope! I really like being active as much as I can and try not to just lie around...sometimes when your in paralyzing pain it's hard, though. I hope to feel better soon, too! Thank you!

To Kev: Thanks, Kev! I'm def. learning about hindsight being 20/20, but mostly in other areas...lol I hope I learn a lot too, through others and through this experience!

To Ms. Fusianato (I'm assuming if you were a teacher that your kids called you this...lol I won't call you that anymore on this forum, though if you don't want...lol): Well it's great to hear that I write well from an English teacher, so thanks a lot! I hope to always keep a positive outlook on life and have hope even if I don't feel well!

To Nancy Lee: Why, thank you! I actually LOVE public speaking! And thanks for the welcome!
 
Hello to both our new members!

That was agreat essay Alyssa and I thank you for sharing it with us.

I hope both of you enjoy this community as much as I do!
 
That's great to hear that you are keepng active and surrounding yourself with good people. I didn't really do that and I was so depressed for the longest time.

Also welcome Jana.
 
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