Another, full-on crohns hating RANT!

[Holly]

another, full-on crohns hating RANT!

Hi Everyone,
I've been a bit quiet on here lately, had a busy week!
I started my official school placement on Tuesday, where my teaching gets observed to decided whether I pass or fail my first year of Uni. First day was a KILLER! So tired, I slept from 5pm right through till the next day, but as the week went on it got a lot easier and I was feeling stronger, more awake, happier, everything. I thought 'Brill' it's getting better!
Then I tried working a 9-2 shift at my part-time job in a hairdressers yesterday, went in feeling positive and alive, well and upbeat and ready to work at last!
But at 11'o'clock, I went insanely dizzy (almost to the point of fainting) had two bouts of this, and clients said I had gone as white as a sheet and shaky so they sent me home. I felt so stupid, cos hours before I'd felt ready to work, I'd felt good for the first time and this has shot my confidence no-end.
Then I got home to a lovely letter from the hospital saying I am required for a Colonoscopy in 3 weeks. So now I am in bits again cos I HATE them more than anything, and I have just started taking Iron Tablets and seeing effects and I have to stop taking them next week by order of the hospital. Marvellous!
My long term partner isn't being very supportive at the moment and I feel like this illness is becoming very testing of us. He doesn't understand what Crohns is about the symptoms are so vast and different for everyone and can strike so quickly and therefore everything is my fault.
Its all mounting up and I just had to release it somewhere. Even if no-one reads this post (which I wouldn't blame you) at least I've got it out there.

 

[danni25]

Hi holly
i don't have any advise for you as I'm quite new to this myself but just wanted to say i can relate and understand your frustration with this. it can be debilitating and at times feel like her body is fighting against you!although my husband is trying to understand its my parents who although case
about me really don't understand a thing about what i am going through
hope you start to feel a little better in yourself
Danni x

 

[archie]

Hi holly sounds like your having a tough time, you have just been diagnosed and as yet they are to establish the correct management for you so it will get better from here. I see you are only on pentasa so there are a load more meds they've yet to try. Try to explain to your partner about the illness it sounds like he doesn't know the ins and outs of it which of course can lead to tension but you need his support right now and one less thing to worry about. Hope you get sorted soon.

 

[FruitLoop]

Hi Holly - I too used to dread colonoscopys BUT now they give entonox (gas and air) so i get so smashed i kind of look forward to them!

I always, always say when i first go in - @make me as smashed as you can before you even think of sticking anything up there"

Then i just suck on the entonox tube slow and deep till im smashed - lol

 

[xX_LittleMissValentine_Xx]

It is really difficult for loved ones to understand what we are going through. But at the same time, you need support. It will be difficult for you to both adjust to your illness but you could help him try to understand and you can both learn things together. If you go onto the crohn's and colitis uk forum there are some information sheets on there and one of them is for partners. Might be worth checking it out!