Anthony's Update

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Sep 8, 2010
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Waving to all my friends! And some new ones I haven't *met* yet!

I figured I owe you all a very long overdue update on Anthony. Being that he is turning 15 on Sunday and acting EVERY bit of a teenager :eek: I thought now was a good time. It brings tears to my eyes to think of where we were a year ago: with a GI who wasn't doing anything for him, Ant spending most of his days and nights on the couch in pain. Countless tests and hospital stays.

He has gotten his life back!

I am leery to even write that because to be honest, I am always afraid of what tomorrow can bring. However, I figure you guys could use some positive stuff too. Since his surgery in late January, Anthony has had one minor flare (which could have potentially been a virus, just a couple days) and has had D once in a while, no pain. NO pain.

He has been up and running around like a normal kid. No more joint pain!
He has GROWN over 3 inches!!! (Maybe even more, this was as of 2 months ago - Woo Hoo!)
May be TMI, but because his puberty was delayed, that has kicked in.

He has trouble tolerating corn products so we stay away from those items, but that is about it so far. Sorry, I don't know what his latest labs were but his doctors at Mt. Sinai (LOVE THEM!) were all so very pleased and said they couldn't be any better - inflammation markers all the way down, everything looks great!

He is only taking the 6mp at this point (50 mg.) and a daily vitamin. (aside from asthma meds, unrelated)

I think about you guys all the time and will try to check in more often.

Oh, and because of this, Anthony is contemplating a career change from his dream of being a Vet to possible GI/Colo-rectal Surgeon. Or Psychologist. Lol!

Sending you all HUGS!!!

Kelly
 
Hey Kelly this is great news!! :banana: I know you feel you will jinx it but don't enjoy every day that he is pain free. I know as a mom when your kid gets sick we just want to hover around them. It is so nice to hear good news...goodness knows it is not enough of it.

As far are corn goes even people who dont have this disease can suffer from corn products, it is nothing but a CHEAP filler and vertually no nutrition value.

Glad you gave us an update you must be soooooooooo relieved! Don't be so long again, ya hear?? :nonono: Best of luck to all of you!
 
Thank you Pen!!!!

You are absolutely right about corn - but tell that to a kid who loves crunchy tacos and Doritos, LOL! We are still working on substitutes for those - but those problems are nothing compared with the last years!

:)
 
Anthony sounds so much like my Tanner. He has been doing great since his surgery last December, well until he came down with the stomach flu last week. He is on 6mp 50 mgs and vitamins. I know exactly what you mean about saying they are doing great out loud, when I do I look around like ok when is it all going to fall apart. So glad your son is doing well and I pray he continues to do so.
 
Hi Kelly!
I think about Ant and you all the time and am so happy to hear he is doing well. Thanks for the update.
 
Woohoo Kelly! Fab update! :panda::panda::panda:

It's so great to hear that Anthony is doing so well. Long may it last Mum!

:mademyday:
Dusty. xxx
 
:dance::dance::dance::dance::dance::dance::dance::dance::dance:

Kelly!!!!!!!!!!!! I love all that and am SO GLAD to hear things are going well. While we miss you, we're glad you've been living life and not glued to the computer in a hospital room somewhere. :kiss:

Hugs,

J.
 

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