Azathioprine........

[Mummygee]

My gorgeous boy is officially flaring again, from previous posts you can see he's been grumbling for a while, but kept under control by metronidazole (flagyl) but last night blood ++ spent all day at the hospital today and they are going to treat with metro again and start azathioprine, which neither hubby or I were keen on, but best for our boy.

Any advice or experience of it would be really helpful.

I may not ever know, but have been wracking my brain to see what the trigger was to tip him over.....he started lactobacillus about a week ago (GI prescribed) and it seems to doing great, but having done some research, it seems it may speed up the metabolism of sulphasalazine and wondering if maybe that should have been upped to combat the increased rate?

Currently, he is having 2-3 formed bm's a day, with blood and mucus, more blood since yesterday than we have had since before diagnosis, eating well, putting on weight, and only gripes about pain when passing a BM.

Am I just kidding myself that we may be able to get it back under control without azathioprine? I think I need a reality check

Sorry to ramble, it's been a long day! X

 

[Jmrogers4]

Sorry Mummygee you are going through a bad flare. Jack did pretty well on Azathioprine, controlled his symptoms, he felt good, had energy and he had no side effects, you do need to have blood tests quite often but it wasn't too bad. It does take a while for aza to start working, you need to get up to theraputic levels.
Not sure about the lactobacillus but he could have been simmering for a while and it was just enough to tip him over. Sometimes we just never know and as much as we hate to admit it sometimes certain meds just quit working for them.

 

[Lewiss mum]

hi mummygee. lewis is doing well on his aza the only prob he had is with his neautrophils they go very low to the pojnt of leaukopehnia hen pop bavk uo his levels are 1.4 and have been for two weeks he has weekly nloods amd will do until they stabalize. id say that is the only bummer . from fhe first week we noticed a difference i no it takes a while to work but maybe lew realy needed it i hope he can stay on it forever as i have my little boy back after nearly two years of pain . i told his ibd nurse i never thought id be happy about my boy taking i fliximab and azathioprine but it works and im really happy. the side effects u hear were minimal slight tummy ache 30 mins after taking so we gave it to lew with his tea . the other side effects are so rare the benifits out weigh hun . i no its a hard decision to make and one only u and ur hubby can make . everyone is different . good luck hun .x

 

[Sascot]

I am just where you are as well. We have just started on 6mp after me putting it off for around 6 months. Was truly wishing we wouldn't have to start it, but have finally given in. Week one nearly over and so far so good. Unfortunately we don't have any crystal balls (could sure use one myself!), and can only try for so long and then have to do what docs recommend. Good luck with it!

 

[Devynnsmom]

I'm so sorry he's not feeling well. Hopefully they can figure out how to make him feel better very quickly

 

[Mummygee]

I'm so sorry he's not feeling well. Hopefully they can figure out how to make him feel better very quickly

Thank you x

 

[Mummygee]

Thank you all of you for your replies. Just knowing we're not alone is a comfort in itself x

 

[Niks]

Thinking of you and your boy. Really hope they get it all under control really quickly.

Big hugs

:ghug::ghug::ghug:

 

[my little penguin]

DS took 6-mp for 8 months .
Only his liver blood work was ever elevated and the docs adjusted things accordingly .
It didn't really help DS enough but it helped some
Good luck