Back on the Pred

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shazz

shazz

Joined
Nov 14, 2011
Messages
974
Hi all.

I am soon to ggo bback onto the dreaded Prednisolone again. This time I have a stoma and was wwondering if it will affect my salt intake too much. I have to have salt as i no longer have a colon but really don't want to have water retention.
I know i wont be able to avoid the water retention as i had it really bad last time, swelled up like a balloon! Would like to minimize it though if possible.
Really not looking forward to the whole roid rage thing either. I am hoping that my anti depressants may help but ot sure if they will. I have put out a warning to all around me just in case. I just wish I was wwell enough to go to the gym and work off the excess rage I get.
Hope you are all well.
 
Hi ya, good luck with it all. What dose will you be on? I take two antidepressants morning and night - My roid rage has been minimal and I feel more in control. It may be a good idea to investigate the possibility. I got good news today that I can finally drop from 40 to 20 pred and stay there for 6 weeks before my GI weans me off. Hopefully by then the Humira and Aza have kicked in.

Keep us posted.
 
I am starting on 40mg a day and tapering 5mg a week.
Going to start tomorrow.
Good news about your taper! Whoo hoo!
By the time I taper off of mine completely I will only have to wait about 6/7 weeks for my j-pouch op.
Really hope it makes me feel even a bit better than i do now.
Xxxxxxxxxx
 
Same Shazz! GP flagged with me today that the GI is probably going to put me back on a quick course of Pred when I see her on Mon. I've only just got rid of the acne from last years Pred foray. Very disappointing outcome.
I hope you fare better on it though - you really deserve a break.
 
Good luck on the pred Shazz. Lets hope it works it's magic without all the side effects. (we can always hope cant we?)
 
Sorry Shazz! Do you have one of those portable fans? (you know, like us perimenapausal women have?)
 
Yep got one of those!
As soon as I take my jumper off I am bloody freezing then I put it back on bloody boiling!
Gonna be one of those Pred runs I think.
 
Not your fault hun!
Thanks anyway.
Now got the raging hunger. Tidying cupboards as it hurts to eat anything at the moment. Did some bisep curls earlier as well! :)
Wish I could go for a run
 
I am so over the sweats:yfrown: - and yesterday I was trying to help hubby with his study and it was so hard to get a roid rage with him. Men's thinking v's women's thinking and dedication to a task at hand. It's 2:53 in the morning here and I am awake already. I have only had a few hours sleep but my mind is now alert. So i have got up and made a cuppa and trying one of my cookies I made yesterday.

I can't wait till I get back to a normal sleep routine...
 
I hear ya hun.
Can't keep my eyes open though today. Had one nap earlier and feel like i need another one now. I don't usually sleep so wonder if thats why
 
I get shattered during the day just from moving around the house - I think that is more my crohns, than pred - but currently I am taking 32 pills a day - so it could easily be drugs - who knows. My best time of day is around now until 10 am and the I go down hill from there - normally after breakfast, followed by pills, lunch and more pills and dinner and more pills. Food and pills, my crohns hates the food, my diabetes needs me to eat and I need the pills to keep me in balance - in more ways than one.

If your body needs sleep - grab it when you can and when you feel like it. I'd think of it like banking some sleep while you are on the pred.
 
Lol I am trying but my body wont let me settle!
Have had about 15 minutes. Hoping I will sleep tonight but doubt it. I am on 30 pills a day at the moment but i know mine will go down by 1 next week.
Hate taking my tablets as I still struggle to swallow sometimes during the day. Especially hate the Pred tablets they are so bitter.
 
I would if I wasnt working like a crazy woman all friggin weekend and bank holiday.

xxxxxxxxxxxxxxxxx
 
Less than 12 hours after my first dose I am seriously considering not taking tomorrows dose.
I have aa horrendous headache, feel sick but hungry, so very tired but can't sit still.
I ache from head to toe.
Have had an awful week, both with me and alex, and really nneed a break.
Like now would be good!
Not even me feeling better but at least let alex feel better and be able to play and act like an 8 year old.
Rant over. Sorry
 
Sounds awful, but it also sounds almost like you have a bug too?

You are gonna get a break. Something is gonna work. It has to.
 
I feel awful.
Not got a temp though never do!
What do you think about not taking the next dose. I don't want to feel like this all weekend.
Really dont know what to do, again!
 
You started on 40mg? Maybe it might be a tad high? I dont know what you weigh, but I'm sure that must be the correct dose? I usually start on 30mg cause I'm a pygmy. But you've lost quite a bit of weight havent you. Maybe 30mg is a better dose for your weight to begin with? I just know that nothing else has helped stumpy or you to feel better. And I know that pred does work! But I also know you have a heck of rough ride with it.
(someday I'll tell you about mine...it involves assault, totaling someones car, throwing heavy objects across aisles in B&Q...oh, the incidents. But I never got fat, so I guess it's ok then!!)
 
I had an incident with a very large sharp butchers knife! Killed a piece of chicken instead of my hubby!

I now weigh 78 kilos. I was 91kilos mid january.
I did tell them I had lost weight but they never asked how much.
I might take it down to 30mg and see how i am tomorrow.
 
Maybe that would be a good idea. I just want you to stick with it if it works. And yes, I KNOW it's horrible!
 
Decided then.
Will go down to 30 mg tomorrow and see if that makes feel less like shite!
Hope so got to go toto town tomorrow and help alex spend his birthday money.
 
I just hope you can enjoy the day, and Alex too, bless him.
huuggggggggggggsssssssssssssssssssssssssss
 
He has just come upstairs and said his tummy feels funny. So might be up with him in the night.
Hope not though, bless him
Xxxxxxxxxx
 
LMH suggested the Dr test him for some things. Did the Dr do so? Lets hope today is a good day for both of you.
 
Last night was ok for him.
Me not so much. Shivers but no temp. Fell horrid today as well. Really don't know what to do.
The doc has done a full blood work up on alex and we get the results on Wednesday. He thinks he might have glandular fever. Could be.
 
Me wish me a break too!
Just had 4 pretzels with a lot of pain afterwards. Get really full up quickly as well.
Sounds like a blockage to me. Got a lot of the big D.
The tablets I am on are metaclopramide(sp?)
 

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