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Good luck
Applesauce is also constipating - just an FYI
If she was truly flaring ( egid wise) from banana typically
Kids wait a few weeks at baseline ( I think ??)
Before trailing the next food .
Your second opinion might be able to give you accurate guidance on this .

Is she weaning from pred on Friday ?
 
:voodoo:Apple sauce is constipating?????? WOW

As far as the weaning off pred...I don't know?
I pray so. We'll see by friday if she stays better.
 
Can you start with rice? Since it worked for Happy? I know Gracie eats rice for just about every meal these days. Really. :)
 
I'm not against rice. Make a big bowel and dish a little out through out the week.
See how she takes it. Thanks, good idea.
 
Now I don't know about waiting like MLP said. But, I'll be curious to hear. I am not kidding when I said lunch and dinner is pretty much rice (and she likes a little shredded cheese on it) every. single. day.
 
Gosh, I hate to complicate things for you FW! :(

You said make a big bowl of rice and give it to her over a few days... I don't remember the specifics but have read that there is an issue with reheated rice, maybe something with the starch??? Rice is one of Stephen's favourites but I don't give him leftover rice (unless it's only leftovers from a couple hours earlier).

There's a brand of instant rice (forget the name but it's a common one :ybatty) that comes in individual packages (and, before you start thinking all us city girls use instant rice, this is one of the few things I use that is INSTANT! :ack:). It's more expensive than a bag of rice :ymad:, but I have found it to be one of the most convenient prepared foods EVER! I don't use it for family meals but, if either of the kids comes home late, etc. and wants a 'meal', they microwave one package and add leftover chicken, etc. to it. (or, in the case of my daughter, a can of sardines! :eek: :lol:)

I don't know if there is any else in the ingredients that would be bad for Grace but, if you're going to try to introduce rice, just a bit at a time, using these might be easier. They sell some that are flavoured (ie asian rice), but I've only ever bought the plain white or brown rice.

:hug:
 
Farmwife said:
:voodoo:Apple sauce is constipating?????? WOW

As far as the weaning off pred...I don't know?
I pray so. We'll see by friday if she stays better.
Click to expand...

Applesauce has a lot of pectin in it. Pectin can be used to combat both diarrhea and constipation without significant side effects, as long as you take it in the correct quantities. For constipation a large amount of water must go in as well for Diarrhea very little water. So it depends. We stay away from apples bc for some reason Rowan just doesn't digest them easily. It is on the recommended to thicken up output list when she had an ileostomy. I would avoid it as well. ;). Rice is considered constipating as well unless you choose brown rice which I think tastes like dirt.
 
If I had to pick a fruit I would choose berries, bc they are high in antioxidants and are easily digested. strawberries and blueberries but they will change the poo color so be forewarned. Idk in regards to her reaction factor but berries never ever constipated Rowan and they are always digested completely. For a j-poucher that is unheard of for a fruit! Is she allergic to berries?
 
UMMMMMM, I usually use organic jasmine rice. No microwave Tess.
Soooooooo I'll have to make some around dinner time each night, eh. :)
QueenGothel blueberries????? Ya, she loves them.:hug:
 
I agree with Happy's advice ... rice and just a few tablespoons at a time to avoid too much pain when introducing food and ato void the constipating effect of rice. We tried starting an elimination diet for Danny with just rice (note: he was not on EN first) .... and we made a big mistake by letting him eat a bowl of rice for each meal. For a kid with constant diarrhea, he was backed up and had a lot more pain. He will not go near rice now.

Good luck!!
 
Wow, the diet advice sounds very complicated. Telling you it's up to you to decide is a bit of a cop out! Do they have a dietician/nutrionist that could give you some advice? The only things I remember about reintroducing food are plain rice, plain chicken or fish, custard/jelly :)
 
JUICE!
Why not JUICE to start with. I'm talking about a half a cup or so a day.
That way it hopefully won't back her up and I can watch for an allergic response.
If she can go awhile with no symptoms, then I can add the food slowly.
I'm feeling rather smart this morning.
:voodoo:All bubble poppers stay away!
Just kidding...all bubble poppers welcome.:kiss:

:hug:
 
Purely personal opinion here but I'd be cautious about juice, remember it's concentrated fruit. I remember when I introduced foods when my boys as littlies they got cooked fruit first and then only months later diluted juice (not sure if that's still theway it's done).

I think the rice suggestion sounds good as a first food.
 
Farmwife, on my program of reintroduction, juice was one of the later foods to introduce. I can'r remember if I have mentioned these books to you before: Inflammatory Bowel Disease: The Essential Guide to Controlling Crohn's Disease, Colitis and Other IBDs by Professor John Hunter and Beat Crohn's! Getting to remission with Enteral Nutrition by Margaret A. Oppenheimer.

The second book (despite it's cartoon cover) has well-researched and detailed info about different types of EEN and ways to return to eating. The first one describes a treatment program of EEN used for IBD at Addenbrooke's Hospital in the U.K. The book describes the process of returning to eating using a full elimination diet (they also describe one for a partial elimination diet--don't use that one) that they have studied. Their theory is that EEN brings on remission by changing the flora of the bowel, so when one returns to eating, keeping the flora in the state that brought on remission is what helps. They have researched many foods that cause problems for people with IBD and came up with the diet to get a person back to eating in the fastest, most successful way.

This worked for me, however, it has been a very long process, and one that I have had to be fully committed to for over a year and a half. I still have not fully tested all foods as the process has been much slower for me than in the book.

Unfortunately, raw fruits and vegetables are high in fiber and one of the later foods in the program, so I wouldn't start Grace with juice--as well, it is also usually very acidic and can cause reflux when first starting to eat again.

I know that it may seem that all we do is to tell you what not to do, but Grace needs a well thought out plan for a return to eating, so that she doesn't have to do it all over again. It si very discouraging when that happens--I know from experience.

You are looking for a well-balanced diet for her in the end, with foods that she is most likely to tolerate. She needs a grain, a protein, a fat, and a milk and a cooked fruit/vegetable to start. Watery Rice, chicken, olive or canola oil and probably a rice milk to start. Then well cooked carrots and/or pears.

This info is from the IBD perspective. You also have to consider her other condition.

There is more info about this process in the My Story Forum http://www.crohnsforum.com/showthread.php?t=31028
:hug:
 
Can you try broth? FYI, our GI said to stay away from berries etc. because of the small seeds that can irritate intestinal lining. I have some handouts for a 4-stage IBD diet (different levels of appropriate foods based on level of flares) that we got at the hospital; if I could figure out how to attach them from a scanned document I would be happy to share...
 
here isthe thing - if you trial food
you need to trial only a single ingredient thing at a time.
so if its rice then nothing but trice plain - not extra anything added to flavor or otherwise for at least three weeks.
This is not like typical re-intro to food that any other IBD kid has - She had EGE-
Food trials need to be simple- and since she just failed bananas- you need to wait until your GI says she is back at baseline to try again.

Simple food - means if you want chicken - then nothing but chicken boiled in water for chicken broth, boiled chicken, baked chicken etc....

if you are going just back to non top 8 foods - then that opens things up- but gets tricky figuring out fails fast.

( again not a doc just a mom- so please ask your gi for advice)
 
MLP are you saying that for me or them. Because I know that!:tongue::hug:

OK, no foods.
Just had another brain storm,
I want her to step down pred,
So starting foods that might cause more pains and which might keep her on pred longer is not anything I wish to do.

My goal is no foods, just EEN.
Friday, Lord willing, start the step off pred.

Update
Grace's joints are so sore she no longer can walk up the stair. Sitting on a heating pad not.
 
Henrietta78 said:
I have some handouts for a 4-stage IBD diet (different levels of appropriate foods based on level of flares) that we got at the hospital; if I could figure out how to attach them from a scanned document I would be happy to share...
Click to expand...

You know Henrietta78,:hug: that sound interesting. I'll look and see if we have a thread that we can put that into. I think it's neat to compare how docs do thing. Plus maybe it will help people with options.

I'll get back to you on that.:)
 
Oh, MLP since I know everything. I know you must have some research on IBD and EGID's together. Could you please let me know.
 
Farmwife said:
Update
Grace's joints are so sore she no longer can walk up the stair. Sitting on a heating pad not.
Click to expand...

Poor little thing :eek2:

Hope that eases off soon.

Good luck with her food trialling, it sounds so complicated!! :frown:

((((hugs))))

:ghug:
 
Is it a normal symptom for EGID to have the constipation? I just worry about that for her always. The nightmares of prolapse haunts me from my own experiences. That was the only reason I was concerned about the rice bc I know her constipation was extreme constipation for so long.
 
Sorry to hear about Grace's joints! At the risk of sounding more blonde than usual, has Grace been referred to a Rheumi?
 
Sascot she does see a rheumy. He felt nothing in the way of damage. Thank GOD. She will be seen by him every 6 months.

A great 2 days for Grace NO PAINS! YA! It's like a switch was flipped and she's fine.

Now for the GREAT NEWS!

WE CAN START THE TAPPER OF PRED! YA! So happy.

The only problem on the horizon is.......

Her BM's coming multiple times a day and are lose, seems to have a lot of gas while pushing and even seems explosive at times.

Do your children get this?
 
Yay for coming down on the pred!!

Are you adding food back to her diet? Maybe her tummy is sensitive to the additions. We have a gas problem when he eats something like beef, too much sugar. That's usually followed by a few bad stools. But once he gets that food out of his system, it's all okay.
 
Not a lot of time. Sorry.

Heading down state to see GI
Grace not drinking much any more.:confused2:
Lost weight and seems tired.:confused2:
At least the pains seem better.
Nurse said it was ulcers in the mouth but they've started to heal. YA!

I'll up-date soon. I hope!:yfaint:

HUGS:ghug:
 
Good luck at the apptmt. Hope you get some answers re the ulcers and some reasons why she's still having problems!

Did you ever find out why her ng tube was discoloured/black?

Waiting for your update! :ghug:
 
Good Gi appointment.

I think we finally figured out what we wanted for her and what questions to ask.
I think the GI understands we're educated (some :yrolleyes:what) on this.
We seem to have hit it off better this time.

Here's the plan...THAT I'M HAPPY WITH!

Continue NG feeds and nutritional therapy
Continue steroid weaning
If nutritional therapy continues to help will consider G tube:eek:
If steroid weaning fails, :confused2:will consider anti-inflammatory meds and budesonide
Keep stool soft
Intro to food (One every 3 weeks) start with purees aka organic baby food.

We talked in depth about EGIDS. We're going to try one food at a time. Will discuss and change if multiple foods fails.

As far as the second opinion in Cinnattia...NO,:ymad: the second insurance told me IF a hospital in MI can treat it (EGID) we have to stay in Michigan.

Is it IBD??????? Well when I asked about WHY did two treatments (EEN and PRED) seemed to fail and or take longer than normal to work ?
He went on about early on-set of crohn's and the possible severity of the disease. He still will not dx her with this until visual damage. Fine! I don't care any more. I real don't. My goal as a mom is to get her better and make sure that our decisions are the right ones. I feel this plan of action for now is the right one. BUT of course we ALL know how fast it can change.:yfaint:

As far as her weight loss...she's coming off pred. The GI said it might have caused the dip.
Her decline of drinking the shakes...virus? She looks like a cold is coming.:yfaint:
Ulcer....magic mouth wash.:smile:

The good news is, I feel Grace is getting better. The knee pain has stopped for a few days and her belly pain seems a lot better. Hopefully the corner will be turned soon.:ghug:
 
Sounds like you have an informative meeting and were able to discuss lots of issues! I hope the plan works and you see consistent improvement in Grace (even if there are a few bumps in the road ;)!

:ghug:
 
Definitely sounds like a good meeting! Good luck, really hope that Grace starts to feel better very soon.

I agree, it doesn't really matter if you have a name for what is wrong, as long as she is improving xxx
 
Glad the Appt. went well and you have a plan. I agree don't care what it's called as long as you can make your princess feel better
 
Thanks all.

I did find this funny,

On the discharged papers her diagnoses has a big start next to it. I guess he remembered the mix up, eh!:lol2:
 
Last edited:
Glad the visit went well
From an egid standpoint
Warning most commercial baby food are contaminated
Even organic
Strongly suggest you purée your own ;)
 
Cross contaminAted with milk egg etc....
Since this labeling is voluntary
Meaning just because it says may contains milk doesn't mean wheat is not present As well
 
Thanks mlp, that's good to know. I'm not against doing it myself. I was just trying to save myself the clean up.:yfaint:
 
Oh yes the secondary only covers if it is in-patient doctor to doctor transfer. I learned that when we wanted to transfer to Cinncinati that if we wanted the second opinion they would have to do a transfer for it to be covered out of state. That stinks though, so does that mean they will let you go to Motts now? Our primary though in network doesn't cover much anyway, CSHC covers the majority of the bills.

Over all sounded like a good appointment. Sounds like you have a plan.
 
QueenGothel
Ya, hubby and I are happier now. I think we and the GI just needed to get on the same page.
The GI didn't meet all my demands:cool2: but we didn't meet all his.:cool2:
So their was a compromise on both sides.
:smile:
 
Happy Update

Grace has had a good week and a half. No symptoms, no problem. It's been wonderful. She deserves to be pain free. She did have a bit of joint pain tonight but I'm choosing to ignore it if she can.

One thing I forgot to mention (I will be calling the rheumy) is he wrote and told the GI she does have hypermobility syndrome (double jointed). Now that in it's self is no biggie BUT it might attribute to her on-going joint pains. That makes a little more sense with her leg weakness. What I was thinking is weakness, was really..:yfaint:...being to bendy.:eek::ylol:

I hope y'all have a good week-end. Spring break is upon us, so I will be avoiding town like the plague.:ybatty: Plan on cleaning upstairs.
My poor son is tired:ymad: of me saying, you'll be moving upstairs soon into your new bedroom. Don't blame him...it's been 6 yrs.:lol2:
 
Thanks for the update FW...:ghug:

Lordy, lordy, lordy...I hope things stay settled for your Princess, she has been through enough already, bless her...:heart:

Dusty. xxx
 
Last day of pred and I feel like.................................
:yoshijumpjoy::mario2::banana::emot-dance::luigi:


Grace is doing GREAT. No pains, no tears, no sleepless night.
She hasn't even needed a nap for 2 weeks. :yfaint:(Kind of miss that one)


Now we wait:cool2: and see :eek:what might happen.:yrolleyes:


:ghug: to everyone.
 
I soooooooo hope all stay settled for your little princess FW, bless her. :heart:

:goodluck: Dusty. xxx
 
Just read your update...Wowee! So excited that your little princess is doing so well! She is most deserving of some "feel good" time and so are you.
 
Thanks everyone. It's been a great few weeks. Day 3 off pred.
She had blood in her poo again.:confused2: Just a little but noticeable. I know it sound horrible BUT I just am going to take a few more days and watch/pretend that all is right with the world.
Sometime this week her GI wants to order the FC stool test. Also her GP wants labs done. We got Grace the Buzzy Bee (ladybug for her) for her labs. We'll see if it works.

Also we went to the eye specialist has said her eyes are GREAT. No inflammation and he said come back in 9 months. YA!!!!

Sorry I haven't bee around much. The farm is starting to "spring" to life and the hustle and bustle of farm life has started.:ybatty: Now that Grace is better...we're on the GO all the time. I LOVE MY FARM LIFE! (So much better then city life. Hi crohnsinct, :cool2:I haven't forgotten you)



:ghug:

Hugs to all.
 
Mylittlesunshine ben's rn vtfamily CarolinAlaska EthanClark malgrave and everyone else.

:ghug:
A few of us want to put together a support group for g-tubes, n-g tubes, mickey buttons and such. The problem is I need help with names for this group. HELP!

Here's my idea that took way to long to come up with:yfaint:. You can vote on one or come up with your own.

1 The Tube Support Group
2 Tubbies Support Group
3 The Tubbiest Support Group
4 Every Way but the Mouth Support Group (not real serious on this one, it's just funny:ylol:)
5 At Least it's Doesn't Go in the Other End Support Group ( just funny:lol2:)
 
Farmwife said:
Mylittlesunshine ben's rn vtfamily CarolinAlaska EthanClark malgrave and everyone else.

:ghug:
A few of us want to put together a support group for g-tubes, n-g tubes, mickey buttons and such. The problem is I need help with names for this group. HELP!

Here's my idea that took way to long to come up with:yfaint:. You can vote on one or come up with your own.

1 The Tube Support Group
2 Tubbies Support Group
3 The Tubbiest Support Group
4 Every Way but the Mouth Support Group (not real serious on this one, it's just funny:ylol:)
5 At Least it's Doesn't Go in the Other End Support Group ( just funny:lol2:)
Click to expand...

I like the first 3 options above...

How about:
Tubes, lubes and long-thin ****s? (Just kidding!)
NGs, NJs, MICkeys, Minnies, G-tubes (and so forth) Support Group
 
I like number 1 from Farmwife's list and number 2 from Carolin Alaska's list ;)
I gues these 2 would be most clear for someone who is not so familiar with tubes...
 
Ok how about...
Tubes; NG's NJ's, G-Tubes (and so forth)

or

Tube Info Support Group

I was trying to keep it on the short side.
 
All about Tubes-I like that also:smile:

Ok

New Choices

1 Tubes; NJ, NG, G and Mickey Button Support Group

2 All about Tubes Support Group

3 Tubbies Support Group

Have to go, one of my kids said oh-oh in the other room! :eek:I'm scared!
 
Just happened to notice... there already is an NG tube support group - maybe you want to 'merge'???

Just passing it along :)
 
We'll I'll be! There is? Thanks Tess

Well maybe a support group for surgically place tubes like G and Mickey Support Group than.
I guess that was my first thought anyway. I'll look it up.

What does everyone else think?
 
ya, I just pm her but she hasn't been on in awhile.

So do we want a separate group? Or make one in the parents forum?
 
I think it's good idea to have one in parents
Forum, is that group just for NG tubes?
This is just my opinion .
What's your thoughts ???
 
Ok, YoungLava1405 has just pm me.

He says he says fine with a merger.
So I guess for now that sounds good to me. IF there is a lot of interest in G-Tubes and Mickey Buttons we can always make another support group then.

All in favor say I..........................

I
 
FW when you're talking of "merging" ~ are you going to need a thread from the parents section merged to the support group that already exists ?
Lemme know if you need me to do it.
You may need to PM me as I haven't been on too much lately.
:)
 
Thanks Crohn's Mom I'll pm when I have time.

We had a freak ice/snow/rain/slush storm hit our area hard.
The bad news is...it brought the farm to a stand still. The good news is......I had nothing to do.
Now farm life is going to pick back up even more.:yrolleyes: Now we have a week to make up for.
So it was nice to be on here little extra. Back to reality I guess!:ymad:

Update on Grace:
Asthma is real bad.
She is on feedings (n-g tube) again as she has stooped drinking it by mouth.:confused2:
I hoping this is a virus and it's not because of coming off pred.
GI said he wants to wait two weeks.
The Friday she has a surgeon's appointment (consultation for the g-tube placement). Then I was told one week later she'll be in for the surgery.
Now that's she not drinking the stuff I feel totally better about doing this.
The n-g tube is making her sinus bleed. Not good.
So if I can't stop by for a awhile, y'all understand.
Hugs to everyone and
I hope your kids stay healthy...well at least happy.....well at least our of the hospital.

:ghug:
Farmwife and little farm girl/Tinker Bell/ Cinderella/ Water Fairy/Grace:yfaint::ylol:
 
thanks for the update. Sorry Grace is back on the tubes. Do you have a plan for a Mickey so she won't have to keep doing the NG? Hang in there.
 
Does she see a pulmo for her asthma or just gp???
Under controlled asthma can be serious.
Did the doc give you an asthma action plan??
If not ask for one.
We have to call for all flares in case meds need to be adjusted or added .
Sorry to hear about the tube .
 
MLP- Grace sees one of the BEST Allergist in the State.
Yes she has an action plan in place.
We've just never needed to use.
This is her first real serious flare.:confused2:
I will be calling on Monday to see about upping her meds.
She's on 4 different kinds of asthma meds now.
However, last night my boy came to me with a HIGH fever and a sore throat.:eek:
So at least now we know it's being triggered by a virus.
As I type this at 3:49 am, I'm having a hard time with breathing through my nose. GREAT!:yfaint:
We will be taking the kids to the walk in.
I want to make sure she's not going into pneumonia.
She has manage to sleep for 6 hours.
:yfaint:Oh.....and she hasn't pooped and was saying her butt hurts.:ybatty:
 
Been away so missed alot of posts! Sorry to hear you're all coming down with the cold/cough. Andrew had alot of trouble with wheezy coughs coming on whenever he got a virus - had a few trips to the out of hours doctor - why do things seem so much worse at night!
Hope things settle down and everyone feels better
 
MLP - hope that Grace and you are feeling a little better soon, and you managed to get some sleep, sending (((hugs))) :ghug:
 
FW most allergist have on call services for weekend flares.
I would call them now - they will probably call in a med since night time tends to be worse .
Asthma typically does flare with illness and gets out of control if the right combo of meds are not in place. Everyone is different so sometimes it takes a few try's to find that combo .
Good luck
 
Update:
MLP calls will be made for sure. THANKS:ghug:

Grace seems happier and has drank 3 juice boxes by mouth already. YA!
Thank God for her n-g tube this past week. She would have never made it with out one.
My son on the other hand is the picture of true misery.:yfaint: Poor kid. At least he eats no mater what.:lol2: Hopefully this virus will pass soon.
Have a good week y'all!
 
Did you go to walk-in clinic? What happened with it? My two youngest have colds - coughs and snotty nose with 8 yo. I keep hoping Jae doesn't get it!
 
Grace is better on the virus front.:ghug:
:yrolleyes:Don't ask about the rest.

Have a good few days y'all. I'll check in when I can.

Spring has swung back in.:yfaint:
 
We meet with him this Friday. We've had a change of plans so the surgery is already scheduled for the 1st of May.:yfaint:

Her n-g tube is just causing to many problems. We had to pull it.
The surgical nurse said they will get in then.
So we will try to make her drink all by mouth until 1st.:eek:

I took her Fecal Cal stool test in today.
I just have this bad feeling that the test will show nothing good.:ymad:

Grace's virus and asthma seem to be almost gone.
:cool2:Intersting... pull the tube and the next day things settled down a bit.
 
I hope she manages to drink the shakes until then! :ghug: and glad she's a bit better re the virus and asthma!
 
Wow, 1st of May seems a long time to try get her to drink all the EN, although now her virus is better hopefully she will feel up to it.
I do remember towards the end of the 8 weeks of EN, Andrew was also struggling with the NG tube causing pain/irritation and he was also quite sniffly, etc. I think having a foreign body in the nose/throat can cause bacteria to build up and cause issues.
Hope your poor boy is also well over his virus too.
 
Well tomorrow is the day.:yfaint:
I will be driving all the way down and back.:yrolleyes:
Why do you ask is that such a big deal????????????????
Well the last time I drove out of my home town was ( or at least 60 miles from it)...............let me think.........10yrs.:eek:
That's right. :cool2:Why can't I just stay on the farm and the Specialist come to me???????
Hopefully if anyone in Michigan is driving the interstate and sees a women driving a HUGE SUV trying to steer and hold her Rolling Pin of Defense, y'all stay out of my way.:lol2:

So I said all that to say tomorrow is Grace's surgeon's consultation about the g-tube placement.

Update::confused2:
Leg pains increasing. She now needs meds to help her with the knee pains again.
Pee-pee accidents again. 4 in three days.
Eye pain this evening. She asked for the eye drops that she hate to make it go away

By next Friday we SHOULD have the Fecal Cal. stool sample back.
Maybe that will put things in perspective.

Have a good week-end. Sunday is my boy's (Gunner) birthday. He'll be 6. WOW!
Time is slipping by so fast.:confused2:
We're planning a fun filled week-end for him. He deserves it.
He has to be put on the side lines so much because of Grace's care
but he never complains he just pulls her hair and runs like mad.:yfaint:
 
Happy Birthday Gunner! Hope he has a fantastic 6th birthday, he is just a few days over being 1/2 James age, James turns 12 on Tuesday but we're celebrating Sunday.
Hope all goes well with the consult today and at least you are driving a big ol' SUV so everyone can see you coming :)
 
Last edited:
:bdayparty:..Happy Birthday Gunner.

Have a safe trip.
Hope everything goes well with the consult.
 
Good luck with the appointment!
Saturday morning here, have you already had the consult?

And a Great Big Happy 6th Birthday to Gunner!

happybirthdayemoticon.gif


I hope your day is fab and fun!

Dusty. xxx
 
Ya, appointment went well. Surgery for the 30th of this month. It's just enough time to change my mind a thousand times.:ghug:
It sound really easy and her recovery should be quick.
 
Good to hear it well FW...easier said than done though ay? :ghug:

In my thoughts and sending loads of love and healing thoughts your way. :heart:

Dusty. xxx
 
Sorry Miss Gracey is having so many EIMs. How's the drinking of the formula going? Maybe the reflux that comes with having an NG tube in was setting off the asthma. I'm glad that calmed down. 10 more days!
 

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