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Hi all! :ghug:
Grace's surgery date of the 30th is fast approaching. I'm as prepared as can be.
I received a blessing that my good friend has taking off a few days at NO pay to come with Grace and I to the hospital.
My poor hubby wants to be there but the farm now is just to busy.
We both appreciate my friend coming with us.
This will be the first time my hubby and son will be without us. :confused2:
I just hope the house will be intact when we come back.:yfaint:


We're still waiting for the fecal cal. to come back on Grace. The GI nurses can't believe it's taking so long to get back.:ymad:
Grace is doing good. Belly pains slightly increasing. Eyes bothering a bit. Leg pains creeping back in but just a bit. Poo becoming a problem, but not to painful.
But hey...way better then it was. (can you see me in the bubble mlp)

I hope all is well with everyone.:ghug:
 
Thanks for the update FW...:ghug:

I'm sorry to hear that Grace is still having problems, bless her heart...:heart:

Good to hear you have someone going with you, that is fab! :)

Good luck for the 30th and good luck with the test results! :goodluck:

In my thoughts, :Karl:

Dusty. xxx
 
Good luck with the surgery! Glad someone is going with you!! How long will she be in the hospital? Is it only a couple of days??
 
Best of Luck to you, glad you have a support person going with you. Will be thinking and praying it all is smooth sailing.
 
I was driving through MI today and this crazy lady with a rolling pin... just kidding.

I hope all is going well today!
 
Glad everything went well. I am sure you are exhausted from the whole experience. I am happy to hear Grace handled everything so well.

Just wanted to let you know that I spoke to Johnny's GI about his high EOS numbers on his biopsy report from his scope. He said that the scope was completely reviewed by Cincinnati Children's when we transferred care and that the person who specialized in EOS disease reviewed it and was not concerned with how high his EOS count was.
 
Hi FW. Thanks for the update. I hope Miss Grace is doing? Is she glad she doesn't have to have a tube in her nose any more? Jaedyn wants to know, did it hurt?
 
FW,
I am just catching up, so much going on I have not been around so much. How is Grace doing? Glad to hear the surgery went well. How are her symptoms? Have they improved any?
Wishing Gunner a belated Happy Birthday!
 
Flare or not a flare.:yrolleyes: That is a very good question.

As you can guess Grace is struggling a bit.:confused2:
I would hate to jump the gun here.
I mean she had surgery 12 days ago.
But from the surgery stand point everything looks good.
She did have a bleeding episode but we figured it was because she was a little to active.

This week LDN will be started.

So do we waited it out until the LDN kicks in or put her back on pred also or wait to see if the flare is just a short term thing because of her surgery?

Her syptoms....tired,slight pains, moody, back to being constipated.:yfaint:

Calls will be made tomorrow. :ymad:I just hate the fact I have to make the calls.
 
Glad the surgery went well. Sorry she is not doing well at the moment.maybe she just needs some time to bounce back. :(. I hope that is all it is. Keep us posted.
 
How long before LDN is supposed to work? And might she be tired, moody and have slight pains because of the constipation? Maybe that's the root of it all?
 
How long does it take for LDN to start working?

I would think if it takes as long as 6mp (up to 3 months) that you would want the prednisone. I think that the delay in 6mp working was the only reason Johnny was put on Prednisone. He too had bleeding after the scope and the Dr called the script in that day. I am wondering if the LDN wouldn't have a better chance of working if the Pred got things settled a bit? It also seems that sometimes small things are enough to kick a flare into action. I wouldn't rush into anything but if she didn't seem to be doing better soon I would consider it.
 

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