Bleeding Rectal Stump.

[maria]

Ok So I have one and it bleeds so much! Constantly. Also with lots of pain. I was wondering who else has this? And if they did how was it treated and if they had a reversal after having this symptom more than 6 months.


I'm just so tired of it. I know this isn't "normal'. I don't want to have it removed because I really want to get my stoma reversed.


Ha I can show pics to give an Idea if needed. I know gross but ?? I'm at the point where I don't care.

 

[KazT17]

Hi Maria,

I have the same problem, I have had my surgery date to remove it all cancelled 3 times now by the hospital. I have another date coming up soon (fingers crossed).

You could do with confirmation that it is Crohn's or UC, if possible. I have been told they won't do a reversal if it is Crohn's. Crohns is likely to recur if it is reversed.

I know others with these symptoms are often given predfoam type meds, but again, I have been told I can't have any meds, as to quote the surgeon ' I will just be delaying the inevitable'.

I suppose you need to ask your GI and surgeon what they recommend.

Hope you get some relief soon though,

Love Kaz xxx

 

[Terriernut]

Not good Maria. Without a good rectum, there cant be a reversal. We must take very, very good care of our wee rectums.

You will need to get on top of this ASAP, and I'm not kidding. Pred foam (le butt facial) or other foams and suppositories can help loads. But really, get it sorted if you ever want a reversal.

Inflamed rectums cause more stomas than almost anything else. And more permanent stomas. So, keep on top of it. And let us know how you get on?

 

[2thFairy]

What kind of surgery did you have---total colectomy? Do you have a J-pouch? How long has it been since your surgery?

 

[shazz]

Hi Maria.

I had sub total colectomy op 10 weeks ago. Now got a temp stoma. Due to UC.
2 weeks after my op my stump started to give me trouble. I have tried mesalazine suppositories, colifoam enemas and have now been given entocort and cipro to try.
Unfortunately I also had a pe 3 weeks after my op and am now on warfarin. The surgeon wont even speak to me about my op for aanother few weeks so have to learn to cope with it for now.
I am bleeding a llot, because of the warfarin, and have a lot of mucous as well. Am now going toilet up to 10 times in 24 hours.
I do hope you get something sorted soon. Its ike Misty(terriernut) says. We do need to look after our rectums.
Wish you all the best hun.
Take care.
Xxxxxxxxxxxxx

 

[Samboi]

Mine was a bit bloody post op - whilst the CD was not being treated.
Since I started the Humira a few weeks ago - it has almost completely cleared the bleeding up. I do heaps more mucus poops though. Even cacked me dacks the other day - some things never change!!
The CRS has been abundantly clear - no reversal for me unless the CD is 100% under control.
I hope you get your bleeding under control so you can get your reversal done.

 

[maria]

I'm worried. I've been waiting for my surgery for over 8 months now. They got my chart mixed up with someone else who had crohns. But in the mean time I still have a lot of inflamation in my rectum. I've driven to seattle about 4 times begging for help and get everything straightened out. I was a bout to give up a month ago when my GI doc called me and told me of the news how they got me mixed up and that they made a mistake meaning they shouldn't have taken my colon???!( Hurt my feeling by the way. I cried like a baby) But that this doctor would agree to do the surgery. It's been over a month waiting for them to respond again to me. And nothing. I'm still bleeding BADLY every day. The toilet is full of blood everyday. I've been taking my vitamins and I'm really into herbal stuff and the eating no gluten has been amazing to me so far. But I just wish the Drs could figure this out Because I'm a single mom to 4 kids and I want to be 100% for them. Right now I'm about 60%. Yes I would would be very sad if this became permanent but It is what it is. The plan was/is to do a j-pouch.

 

[Ian]

If it reassures you Maria, a standard 'reversal' and a 'j pouch' are two different things.

A reversal just means reversing a stoma, which tends to involve connecting the bowel at the points where a section was removed. In the case of a colectomy for Crohns disease, a reversal is only possible if you still have your rectum, and if the rectum is free of disease/healed from disease. So if you have Crohns, have had your colon removed, and have a diseased rectum, a reversal isn't possible.

A j pouch for UC doesn't require you to have a rectum - in fact having one would be counter-productive because the rectum is almost always involved with UC. In fact that's normally where it begins (and then spreads upwards). So of course, they need to remove the rectum too. When people speak of having the j pouch hooked up to their 'rectum', that isn't entirely correct. It's actually only the rectal cuff that it's attached to (the 1-2cm of rectum they leave inside). The rest of it goes in the medical waste bin! So don't despair, if you had UC you should be able to have a j pouch, an inflamed rectum doesn't stop you. In fact, it's possible to take the rectal cuff as well and just attach the j pouch straight to the anus. Some people think this can come with a risk of incontinence, although I'm not sure that's been proven. On the upside, you're guaranteed to be free of any tissue that can become diseased.

But I’m confused about the chart mix up – which disease do you actually have then?