C-diff for the third time

[Max's Mom]

c-diff for the third time

Max (11)has now been hit with c-diff for the third time and it's back with a vengeance.Fever and tons of gas and diarrea.And really bad stomachaches. How much can one little guy take?This time we are trying vancocin with some florastor. Started last night with not much improvement. He has barely eaten since Saturday,trying to focus on keeping him hydrated. Does anybody out there know how long it will be until he can start to feel better?Can we do anything else?

 

[tiloah]

I am so sorry. C. diff is so awful and so difficult to treat. I will be sending healing thoughts your direction. I hope he starts feeling better soon.

 

[wolfem]

I'm so sorry that he has C. Diff I had a very resistant strain--probably similar to what he has and had to go on high doses of metronidazole and vancomycin. I was on the medications for 4 months. I was also eating garlic all the time so I'm not sure if that helped. There is another probiotic that I think helps to bring the infection under control but I can't remember right off the top of my head, what it is. I think it might be S boulardii. I had my doctors test me every 3 months afterwards to make sure that I didn't have a recurrence because the spores last in the environment for long periods (I think this is accurate). Well, I just hope that the medications help him.


-Mary

 

[LittleChloe]

Consider colloidal silver. Chloe had c diff and we gave her 2 tablespoons a day. If you have a good health food store in your area they'll be able to help you. The florastor is very good. Sustenex is another excellent supplement and you can get it in chews that the kids like. I don't know if your son can have it or not but drinking ensure shakes helps Chloe a lot when she doesn't feel like eating. Best to you

 

[DustyKat]

Hey Max's Mom,

I'm so sorry to hear that Max is having to go through this again.

We don't have any experience with C Diff at our end but David in Seattle has posted an excellent and extensive article about C Diff and IBD...

http://www.crohnsforum.com/showthread.php?t=14610

Sending loads of luck and well wishes that Max is able to overcome this very soon...:hug:

Dusty. :heart:

 

[exit4]

I had c diff 2 times - it was terrible! vancomycin for 4 weeks each time and it took about a month before I started to feel better. Ensure shakes are great for nutrition if he can't eat regular food. I also took probiotic called Healthy Trinity the second time and c diff has not come back for more than 2 years.

 

[Max's Mom]

We are dealing with c-diff again and are put on Flagyl. I don't know why they think that it will keep it away this time. They said that he's too young for the "new " antibiotic out there for c-diff.

 

[DustyKat]

I'm so sorry to hear that Max is going through this again, bless him...:hug:

I hope the Flagyl goes against the odds and does manage to knock it on the head this time...:goodluck:

Dusty. xxx

 

[riotxjess]

Ugh, I'm so sorry. I hope it clears up quickly. I was just released from the hospital for C-Diff and they said it was a mild case. I couldn't imagine having it for the third time.

*sending well wishes your way!*

 

[heidit68]

Aw, I am so sorry to hear this I spent nine months last year fighting c diff. I finally was on vanco for almost 8 weeks straight before I tested negative. Sounds like they got you on the right meds. I ate yogurt three times a day while on the meds and forced my self to eat small snacks as meals through the day. The c diff makes you feel so awful you really don't feel like eating. Hang in there & best wishes to a speedy recovery!

 

[David]

Max'sMom, here's an interesting thread for you. And here's a second with more information on the procedure.

 

[Max's Mom]

Thanks,David.I have heard about this before and it does interest me.I am so tired of having him in pain I am ready to try just about anything and that would include this. But I am afraid if I mention this to his GI that they might laugh at me. Cecilia.

 

[David]

Educate the heck out of yourself to the point you're an expert in it. If you're still interested, talk to your GI. If they laugh, school them. They won't laugh after that.

 

[Max's Mom]

David,do you know anybody here on the Crohn'sforum who has done the procedure?

 

[David]

Bustersmom in this thread self administered. I'm not aware of anyone who has had it done by a doctor.