Calprotectin level, doctor still thinks food allergy....

[ezgoindude]

Hey y'all thanks for listening!

Quick question, my calprotectin level came back when I felt my worst at 153.

My colonoscopy came back perfect, my endoscopy showed chemical gastrophy and duodenum villi looked flat, biopsy also however good.

Doctor is pushing hard for celiac or non celiac gluten intolerance. What is your guys experience with the calprotectin test? Is a food allergy test worth a shot?

 

[Clash]

My son is dx'ed with Crohns and we use the fecal calprotectin test to gauge inflammation that may be occurring, during a flare his FC level was 1700, his FC levels were judged baseline by having the FC test, an MRE and a colonoscopy during the same time frame. At that time he had simmering inflammation present on colonoscopy and MRE and his FC level was 300.

Have you since tried eliminating gluten to see if there was improvement? There are still other tests that could be performed if you were concerned such as a pill cam to look at the small bowel, an Magnetic Resonance Enterography(MRE) or continued check on blood work.

I hope you find some answers soon.

 

[ezgoindude]

Hello clash! Thanks for the quick reply, don't gave a computer yet so I suffice with family's tablet.

I have taken gluten and dairy out since sometime in January, and my energy and sense of wellness are back. It is however been interesting with my guts. I continue to have burning usually shortly after eating right below the belly button, and sometimes just underneath the right side of my rib cage. And I can write pages about my stool, to some it up it's just really weird.

Yea my calprotectin came high enough where the doctor agreed to an endoscopy and colonoscopy, but the results didn't bring much light. ( I know I shouldn't be pushing to find something, but this isn't all in your head you know? )

ATM he ha me reintroducing my fodmap veggies back until my celiac DNA testing comes back.

Out of curiosity did your sons colonoscopy help just by scope? Were biopsies taken for reevaluation? I've been going on near 6 months with this learning experience....
I'll catch you soon

 

[Clash]

My son's CD is located in his TI right at the ileocecal valve so the GI was able to visualize that area with the scope and also took biopsies. So he did visualize a bit of simmering inflammation and then biopsies backed that up.

I hope you find some answers soon. I had an FC test as well as two scopes and two endoscopies and a SBFT done due to some GI issues. Although the FC was raised(I think it was like 123 or 127) it was in normal range for the lab(Quest labs) and their normal reference range. None of the other tests showed any type of inflammation so I haven't gone further. I started taking levsin and haven't had any issues since. I take it at bed time.

I would ask for further testing if you feel the need to. Explain to the GI that you don't feel that he has gotten to the root of your problems and you would feel more comfortable if it was investigated further. Good luck.

 

[ezgoindude]

Sup clash!

Sorry on delay, its been busy busy with school/work/cooking every meal at home.

Still waiting on the Celiac HLA typing results, I guess my only option after that is taking that MRE, alot of people from the celiac forum are pushing the idea my gallbladder could be crapping out....

Yea calprotectin at 153 for my doctor was just barely high enough to be placed as abnormal, even though he said it was shortly above a normal level and could be as easy as food allergy or even taking the wrong antacids/medications.

Another question if its not too weird asking: did you have foods you realized you maybe couldn't eat? Although you have no symptoms do you have weird stools every now and again? My other coworker swears tomatoes are the devil, and shes never had GI problems like myself.