What is YOUR weather like today??

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Crohn2357 said:
So that everyone can see the reality:

https://crohnsforum.com/threads/post-editing-option-is-not-visible.87696/
Click to expand...

Crohn2357 said:
What’s more, and may be linked to that donation issue, is the new admin’s irresponsible attitude towards a “problem” that wasn’t there, ever before, in this forum. He has made numerous promises, seemingly apologises, but doesn’t address the issue and acts like nothing has happened, keeps on going creating a new thread about “hobbies and interests”.

Maybe I’m old school, but I have always measured a fellow man’s worth first and foremost through how much of a man of his words he is.
Click to expand...

Crohn2357 said:
To me, since he still hasn’t solved this problem even though he promised to, even giving a date to solve it a few times, and his non-transparent attitude seem suspicious and makes me question for some time now whether he deliberately cancelled the editing, especially since the emboldened part is the only selling point of a payed membership “benefits”

View attachment 5050

Running a forum is a somewhat risky business (if you approach it as a business), it is pricey; and I wouldn’t have any issues with donations etc, I think it’s a reasonable way of keeping the site running; but not like this.

If he is genuine about fixing the disappearance of the editing option, but he cannot achieve that due to whatever, he should’ve explained that openly and sincerely. Instead he keeps promising he will fix it by this day or that day, apologizing etc but nothing gets fixed and doesn’t acknowledge or give explanations for him not keeping the promises he made.

Alternatively, he could have written “this is my forum, I bought it, this is the way things will be” and I would have no issues with that either. I would simply stop using his forum.
Click to expand...

scottsma said:
WHY are they doing this ???? it's really annoying
Not a bad day considering what's on the way in a day or two, 10c and calm if a little grey
Click to expand...


He (or they, whoever the new owner may be) wants to make money off of sick people while disregarding them by not showing basic virtues like honesty and openness.

He has been lying from the beginning when he said he was going to fix the issue. He never intended to fix it. It was deliberate. He wants to sell membership to Crohn’s patients or their loved-ones; and the only practical advantage of a payed membership is that it provides you with post editing and deletion options.
 
Crohn2357 said:
He (or they, whoever the new owner may be) wants to make money off of sick people while disregarding them by not showing basic virtues like honesty and openness.

He has been lying from the beginning when he said he was going to fix the issue. He never intended to fix it. It was deliberate. He wants to sell membership to Crohn’s patients or their loved-ones; and the only practical advantage of a payed membership is that it provides you with post editing and deletion options.
Click to expand...
 
Being grumpy is gonna raise your BP and stress level. That's not good for IBD patients. Since weather is the reason for chatting in this thread, how is the weather where you are crohn2357?

Note: The site is a little awkward to navigate, but not impossible. It's as scottsma said a few days ago, they haven't required that we subscribe yet. Meanwhile, sunny and mild in central Texas!!🫡
 
I don't like the changes, but it is inline of what is happening to the entire internet, and none of it is good. I don't see what is gained by removing editing tools. The site owner would gain far more by asking for donations from Big Pharma.
The main thing is our online community remains, we can lean on each other, offer support and have a laugh or two.
-5C with a passing flurry.
 
I've had a bad cold the past three days. Began with sore throat, then moved to dripping faucet nose and now last stages of barking like a dog! Believe I'll make!

This week, 20 years ago I was recovering from a full blockage and was diagnosed with Crohn's. My GI had me schedule a CT-e scan, which was for tomorrow. Of course I had to reschedule....now in January. Have any of you had this particular scan? I've had an MRI and a CT-a. I dread drinking the faux Gatorade. 😵‍💫
 
Very windy and wet.It say's 11c but they're lying !!!..thank goodness my "First Footing" days are over, though they were very enjoyable ,if I remember.. Hugs and everything you wish for yourselves in 2025 and remember......don't take laxatives and sleeping pills at the same time and if you see a toilet in your dream DON'T use it...it's a trick !!!!
hope you're feeling better PC TX.
 
scottsma said:
Very windy and wet.It say's 11c but they're lying !!!..thank goodness my "First Footing" days are over, though they were very enjoyable ,if I remember.. Hugs and everything you wish for yourselves in 2025 and remember......don't take laxatives and sleeping pills at the same time and if you see a toilet in your dream DON'T use it...it's a trick !!!!
hope you're feeling better PC TX.
Click to expand...
Thank you. I am. Wishing you a very Happy, healthy, wonderful New Year too!
 
Wild wet and windy 12 C ,
Happy new year everyone, hope everyone has a healthy and peaceful new year
Good night on the telly tonight , Graham Norton followed by Jools Holland
 
It will be a regular evening for me as I am a night owl. I usually watch the fireworks coming from Chicago on TV at midnight, then have a night cap, toss a log into the furnace, crawl into bed. Wake up in the morning look out at the starkness of the new year in a cold house. Rummage for wood, light the fire and start the new year, making breakfast as the house warms up, and hoping for that trip to the outhouse.
 
Bufford said:
It will be a regular evening for me as I am a night owl. I usually watch the fireworks coming from Chicago on TV at midnight, then have a night cap, toss a log into the furnace, crawl into bed. Wake up in the morning look out at the starkness of the new year in a cold house. Rummage for wood, light the fire and start the new year, making breakfast as the house warms up, and hoping for that trip to the outhouse.
Click to expand...
You sound like the "mountain man" in the 1800s western novels written by William W Johnstone! A hardy breed! One exception... that Chicago TV station! 😃 Enjoy!
 
Nice sunny start to the New Year but with a cold gusty wind and 4c.Just got in the front door after a walk (I would like to say BRISK walk,but those days are over for us,alas) when the rain started,,,but we;re on the right side of Xmas so we'll look forward to Spring with patience and no whinging.....well not much anyway.....Best Wishes friends
 
scottsma said:
Nice sunny start to the New Year but with a cold gusty wind and 4c.Just got in the front door after a walk (I would like to say BRISK walk,but those days are over for us,alas) when the rain started,,,but we;re on the right side of Xmas so we'll look forward to Spring with patience and no whinging.....well not much anyway.....Best Wishes friends
Click to expand...
Wish I had your discipline to get out and walk everyday! Especially when the weather is cold. It's 43° and I've been out only to feed my cat, Bootsie! 😺
 
I get antsy if we have to stay indoors...but my husband has dementia and is slowing down a lot,so If I can get him outdoors we both feel better,I have to admit though that our mantra is "well it was nice to get out but it's good to be home " especially at this time of year....we take turns saying it.
 
scottsma said:
I get antsy if we have to stay indoors...but my husband has dementia and is slowing down a lot,so If I can get him outdoors we both feel better,I have to admit though that our mantra is "well it was nice to get out but it's good to be home " especially at this time of year....we take turns saying it.
Click to expand...
That's sweet.
My sister has Alzheimer's. Her 3 daughters are her caregivers. I'm the oldest of seven siblings and at the moment, she can still remember me. We talk on the phone and I spend that time trying to cheer her with happy chatter and let her vent if she's inclined which isn't so often any longer. Your husband is blessed that you have a caregivers heart, intuned to his needs. Blessings to you both.
 
PC TX said:
You sound like the "mountain man" in the 1800s western novels written by William W Johnstone! A hardy breed! One exception... that Chicago TV station! 😃 Enjoy!
Click to expand...
Pretty much with my looks too, some come into the yard and are taken aback when I am working on the firewood effort. I would fit in well on shows like Port Protection, daily life is not that much different; remote all forest and lakes around here.
New Years came in like any other evening, had a run n orange juice followed by my favorite soup as my fourth meal of the day. Woke up, lit the fire, made breakfast and I am here now.
 
Bufford said:
Pretty much with my looks too, some come into the yard and are taken aback when I am working on the firewood effort. I would fit in well on shows like Port Protection, daily life is not that much different; remote all forest and lakes around here.
New Years came in like any other evening, had a run n orange juice followed by my favorite soup as my fourth meal of the day. Woke up, lit the fire, made breakfast and I am here now.
Click to expand...
I had to look up Port Protection.....Yep, that is what I was imagining! 😂

Are you in central are mountain standard time zone? I couldn't be sure.
 
Bright and sunny 2c...we bused to the village so Les could get his RSV jab (3 stops) but there was a wait of 15mins for the bus home,so rather than die of the cold waiting, we hiked back,and I'm happy to say the bus didn't pass us.....
 

Similar threads

thike1966
Hotel Crohn's Forever, The Return Of The Fistula
Replies
0
Views
543
thike1966
thike1966
P
Our Journey So Far SCD CDED Experiences
Replies
2
Views
1K
Pam.estella
P
C
How our son’s Crohn’s was diagnosed
Replies
2
Views
1K
Stressedmom
S
V
My Novel, Pain in My 🍑
Replies
1
Views
4K
valleysangel92
valleysangel92
P
Do I really have Crohn's?
Replies
4
Views
2K
prettyflowers
P

Latest posts

Back
Top