Can anyone explain a reversal procedure?

[Hayleymariex]

I'm trying to do some research to calm my nerves for our upcoming reversal. Ended up watching a video, possibly the worst thing I have ever done to myself, it was basically self inflicted mental abuse. But I saw it through! And then I didn't understand. Because it didn't apply to our specific situation. No one who was having the reversal done on the videos had a mucus fistula as well Would Joe's surgery be different to account for this?

It sounds like I'm just making it worse for myself by digging for details, but if anyone does know the details of an ileostomy reversal with a mucus fistula reversal as well please let me know. Thanks guys, I feel like you're all going to be my support team come January <3 xxx

 

[Crohn's Mom]

Hi Hayleymariex

My daughter had that reversal done, and as far as I know it was no different than a takedown without the mucous fistula would be. At least our surgeon didn't mention ANYTHING about it pre-surgery.

Her surgery was uneventful, thankfully and the recovery was as it was supposed to be with no complications

I know of one other person on here w/ a mucous fistula and ileostomy, but she still has hers.

Best of luck, and I would suggest not watching any more videos ! :ack: LOL

hang in there ! :hug:

 

[Hayleymariex]

I think the mucus fistulas are only done when it's an emergency op then, cause not many people we've spoke to have them either. The takedown op looked quite straightforward so if it's a lot like that then I'm slightly less worried Glad to hear your daughter had a successful op, hope she's still doing well.

 

[Crohn's Mom]

Having a mucous fistula is definitely more of a rarity, but I don't know about it only being done in an emergency op. My daughters was not an ER op. However, we did not know going into surgery that she would have an ileostomy coming out. We were however pre-warned that it could be a possibility; in fact, we had to meet with the ostomy nurse pre-surgery so that she could be "marked" just in case.

I don't understand the exact reasoning behind placing a mucous fistula; I just know that it is basically placed from the colon to the rectum in order to discharge mucous and gas and allow the colon to rest. I gather this happens in people that also have bad disease in the colon and the ileum and both need to rest ?

My daughter is doing ok at the moment; she unfortunately has two fistulas again, and is no longer in remission so we are waiting on results of her MRE and expecting another surgery. Thank you for your thoughts

 

[KazT17]

I had a mucous fistula, it was created when I had a subtotal colectomy and ileostomy formed. My surgeon told me it was to allow mucous and stuff to escape, as it can cause perforations in the remaining bowel, if it has no way out. Sometimes, a mucous fistula can form spontaneously, as the mucous etc tries to escape - quite shocking I would imagine. I think in a straight forward reversal (without a j pouch) the ileostomy is reattached to the mucous fistula.
Hope all goes well for the reversal xxx

 

[Hayleymariex]

Oh gosh I can't imagine anything more scary sounding than a mucous fistula spontaneously appearing.

How long can I expect a reversal surgery to go on for? Obviously in terms of a surgery without any complications, we've once had a 2 hour surgery last 6 hours, the anticipation was killing me. Also, is the surgery as severe as creating the stoma in terms of how the body reacts to it? Because when Joe had the stoma created he was incredibly swollen, which is why he had to be put in a coma because they simply couldn't sew him back up, but that could be because of the sepsis.