Can't sleep on pred!!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Sep 3, 2009
Messages
141
Hi all, so far the pred has been helping, I can walk without feeling like I've been kicked in the stomach and I can eat at last!! It's been just over a week, still have minor complaints, but hey.. they are only minor! I'm at 20 mg now.

But... No sleep, lol you guys warned me about the extra energy!! I get maybe 3-5 hours of broken sleep per day. Hopefully now that I'm on a lower dose, I can sleep better. Do you guys have any tips for pred insomnia? I did get some sleep aid stuff at the pharmacy, going to try it out tonight.

Hope you guys are doing well.
 
Make sure you are taking the Pred early in the day, that seems to help me with the insomnia. I take mine between 7 am and 9 am
 
Hi Katiesue, thanks for replying. I do take it at 10:00-11:00 Am, LOL thats early for me. I have a couple digestive cookies and take my omerprazole first so it's not so hard on the innards. I have insomnia to begin with so the little pred that I am taking has got me wired.. LOL wide eyed and bushy tailed anyone? My neighbor said my eyes looked huge like saucers. Are you tapering your dose yet katiesue? If so, does it help for insomnia?
 
I try to take my Pred and everything else with a yogurt in the morning to get the good bacteria up and then usually I'll have a bowl of oatmeal.

I am tapering, I'm currently at 15mg and I'm having troubles keeping my mood stable. One minute I'm happy and manic and the next I'm angry or crying. Right now I'm so mean to customers at work, even though I try not to be...

I had a lot more trouble with insomnia at the higher doses but I think I countered that by staying really busy during the day to tire myself out. I'm also on a pretty tight schedule with sleep right now... I'll go to bed around 11 or 12 and I have to be at work or classes (depending on the day) by either 6:30 am (work) or 8:30 am (classes) so I'm up early anyhow...

The sleep thing should get better with tapering hopefully!!
 
I hate to say it but I landed in the psych ward after starting straight off on 60mg of pred....that's my brain I guess though. I know it can mess with your moods and whatnnot.
 
I have insomnia to begin with as well. Just try to catch a nap if you need one. When I get to about 10mg things got better for me...Nothing worse than knowing you should be asleep but can't.
 
I had this too with the pred. When I was on 40 I was like a maniac and couldn't sit still and so going to bed wasn't appealing at all! I was probably managing about 5 hours a night but felt okay I guess because of the high levels of stimulation.
Now I am down to 20 I feel REALLY tired (I wonder if this is the norm) but still can't sleep well. I can;t recommend anything to help because I haven;t tried anything specifically. Just noticed that the more worried I am about things the less I sleep. I have also felt quite badly depressed (which can affect sleep or may be due to a lack of it I suppose) the past couple of weeks which seems to be lifting and I hope stays that way!
I just did a big walk today so hopefully that will help with sleep!
Hang in there and maybe get lots of reading done!
 
I had the cleanest house in Brooklyn when I was on pred. I started so many house projects during my treatment. I was like Daffy Duck. LOL.
 
I'm finding that my energy levels haven't been affected much by the pred but I feel more motivated to get things done. Usually I'm a horrible procrastinator but since being on it I have been so organised and on top of things which has been a nice bonus. I don't seem to have any other side effects though. Not even weight gain or moon face although I was having some mood swings at 40mg but since coming down to 30-35mg I've been really good.
 
been on 60 mg for a month,sleeping 4-5 hrs a day while my usual b4 taking it was 9 hrs.am not sure there s anything u can do about this other than taking it early in the morning, maybe u can try the sleeping pills?
 
I have the cleanest house too right now! It makes me so focused. I can't sleep either, unless I drink a lot of beer at night. As I cut down the milligrams, my symptoms are coming back...next week I start remicade because nothing is working...
 
Jonhenry said:
I hate to say it but I landed in the psych ward after starting straight off on 60mg of pred....that's my brain I guess though. I know it can mess with your moods and whatnnot.

Oh my gosh, Jonhenry, you ended in the PSYCH ward on precisone? That's so scary, is that common? Because I'm someone who just can't do well on any sort of alcohol or mood altering substance... which I suppose has worked in my favour as I've never been a drinker or anything apart from the standard teenage experiments. But I could see the same thing happening to me! Someone please tell me this is very unusual!
 
I don't think getting really mentally unwell is that common on Pred. My experience was that I just got really 'wired' and was apparantly exhausting to be around but I still had all my faculties. In fact I felt really happy on it - hope you have the same effect.
 
I find that to some degree it worsens my existing anxiety issues and messes with my moods a little bit occasionally but nothing drastic fortunately.
 

Latest posts

Back
Top