Catharal ileitis

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Oct 24, 2013
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I have had a colonoscopy and the biopsy result said something along the lines of moderate catharal ileitis with marked edema in chorion (sorry but I translated this from my mother tongue the best I could). When I called, the doctor said this result is good news, but I am worried.
I was in hospital because I felt so weak I could no longer walk and they diagnosed me then with some kind of an obstruction (CT showed hydroaeric spots along my abdomen), and then with a perianal fistula for which I received antibiotics. But I am still nauseaus and weak 2 months later.....
Is it possible that I do have Crohn's? Are the biopsy results really that ok?
 
If anyone has any clue, I'd really appreciate an answer...
Thing is, I don't have too much abdominal pain. If, then most of the time it is related to passing gas/BM. I don't have diarheea too often, although I did twice in the last week....
My main problem is that I am very dizzy, feel extremely tired and really faint, like I feel it in my bones. And I feel feverish all the time...It is very scary and I'm no longer able to live life as I used too. I go to work, come back and that's it. I feel sick all the time...
 
Hi Sssorina,
It's rather odd that they did not provide you a diagnostic with your symptoms and these exams. I can't advance that you have crohn disease but from the information you shared, it could very well be. Essentially, the catharal ileitis and chorion edema refers to the fact you have inflammation of your intestinal mucosa at the ileum level. Obstruction are also a common manifestation of crohn and fistula, is also characteristic of CD. The profil would definitively point towards crohn rather than ulcerative colitis considering all these aspects.

When inflammation is present, it is a possibility that you are not absorbing nutrient properly. All these can make you feel weak on a daily basis... Personally, my worse symptom when I flare is extreme exhaustion.

Are you only taking antibiotics? Considering the few things you said, if all these are related to Crohn disease, you need to move ahead in the disease management. Fistulizing crohn (there are somewhat 3 type: fistulizing, stenosing, and inflammatory crohn), needs the use of immunosuppressant or biologic agent (anti-tnf).

If I were you I would try to get a hold of my doctor and try to get a proper treatment plan. You need to be seen by a gastroenterologist if it is not already the case.

I hope this helps.
 
I've been in hospital for 2 weeks, had 2 CT's, 2 pelvic MRI's and one colonoscopy, so this diagnosis of catharal ileitis came from the gastroenterologist. But when I googled the info from my biopsy, I found Crohn everywhere.....
I took antibiotics for almost 2 weeks then, but I'm not taking any treatment at the moment.
So, is catharal ileitis the same thing with terminal ileitis? Is any inflamation either Crohn or ulcerative colitis?
Uff....and about not absorbing nutrients. My blood results didn't look half as bad. I guess this malabsorption would have shown also in the blood tests they took.
 
I don't know either is catharral ileitis is the same as terminal ileitis. I mean, I believe a catharral ileitis can be a terminal ileitis as far as catharral refers to inflammation of the mucosa with mucous release. So inflammation can be more than just crohn or ulcerative colitis. I mean, inflammation certain bacteries can trigger really intense inflammation of the digestive system without leading to a diagnosis of crohn or colitis. Ulcerative colitis concern colon only where crohn disease can affect the whole digestive system. The ileum part of the small intestine is frequently affected in crohn. What seems to be more preoccupying is the fistula part. You don't get fistula from ulcerative colitis. You can have it from crohn or other pathology such as diverticulitis, some STDs, cancers or if you had a traumatic injury down there. Maybe the question is, do you know the nature of your fistula?
 
I probably sound like I'm having a delirium :))).
That was very weird with the fistula. The doctor asked me if I had a sexual contact (anal) that could account for the fistula. Answer - no. Nor any trauma of any kind. The only thing I could relate to it is that I've been suffering from constipation which sometimes led to some straining when I had a BM. And anyhow, I usually have very large BMs, irrespective of what I eat/how much water I drink/fruit-vegetable in my diet; it sometimes is so large that I faint while on the WC. I thought that might be an explanation, although it didn't happen in several months before that.
It's just that I left the hospital with lots of questions, and the doctor couldn't tell me the cause of the fistula or the cause for the subocclusion that I had.
Now I am just very scared when I get nauseaus, faint and feel some abdominal discomfort....

Thank you so much for your replies! You can feel very lonely with these health complaints that no one seems to understand.
 
I can totally understand you in there. I read your posts and all I keep telling me is why did this GI let you go without more explanation... cause to a certain extent... it sure could look like crohn but I would assume they would not have let you go home without medication. It's a bit odd.

Is it easy for you in Romania to get a hold of this GI and express your concerns and your actual symptoms if some have persisted? Are you expected for certain controls in the near future?
 
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