Colonoscopy Prep

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Mehita

Mehita

Joined
Nov 12, 2011
Messages
2,408
Someone remind me... is purple Gatorade ok? Or is it too close to red? What about blue?

And it says bisacodyl, but not whether it's the stool sftener or laxative.

I have to admit, I'm nervous. Even though DS feels fine, he's down about five pounds now. He says he's just not hungry.
 
In our prep it's miralax and dulcolax stool softeners not the laxative. But I've seen other parents that have dulcolax the laxative with miralax.

We avoid blue and purple but it may be only purple that is stated to avoid.

Also, since C got really nauseated last year with prep the last 2 scopes have included a zofran.

Hope it goes well and you get answers. Hugs!
 
"DS feels fine, he's down about five pounds now. He says he's just not hungry", yup that has always been our downfall. I question whether our kids know what "fine" is sometimes.

Hope the colonscopy gives you good answers.
 
We avoid the blue, red and purple. We use orange or white (cherry flavor). And we use ducolax laxative tablets. Good luck.
 
We did blue and had no issues - were told to avoid red and purple. That said, if he will drink another flavor, I'd use that.

M has to take Dulcolax (the laxative) with the Miralax (the entire bottle). I'd call and ask if you're not sure.

Hang in there - the procedure will be over soon and I'm sure he will be eating up a storm ;).
 
I do the ice or yellow, no blue, purple or red. As for the dulcolax, I think I have the stool softener....and I use the Miralax prep....got my bottle sitting the cupboard at home right now!
 
Pretty much the same story here-no red or purple Gatorade, and ducolax laxative used. The laxative did very little for my son, so he ended up having an enima just prior to the scope. He loved that!!
 
We did the clear and yellow. I was going to get the blue but Jack said no because he liked that flavor and didn't want to ruin it.
Weight loss and lack of appetite for us has generally meant there are issues. Hope it all goes well though.
 
Jmrogers4 said:
We did the clear and yellow. I was going to get the blue but Jack said no because he liked that flavor and didn't want to ruin it.
Weight loss and lack of appetite for us has generally meant there are issues. Hope it all goes well though.
Click to expand...

Yup, he can't stand orange and yellow because of his other two scopes. We're going for white this time.

You'd think by now someone would have come up with a better way of doing this.
 
You could also use Pedialyte so that he doesn't hate Gatorade. We used the clear Pedialyte for M's first scope. We also did a few glasses of Miralax with water when my daughter just could not stand to drink any more Pedialyte/Gatorade.

Good luck!!
 
Hope the prep is going well and especially that scopes come back clear! :hug:
 
I know I'm too late but next time we have to do prep, I'm mixing half of the Miralax in one drink and the other half in a different drink. DS got sick of all the same drink and could barely finish towards the end.

How did the scopes go?
 
MamaHenn said:
I know I'm too late but next time we have to do prep, I'm mixing half of the Miralax in one drink and the other half in a different drink. DS got sick of all the same drink and could barely finish towards the end.

How did the scopes go?
Click to expand...

That's what we always do. Half the prep with Gatorade and half with water. When he starts to get nauseous with the Gatorade, he switches to the water mix for awhile. That's what I did for my scope a couple of months ago too. I never drink Gatorade and to have had that much was beyond my stomach's tolerance.

Prep is tomorrow and the scopes are Wednesday morning.
 
Good luck with prep tomorrow :goodluck:!! Hope it is easy for him and scopes go well!
 
I'm late coming into this, but wanted to wish DS good luck with the prep and the scopes. Hope the scopes come with good news!!!
 
Goodness, this prep isn't going well. Sooooo... what if he's done drinking, but still doesn't have clear stools? He started at noon and it's 9pm now.
 
Does he have ducolax to take as well ??
I know Ds had to take 4 pills two in the morning and two in the afternoon
Plus 14 doses of miralax
 
Yes, he took three Ducolax at noon and started drinking around 2pm. Unfortunately, I haven't seen the toilet bowl. I'm just going on what he told me. He said it's not as clear as water, but more like dirty water.

He hasn't been to the bathroom in over an hour now.
 
Dirty water should be fine as long as there are no solids left. That is how I usually am and never had a problem. You could have him drink a couple more glasses of water to help flush out.
 
We were told Mountain Dew is ideal but inpatient clean out ( they didn't start until 4 pm )
It was definitely dirty water by midnight
And mostly yellow by 5 am
Good luck
 
Too late now but our doc says just keep drinking the miralax concoction until clear. Some kids just need more. T needed two and a half large bottles the first time. She would go clear and we would think we were done then back to brown. Her last scopes we really thought she was clear and it was the no drinking cut off so we stopped. Gi said she still had stool in her and could have used another dose but he vacuumed her out. Lovely eh?

Good luck! Hope they get a good look and that you get good news!
 
Theyre running an hour behind and it's only 9:30am! I'm trapped in an very small room with a very grumpy teenager. It's just radiating off him. Fun times!

As luck would have it, he decided to try and be brave and do he IV straight on, no jtip, no numbing creme. She missed. Blew the vein.

More later... thanks for all the good wishes. Definitely need them!
 
Everything looked okay visually, but as you all know, we need to wait for the biopsies. His issues have always been in his small intestine though, so he'll likely need an MRE soon. I'm thinking summer... unless he continues to lose weight. Next weigh in will be at his April 1st infusion.

We're going to add oral methotrexate starting this week. Though I wonder if he should do a week of folate and start next week instead? Forgot to ask. Does it matter?

I was a good mom and actually remembered to bring gluten free crackers with me! They always offer apple juice and gluten-filled crackers. Hello? Red allergy band on his wrist...

Sorry, y'all. I'm tired and punchy.
 
Glad everything looked good!! That's great news. Hope the biopsies match and the MRE is clean!

We started MTX on the same day as folic acid.

Hope you both get some rest.
 
Glad for the good outcome so far. They offered Grace pudding after I told the same nurse she was allergic to dairy.
 
Glad thing look ok
Mtx can be started the same time as folate no need to build up ....
Ds had no issues
Not sure why you would wait on mre if that has been a known problem area and he is currently having issues ....

Hope biopsies are clean
 
Only waiting a little because he needs a break emotionally. He's very overwhelmed with all the medical appointments lately and his GI is more concerned about his mental health right now than the MRE, especially if the biopsies come back ok. We've got a lot of tough issues going on right now with DS and are just trying to stay above the water. Scopes were hard enough and everyone feels an MRE too soon will sink the ship.
 
Can they get him into a good medical coping psychologist ?
Most Gi dept have them
That can make a huge difference
 
Ugh. Sorry things are so rough mentally. We have been going through the wringer with way too many doctor appointments and procedures too. Just a note to say I totally understand how you are feeling.
 
Poor kiddo - I second the psychologist. I know he's tried to see one before but you really need to find the "right" one - M saw three before we found her current psychologist, who works with kids with chronic illnesses in the GI dept. - a lot of IBD.

It does take a while - it was a couple months before we saw improvement in anxiety, but seeing someone REALLY helped. She also hated going for the first few months but now reminds me to make an appt.

M has also had a very rough time recently - one very painful procedure (tube change under fluoroscopy) where they could not give her any more sedation/pain medication, so she was awake and in pain.

Her psychologist has been a HUGE help. I don't know how M would manage without her.

We have also used an anxiety medication - Ativan - before MRI's a couple times. It helped a lot. Haven't used it for an MRE though.
 
He's seeing a therapist who he trusts (HUGE!) and is working through multiple issues. That's all we can ask of him right now. Like I said before, all concerned parties think this the best path for the time being.

Quite honestly, it's very hard for me to even talk about this. Heartbreaking, really, but we'll get him through this.
 
I'm so glad he is seeing someone. It takes time, like everything else. Sending HUGS - it will get better. And the fact that scopes look good is SO promising!
 
Glad to hear that the scopes looked good, and I hope that the biopsies come back with more good news. Good luck with the methotrexate--it's been a good medicine for my daughter. Thanks for talking about the mental health issues that go along with being a kid with a chronic illness; it helps the rest of us who are dealing with similar issues, and makes us feel less alone. :ghug:
 
The fact that there is no visible inflammation is encouraging. Even if they find some on biopsy it will be minor and caught early so hopefully the mtx will take care of it!

Of course I will sleep better once the MRE is done but I will wait impatiently for that.
 
Just keep supporting him. I know S has gotten very down over the past few months with all the worries, tests, pain and frustration. I actually said the same to our GI re his MRE, GI said he could try to rush it but, with an MRA for his shoulder coming up, surgery consult, the recent x-ray worry, I also told GI we could take our time to give him a break. Like meds, it's a balance and sometimes you need to balance needs with QOL.

With S, all I can do is keep reminding him that eventually the tests will be done, eventually we'll figure out what the problem is but it takes time to rule things out. I've also told him not to stress about things he can't help and set himself realistic goals that he can reach, ie if he can't deal with ALL his courses, focus on the ones he can do well and, if he needs to retake one, so be it... not the end of the world.

Sorry gotta rush but... hugs.. it breaks your heart. :hug:
 
Lots of hugs. I'm sorry that he is having a rough time. No child should have to go through this :-( Thanks for taking the time to update.
 
Mehita, just getting back to my PM...

I doubt I even have to say this but... I easily put off S's MRE because he's not having any symptoms, his is just a follow-up because it's been over two years since his last. But, I do understand needing to bide your time sometimes. I can't change too much as far as dr apptmts and tests, etc. but I've really stressed that S needs to let go of things that can be let go of, like some of his courses, and made him see alternatives - ie, if he can't pass all his courses, accept this, cut his losses, focus on the ones he can pass and then consider a course over the summer, etc. Or, take an extra year... these are things that are in his control, although it may not seem to be that way in their minds.

I've also stressed that everyone has a 'bad year' once in a while... it will pass! And stressed that not everything is bad (he's planning a trip) and not everything has no end in sight - ie school, however the year ends, will be over in a couple of months and he'll have a long break from it.

I'm sure you're doing all of this already :ghug: but just know you/he aren't alone in sometiimes fighting tough times. :ghug:
 
Finally got the biopsy results back... all negative. No inflammation in any of the ten spots they tested. Happy momma right now! :dusty:
 
Simply amazing! Just when I was starting to wonder if clear scopes followed by clear biopsies was fantasy!

So happy for you and your boy!
 
That's such wonderful news :dance:!! So happy to hear Remi is doing its job:).
 
So glad Mehita!! Now you can at least bide your time in peace until he feels ready for the MRE. I know what a huge toll this takes for our kids emotionally. I'm so glad he is seeing a therapist he feels comfortable with....like you said, that is huge!!
 

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