- Joined
- Aug 11, 2011
- Messages
- 92
Hello everyone!
I have had symptoms of crohns starting when I was 16. When I turned 18 I became deathly ill and had my whole colon removed. The doctors though I had UC, and said the surgery would cure me and I could go back to living a normal with a J-Pouch.
Not so. I never felt good after the surgery and I have had chronic pouchitis for a year and a half now. I have tried remecade, humira, steroids, nothing in western Medicean has ever been the cure. So now my doctor wants me to get a permanent illeostomy bag. I am only nineteen years old!
So I begin trying new alternative remedies. I stopped eating gluten, dairy, caffeiene and most sugary foods, and most raw foods because my body has a hard time digesting them hence the surgery.
I will always have the runs because I have a J-pouch, but what really bothers me is the pain and fatigue. I want my life back! I want a chance at my enjoying my youth without the cost of a bag!
I do a lot of yoga. I began volunteering at a yoga studio, and I find a lot of support from people working there with me.
I have been working with an acupuncturist, and he thinks right now I need to live of a soup with healing powers. It consists of zucchini, green beans, chicken stock, Ginger, and parsley. You just steam all the vegetables, and then blend them in a blender, heat it on a stove and wala! Excellent soup. So I would eat this, and juiced organic veggies, pure aloe Vera juice, and garden of life probiotics. I would also be allowed to eat organic baby food.
Does anyone have any thoughts on this?has anyone tried something similar, or have any stories with alternative Medicean? I would love to get your feedback!!
I plan to start September, 13th, the day after my birthday.
I have had symptoms of crohns starting when I was 16. When I turned 18 I became deathly ill and had my whole colon removed. The doctors though I had UC, and said the surgery would cure me and I could go back to living a normal with a J-Pouch.
Not so. I never felt good after the surgery and I have had chronic pouchitis for a year and a half now. I have tried remecade, humira, steroids, nothing in western Medicean has ever been the cure. So now my doctor wants me to get a permanent illeostomy bag. I am only nineteen years old!
So I begin trying new alternative remedies. I stopped eating gluten, dairy, caffeiene and most sugary foods, and most raw foods because my body has a hard time digesting them hence the surgery.
I will always have the runs because I have a J-pouch, but what really bothers me is the pain and fatigue. I want my life back! I want a chance at my enjoying my youth without the cost of a bag!
I do a lot of yoga. I began volunteering at a yoga studio, and I find a lot of support from people working there with me.
I have been working with an acupuncturist, and he thinks right now I need to live of a soup with healing powers. It consists of zucchini, green beans, chicken stock, Ginger, and parsley. You just steam all the vegetables, and then blend them in a blender, heat it on a stove and wala! Excellent soup. So I would eat this, and juiced organic veggies, pure aloe Vera juice, and garden of life probiotics. I would also be allowed to eat organic baby food.
Does anyone have any thoughts on this?has anyone tried something similar, or have any stories with alternative Medicean? I would love to get your feedback!!
I plan to start September, 13th, the day after my birthday.