My GP retired and GE moved out of town, so I got my medical records from the clinic since I can't go there anymore. Looking through the paperwork, there was a report from a MRI I had in March at the ER. The MRI showed colitis, but also scarring of both kidneys and a cyst on one. Nobody ever told me about this, or what it meant. Dr. Google says that kidney disease is an extraintestinal manifestation of IBD. I have never heard of it. Any of you have kidney problems? I can't discuss this with a doctor until I get one. I'm on lists to get a new doctor. I don't know if I can deal with any more problems. Sometimes this disease is just too overwhelming.
Crohn's and kidney disease
- Thread starter Tuff
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I'm sorry to hear this. I hope you get a cancellation appointment or something comes up soon!
Issues with kidneys, such as stones (I've had them multiple times) can be common with people who have IBD - this is due usually to the body not 'sending' enough fluids to the kidneys - such as when in a flare and having D, the fluid is not processed through the kidneys, which allows materials to stay in the kidneys and not be flushed out with urine. At least, that is how my urologist explained it.
I've never had kidney stones, but struggle to stay hydrated. From what I've been reading, some of the meds we take can also affect the kidneys. Remicade can cause renal failure, and I was on it for three years. Hopefully it doesn't get worse, since I'm not having any symptoms currently.
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Tuff - you may want to monitor your situation very closely if hydration is an issue for you. Like Lisa, I have had many runs to the ER due to kidney stones. Had to have one of them blasted with a laser to break it up as it would not pass on its own. All of my stone issues have come after a long period where water absorption was a problem. I wouldn't say that it is all great, but it far better than it used to be. Your diet can have an impact on that as well. I eat a lot of chocolate and red meat, both are contributors to stones. There were a few other issues for me but I do not recall them at the moment. When you do get your new docs, ask them specifically for a plan to help you minimize future problems.
That sounds painful 
I looked up the results again, and it said nonobstructing calculi, so I did have stones, but they should pass on their own. Now that the weather is cooling off, hydration shouldn't be as much of an issue. There's not much of my diet left to tweak, it's already pretty minimalistic, but I'll have to look up what causes stones. Thanks.
I looked up the results again, and it said nonobstructing calculi, so I did have stones, but they should pass on their own. Now that the weather is cooling off, hydration shouldn't be as much of an issue. There's not much of my diet left to tweak, it's already pretty minimalistic, but I'll have to look up what causes stones. Thanks.
