- Joined
- May 12, 2012
- Messages
- 13
Hello all i just joined.
I was 23 when i got diagnosed with Crohns. I recently turned 35 and just had my first Op. When i was first diagnosed it took me a few years to adjust to having it. In and out of hospital and long time off work. I was just recovering from a bout of depression when i was diagnosed with it so it was quite difficult.
That was in Sydney and in 2004 i decided i wanted to come and live in London. Sometime in 2005 i decided to take myself off all medication and whenever i had any symptoms of a flare up i would just fast for 1-2 days then go back onto soft foods etc until it was gone.
That worked fine until last Nov when i started to have flare up's again and i went through the whole med process of Prednisone, azothiaprene, mesalazine, colnoscopy, MRI etc. None of this worked and it was uner the kinfe for me.
After a 5.5 hr OP and therr sections of my bowel removed i ended up with all this: Sigmoid Collectomy, illocaecal resection, strictureplasty, colorectal & illocolic anastomas.
I was told before i went under that i could have numerous tubes and bags hanging off me when i woke up so just be prepared for it. Thats exactly what i had.
Anyway i had the Op on a Saturday and by the next Saturday i was back hope and hobbling around. Apart from having a Stoma bag now for the next few months i feel pretty good. Even though i was eating and drinking a lot i began to feel worse and eventually went to hospital for dehydration. I was in there for 5 days and they introduced me to St Marks formula. I make it at home myself and i add a little cordial to the mix and i have no problem with it apart from being a bit salty. Its hard to get the stoma output to be thick on a regular basis but i'm trying to balance it out with as much salt in my food as i can stomach. Plus lopermide a few times a day which i think helps. Its just hard to understand that when i'm thirty i cant drink normal fluids as it makes me worse. Thats getting hard to get used to.
So i'll quit jabbering on but i'm keeping a positive mind as i know from experince that being stressed about it all just makess it so much harder. Friends, family and an understanding of whats going on with your body are the best things you can have.
Dont let the illness beat you
I was 23 when i got diagnosed with Crohns. I recently turned 35 and just had my first Op. When i was first diagnosed it took me a few years to adjust to having it. In and out of hospital and long time off work. I was just recovering from a bout of depression when i was diagnosed with it so it was quite difficult.
That was in Sydney and in 2004 i decided i wanted to come and live in London. Sometime in 2005 i decided to take myself off all medication and whenever i had any symptoms of a flare up i would just fast for 1-2 days then go back onto soft foods etc until it was gone.
That worked fine until last Nov when i started to have flare up's again and i went through the whole med process of Prednisone, azothiaprene, mesalazine, colnoscopy, MRI etc. None of this worked and it was uner the kinfe for me.
After a 5.5 hr OP and therr sections of my bowel removed i ended up with all this: Sigmoid Collectomy, illocaecal resection, strictureplasty, colorectal & illocolic anastomas.
I was told before i went under that i could have numerous tubes and bags hanging off me when i woke up so just be prepared for it. Thats exactly what i had.
Anyway i had the Op on a Saturday and by the next Saturday i was back hope and hobbling around. Apart from having a Stoma bag now for the next few months i feel pretty good. Even though i was eating and drinking a lot i began to feel worse and eventually went to hospital for dehydration. I was in there for 5 days and they introduced me to St Marks formula. I make it at home myself and i add a little cordial to the mix and i have no problem with it apart from being a bit salty. Its hard to get the stoma output to be thick on a regular basis but i'm trying to balance it out with as much salt in my food as i can stomach. Plus lopermide a few times a day which i think helps. Its just hard to understand that when i'm thirty i cant drink normal fluids as it makes me worse. Thats getting hard to get used to.
So i'll quit jabbering on but i'm keeping a positive mind as i know from experince that being stressed about it all just makess it so much harder. Friends, family and an understanding of whats going on with your body are the best things you can have.
Dont let the illness beat you
