W
wsturdev
Guest
This is my story.
I was diagnosed with Crohn's in January, 2007. According to my gasto doctor, I was probably misdiagnosed for about 15 years. If I had not had a gallstone that didn't pass, I probably would have been sent home with just a stomach upset.
While I was in the hospital (for about a month) I had my gallbladder, appendix, secum and 8 inches of my small intestines resected. When I was sent home, a few days later I complained about my left arm aching. I mentioned this to my family doctor and he sent me to have an x-ray taken, and they discovered I had a clot from the lower part of my arm all the way up my arm to my carotid artery. I was immediately admitted and stayed another three days in the hospital on cumidin and heperin and was finally sent home.
Since that time, I had several flares and one put me back in the hospital in 2008 in December for a week. At that time, my gasto doctor and I discussed my problem and I started Remicade in the hospital and have been on it since.
I have had more flares and now, after a very bad winter, I am not 100% feeling better but I have improved. I will stay on the Remicade, since I am not real enthusiastic to start another drug. I may to have another colonoscopy to see if the Crohn's is active, but my doctor will get back in touch with me.
I recently paid a trip to the ER (this past weekend) and found out that I was extremely constipated. Usually when I have a flare it is just the opposite.
I am watching my diet even more so then I did before. Trying to eat three well balanced meals a day with a healthy snack in the afternoon and evening.
Crohn's has definitely changed my life. My friends have been great, since I usually at a moments notice have to cancel an evening out and I have had pretty good success in planning good healthy meals for my husband and me.
It has not been easy. I can eat something for several weeks and then I can have that same thing again, and I get a reaction. When I do eat out, I go back to places where I know the food is prepared well and that I know there is something on the menu that I can eat or that the manager can tell the chef.
There is a lot more to tell, but this I figured was a pretty good start to get myself introduced.
I was diagnosed with Crohn's in January, 2007. According to my gasto doctor, I was probably misdiagnosed for about 15 years. If I had not had a gallstone that didn't pass, I probably would have been sent home with just a stomach upset.
While I was in the hospital (for about a month) I had my gallbladder, appendix, secum and 8 inches of my small intestines resected. When I was sent home, a few days later I complained about my left arm aching. I mentioned this to my family doctor and he sent me to have an x-ray taken, and they discovered I had a clot from the lower part of my arm all the way up my arm to my carotid artery. I was immediately admitted and stayed another three days in the hospital on cumidin and heperin and was finally sent home.
Since that time, I had several flares and one put me back in the hospital in 2008 in December for a week. At that time, my gasto doctor and I discussed my problem and I started Remicade in the hospital and have been on it since.
I have had more flares and now, after a very bad winter, I am not 100% feeling better but I have improved. I will stay on the Remicade, since I am not real enthusiastic to start another drug. I may to have another colonoscopy to see if the Crohn's is active, but my doctor will get back in touch with me.
I recently paid a trip to the ER (this past weekend) and found out that I was extremely constipated. Usually when I have a flare it is just the opposite.
I am watching my diet even more so then I did before. Trying to eat three well balanced meals a day with a healthy snack in the afternoon and evening.
Crohn's has definitely changed my life. My friends have been great, since I usually at a moments notice have to cancel an evening out and I have had pretty good success in planning good healthy meals for my husband and me.
It has not been easy. I can eat something for several weeks and then I can have that same thing again, and I get a reaction. When I do eat out, I go back to places where I know the food is prepared well and that I know there is something on the menu that I can eat or that the manager can tell the chef.
There is a lot more to tell, but this I figured was a pretty good start to get myself introduced.
