- Joined
- Aug 26, 2012
- Messages
- 20
Hi everyone :sign0144:
after reading so many of your stories, i thought i'd share mine too....as of date, i'm still undiagnosed. i'm a 22 year old female and i've been ill for 3 years now. i've always struggled a little bit with BMs but the docs always said it was IBS and told me to change my diet and have some probiotics. about 3 years ago, i started feeling extremely tired, experienced intense abdominal pain....mostly in my lower right side, started having severe nausea, vomiting and diarrhea that would alternate with constipation. i had rashes all over my body, my skin turned slightly yellow and so did the whites of my eyes. saw a GI who did a colonoscopy and told me everything was normal and that i probably have Gilbert Syndrome which is a benign condition. i discontinued my weekly visits to him and within 3 weeks, started a liver detox diet, took vitamins....(was vitamin D deficient), drank chlorophyll and what not... and all symptoms disappeared. nothing except for the occasional issues with BMs.
i was fine for 3 months and then i relapsed even though i kept up the healthy liver friendly diet, vitamins and all. I then assumed it was not Gilbert syndrome.
the pain got worse, vomiting and nausea more severe. lost 10 kgs in 2 weeks, could not keep any food down or even water. everytime i ate, if not for nausea and vomiting, i would get severe headaches and feel extremely dizzy, more after eating, diarrhea and constipation came back in full force. My BMs came with loads of mucus and only occasionally some blood . i also had terrible joint pains. went to the ER, they did a couple of blood tests, except for the bilirubin in my blood being elevated, everything else was normal.
went to see another GI specialist who also did a colonoscopy and told me he found some active colitis. blood tests normal, stool tests normal, did a barium xray..again normal, ct scans..normal..., pill cam didn't work as the pill stayed in my stomach for 5 hours and he could not get a good look of my small bowel..however he did not recommend we try again. tried so many tests and all came back normal. However, the vomiting would not abait, the diarrhea and constipation persistent and i could not get out of bed due to extreme fatigue, headaches and dizziness. he gave me some pred which initially made me really sick but helped me with the vomiting. however he discontinued due to the inconclusive results.
and then again, symptoms disappeared except for the BMs and some pain in my abdomen. i was doing well for another couple of months and i'm back to it again.
this week i haven't been to work at all. one afternoon, i felt like i needed to go to the toilet, like i was going to have diarrhea, those type of cramps. i rushed to the toilet and the pain got so intense i felt i was about to faint. no stool came out except some mucous. today is the fifth day i haven't gone :ywow:
I don't know what to do. i'm only 22 and i really want my life back. i currently work full-time but since getting so ill, i get so scared that they will make me redundant due to absenteeism. i haven't even been able to go back to uni and have had to defer again.
my boyfriend is very understanding and supportive but i can see the toll it has on him and i feel horrible causing him so much stress and worry
do you guys think it may be crohn's??? i don't know where else to look, docs are not willing to help me. they seem annoyed at me
after reading so many of your stories, i thought i'd share mine too....as of date, i'm still undiagnosed. i'm a 22 year old female and i've been ill for 3 years now. i've always struggled a little bit with BMs but the docs always said it was IBS and told me to change my diet and have some probiotics. about 3 years ago, i started feeling extremely tired, experienced intense abdominal pain....mostly in my lower right side, started having severe nausea, vomiting and diarrhea that would alternate with constipation. i had rashes all over my body, my skin turned slightly yellow and so did the whites of my eyes. saw a GI who did a colonoscopy and told me everything was normal and that i probably have Gilbert Syndrome which is a benign condition. i discontinued my weekly visits to him and within 3 weeks, started a liver detox diet, took vitamins....(was vitamin D deficient), drank chlorophyll and what not... and all symptoms disappeared. nothing except for the occasional issues with BMs.
i was fine for 3 months and then i relapsed even though i kept up the healthy liver friendly diet, vitamins and all. I then assumed it was not Gilbert syndrome.
the pain got worse, vomiting and nausea more severe. lost 10 kgs in 2 weeks, could not keep any food down or even water. everytime i ate, if not for nausea and vomiting, i would get severe headaches and feel extremely dizzy, more after eating, diarrhea and constipation came back in full force. My BMs came with loads of mucus and only occasionally some blood . i also had terrible joint pains. went to the ER, they did a couple of blood tests, except for the bilirubin in my blood being elevated, everything else was normal.
went to see another GI specialist who also did a colonoscopy and told me he found some active colitis. blood tests normal, stool tests normal, did a barium xray..again normal, ct scans..normal..., pill cam didn't work as the pill stayed in my stomach for 5 hours and he could not get a good look of my small bowel..however he did not recommend we try again. tried so many tests and all came back normal. However, the vomiting would not abait, the diarrhea and constipation persistent and i could not get out of bed due to extreme fatigue, headaches and dizziness. he gave me some pred which initially made me really sick but helped me with the vomiting. however he discontinued due to the inconclusive results.
and then again, symptoms disappeared except for the BMs and some pain in my abdomen. i was doing well for another couple of months and i'm back to it again.
this week i haven't been to work at all. one afternoon, i felt like i needed to go to the toilet, like i was going to have diarrhea, those type of cramps. i rushed to the toilet and the pain got so intense i felt i was about to faint. no stool came out except some mucous. today is the fifth day i haven't gone :ywow:
I don't know what to do. i'm only 22 and i really want my life back. i currently work full-time but since getting so ill, i get so scared that they will make me redundant due to absenteeism. i haven't even been able to go back to uni and have had to defer again.
my boyfriend is very understanding and supportive but i can see the toll it has on him and i feel horrible causing him so much stress and worry
do you guys think it may be crohn's??? i don't know where else to look, docs are not willing to help me. they seem annoyed at me
