Crohns & Pyoderma Gangrenosa

[emmajones]

Hi All,

I'm a newbie to this site so 'Hello'

I wanted to ask if anyone has Crohns and Pyoderma or has or knows anyone that has had Hyper Baric Chamber treatment as I'd be really REALLY interested to hear about it as I'm currently running short on solutions now.

I've had Crohns 15years and PG for 12. PG went for many years when I was on Remecade but now I can't have it.

I've had a ton of surgery and clinging on to the last of my intestines so op's are out of the question.

I can cope with my crohns most days but it's my legs that hurt and drives me bonkers.

I break through conventional med's such as Pred daily low dose and IV 1g pulse, Aza, Methotrexate, Measelzine, (I can't spell) Humeira, Remecade, minocycline, cyclasporin, metranidozole, ciproflixacine. etc etc.

Really really need to find something to knock this thing on the head as cutting my leg off wont do it either (I have asked)

I have been round the block with consultants over the UK at many different hospitals.

any other suggestions would be very much appreiciated.

Thank you in advance.

Emma

 

[Crohn's 35]

HI Emma :welcome: to the forum. Yes there has been some here with PG and I also had a past prez in our CCFC chapter with PG. The person who was on here did try the Hyper Baric Chamber and it did help some. This person had it very aggressively. It is a side effect of Crohns and is very hard to get rid of. I would suggest you try it, nothing ventured nothing gained.

Some of us like myself are a "complexed" patient of crohn's and hopefully you can get some relief soon. Keep us posted on your journey should you decide to have the chamber done.

:hang:

 

[Jessi]

Welcome to the forum, Emma. :hug:

Wow! It sounds as if you've really been through the wringer! How much of your intestine do you actually have left? Ever heard of bowel transplant? It was brought up here before.

Like Pen, I've heard about a few peeps with PG on this forum, too. Check out this Skin sub-forum and you may run across some.

http://www.crohnsforum.com/forumdisplay.php?f=84

Glad you've joined us, Emma, and hope to hear more from you.