Hello to everyone!
I’m new to this forum.
I’m from Russia. I’m 25 years old. I was diagnosed with ulcerative colitis in 2006 when I was 20 years old. So I lived with my disease for 5.5 years. First 3-4 years of my illness were not very heavy for me.. I was at the hospital only 2 or 3 times, constantly received medicines (sulfasalazine, and then salofalk since 2008) and was very happy. I graduated from university in 2009, then I became a Phd-student, and the teacher in my university, so I had a great amount of work and studying, so at the end of 2010 I had a exacerbation… I spent 2 months in the hospital in Moscow… No medication didn't help me, even prednizolon intravenous.
My weight was 36 kg, I couldn't climb up to the stairs, I had a diarrhea with blood for 15-20 times per day and couldn't sleep because of the pain in my abdomen. Doctors thought about a surgery, but then they decided to use Remicade.
To this date I had already 8 infusions of it. Also I receive azathioprine (100 milligram per day), granular form of salofalk (1.5 g per day), decoctions of curative herbs (such as camomile, tutsan). Periodically I receive calcium, vitamins, and probiotics. Periodically I use suppositories of salofalk.
Also I eat diet products.
My life was very hard at the last year, I was very weak after the hospital, I had all side effects of prednizolon, because I receive it for 4 months, I had to lose my job and can't work on my PhD thesis, I had many problems with our bureaucratic medical system, but I try don't give up and think only about positive moments. I'm happy that I alive=) Despite of my disease I try to travel, to learn new languages, to meet new people, to learn something new, to study at the university.
Sorry, if my English was hard to understand.
I’m new to this forum.
I’m from Russia. I’m 25 years old. I was diagnosed with ulcerative colitis in 2006 when I was 20 years old. So I lived with my disease for 5.5 years. First 3-4 years of my illness were not very heavy for me.. I was at the hospital only 2 or 3 times, constantly received medicines (sulfasalazine, and then salofalk since 2008) and was very happy. I graduated from university in 2009, then I became a Phd-student, and the teacher in my university, so I had a great amount of work and studying, so at the end of 2010 I had a exacerbation… I spent 2 months in the hospital in Moscow… No medication didn't help me, even prednizolon intravenous.
My weight was 36 kg, I couldn't climb up to the stairs, I had a diarrhea with blood for 15-20 times per day and couldn't sleep because of the pain in my abdomen. Doctors thought about a surgery, but then they decided to use Remicade.
To this date I had already 8 infusions of it. Also I receive azathioprine (100 milligram per day), granular form of salofalk (1.5 g per day), decoctions of curative herbs (such as camomile, tutsan). Periodically I receive calcium, vitamins, and probiotics. Periodically I use suppositories of salofalk.
Also I eat diet products.
My life was very hard at the last year, I was very weak after the hospital, I had all side effects of prednizolon, because I receive it for 4 months, I had to lose my job and can't work on my PhD thesis, I had many problems with our bureaucratic medical system, but I try don't give up and think only about positive moments. I'm happy that I alive=) Despite of my disease I try to travel, to learn new languages, to meet new people, to learn something new, to study at the university.
Sorry, if my English was hard to understand.
and you are entitled to the times when you feel down, and the "why me", we all go thru that. But it made me smile to read you try to focus on the positive, that's important! Hugs and prayers!
