Dead Nerves in the Colon?

[LittleCellist]

For a long time I have had very bad pain problems with cramping and urgency and doctors have never been able to see any inflammation or disease or anything that could be causing this. Diet has not changed this and medications don't stop it, either. My new doctors finally put it into words for us to understand and I was wondering if anybody has either heard of this, has it themselves, and/or how they treat it and such.
My doctors tell me that the disease that used to be in my colon left scar tissue and damaged/dead nerve endings and muscles that are not visible on scopes and other images. As we know, the intestines typically have almost a rhythmic pattern of contracting and pushing food through. Because of the scarring and dead nerves, when food passes through part that part of the intestine, it doesn't contract like it should, thus backing me up and causing a lot of pain in the places where stool can't move. Also pain in other places where the nerves are damaged and it contracts too much. The frustrating thing about this is that it's not like this is in large specific spots that could potentially be removed, thus solving the problem. They're very small and scattered.

The last 3-4 days have been very troublesome with this for me. The cramping has reached a whole new level to the point where I'm taking heavy pain meds in order to be able to sit upright and walk around. I had quite the experience yesterday with lots of extremely painful cramping to the point where I was yelling on the toilet (in church! It was no fun) and having bloody diahhrea, and the rest of the day just passing bright red bloody mucous. Same thing today, still just passing blood. Plenty of pain, too. It's very uncomfortable. I'm still on pain meds to suppress this.
I'm supposed to be taking laxatives daily to see if this helps with the symptoms. For the last week I did not take them for various reasons. However, I also didn't think anything quite like this would happen.

I'm just wondering if anybody has to deal with anything similar to this, and if so, how they deal with it, what kind of treatment they do, anything. I imagine this is going to be something I'll have to manage for the rest of my life. I don't really want to take laxatives for the rest of my life, though. But if not taking them means never knowing when an attack like what I had yesterday will happen again, I really don't want to risk that.

I am going to be seeing a neurologist and/or a muscoloskeletal doctor to get on some kind of pain treatment/management.

Thanks for the feedback! This is just getting very frustrating and I want to see if anybody else has heard of this happening.

 

[Reikel]

Iknow you said diets dont work but i suggest you dont dismiss this atleast as a read

I believe i have the same issue as you do; possibly less severe. After seeking help for my affliction, i was told by a doctor that because of my drinking and eating of fast food my intestines and bowels were swelling. Before that I visited a doctor that told me I just had a bunch of gas, and even before that one told me i had chronic prostate-itis(if thats even how its spelled.

Thing is, that out of all of these docotor visits, the only one that went the extra mile and actually took a stool sample, so that i could get a more exact answer, was the one that told me my innards were swelling due to my poor diet and lack of exercise. Naturally I didnt believe her because at the time, though i didnt look it, i was obese. clinically obese anyway.

A few months later I met with my friend who is a psychiatrist. I spoke to him about my issues of stoppage and overall discomfort, because even though he is a brain doctor (of sorts), he is a doctor none the less that went through medical training same as the others. He began to tell me that I need to walk, stand for a while, that the body heals itself and that i need to remain positive, or find ways to be positive because of the effects endorphins(or whatever chemical it is that controls happiness; the name escapes me) have on the body, and its recuperative abilities.

Fed up with the burn and overall hell that my body was going through i began to eat fibers like strawberries bran and made it a top priority to remain perfectly hydrated. I began to walk a mile a day, or every other day til I eventually started walking 15 miles a week regularly. Though the symptoms and pain are still in effect and effect me much more if i drink or eat to much junk food and remain inactive, Ive taken notice that my bowel movements have stablized, the overall pain has gone from a 10 to a 3, to non-existant at times and passing of stool has become easier.

I personally dont know what i have or just havent gone to enough doctors to get the oppinion that i like or makes more sense.

I will tell you though, that becoming a health-nut (which is what my friends have labeled me) has helped me alot. I did my research and eventually buried myself in so much info. that i found sites offering in depth calculations/calcultors that calculate how much protein, and fiber a person of my height/ weight should be eating (along with calories). I also began to run 6-10 miles a week after an initial 2 months of plain walking and eating right. Im not saying you have to go to extremes like i did, but im saying that an attempt of having a truley healthy life would help, and i say that because like me, some people overeat til theyre in pain, dont work out, or are hardly hardly active, drink/smoke, work then sleep, and consider this to be normal or not so abnormal.

The one thing that i have learned is that like alot of injuries my internal malities needed a treatment, a rather long treatment. So please remember that this healthy lifestlye cannot cure you of the horrific times your going through in a week or a month possibly even 2 months (though the stool softening did begin present itself a bit in the first month). Id say that a full stabilization occurred in me after about 4-6 months.


I know i still must go to the doctor to settle this and put a label on what i have, and get some proper medical help, but I am no longer spending years in the bathroom in pain trying to relieve myself.

Oh and the doctor that gave me the innards inflation diagnosis said that my problem maybe a nerve issue, but because i stopped going to her i never found out.