Do you get disablity allowance (uk)

[merrywidow]

do you get disablity allowance (uk)

i was wondering if any of the uk based guys an girls got disablity living allowance for their stoma?i applied but got turned down.
regards sharon x

 

[amor151]

i filled in all the forms but never got around to sending them off. i've been told i can get on it but apparently it is very difficult to do so.

 

[rosie]

im not sure. dont really know anything bout it.

 

[merrywidow]

amor, on what grounds can we get DLA? my son gets middle rate DLA for personal care, i was told by them that i dont need personal care and as i can walk i wouldnt qualify for the mobilty rate. regards sharon x

 

[danman]

I don't know about DLA, but when I lived in London (10 years ago), I was a member of the Crohns and Collitis society (I can't remember their full name). They sent me a regular pamphlet.
One of these said that, as crohns sufferers, we could apply for a disabled parking permit, because we might need to park quickly for bathroom purposes.

I never looked into it at the time, as I have a thing about people using disabled bays, and I would not consider myself disabled, and anyway, I moved back to Ireland shortly after that.

But if disabled parking permits are allowed.....

 

[amor151]

i dont no too much about it unfortunately sharon, my mum did alot of the forms and it was her who heard that i could get DLA. i know it sounds bad but you really need to "sell" your symptoms on the forms you fill in. i will ask her about it and reply here soon.

 

[merrywidow]

i know you have to sell yourself. when we appied for our son we had to take his worst day and write about it, it was vry distressing and all we seemed to be doing was saying all the horrid things about him, there was nothing nice about him on that form at all. ad that really upset me. i will look int the blue disabled bagdes. regards sharon x

 

[Guest]

when my Crohns recurred last year, and was causing me a lot of anxiety re getting to the toilet, plus the debilitation.. i applied for DLA, & answered the form questions completely honestly. i got turned down too. I spoke to the Disability Advice Line, and it seems sometimes it's the luck of the draw, or maybe to do with the way we fill the forms in. one day i'll get round to re-applying.

 

[amor151]

I've spoken to a few fellow crohn's sufferers who have applied and while none of them got accepted they know people who have done. i think if we filled in the forms for our worst ever day with crohn's we would get the DLA accepted, i no thats what the people my friends know did. in the end it is the truth its not as if we're lying, somedays we will be ok and somedays we will not but if we were to write that down they would throw our forms away without another look. i do also think there is abit of "the luck of the draw" as dingbat said. as for the blue disabled badges i do know a crohn's sufferer with one. he told the people who give them out about a certain traumatic experience where he ended up going to the toilet in his car because he couldn't find anywhere to park and they accepted his request quite quickly. i am thinking of applying for one soon as they could be VERY useful.

 

[merrywidow]

i applied for a blue bagde today, i will let you know the outcome. regards sharon x

 

[danman]

i applied for a blue bagde today, i will let you know the outcome. regards sharon x

Please only use it in emergencies..

I agree we should have one, but only for when we are desperate. If it gets used when you don't have to run to a toilet, your stopping someone in need from using it.
I have an uncle with severe arthritis, he has to park his car 2 hours before church starts, otherwise he won't get into a disabled bay. Even from the disabled bay, it takes him 20 mins to walk to the church.

 

[amor151]

yeah don't worry my mum has MND and would kill me if she knew i was using the blue badge for no real reason.

 

[merrywidow]

i got turned down for the blue bagde. i wasnt really expecting to get one though, i was turned down on the grounds i can walk.
sharon xx