Do you think there will ever be a cure?

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cwf5020

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So I was thinking today, will there ever be a cure for Crohn's? Im optimistic and I think within the next 10 years there will be a major break through, atleast I can hope for that. What do you think?
 
I just think back when HIV/AIDS was first gaining notice. It was pretty much a death sentence once you reach the status of full blown AIDS....Now people are living over 20 years without ever converting from HIV to AIDS......I think once there is more funding and research our quality of life will greatly be improved. I would love a cure, but it's not a vaccine kind of issue....So I don't know if it is curable.
 
Hopefully the Crohn's bills Harry Reid is sponsoring will bring some more exposure and research into the disease.

For those that are curious it is THE IBD RESEARCH AND AWARENESS ACT

* Establish a pediatric IBD patient registry at the Centers for Disease Control and Prevention (CDC)
* Establish an IBD awareness program at the CDC
* Establish a 5-year IBD epidemiology program at the CDC
* Tell the National Institute of Diabetes and Digestive and Kidney Disease at the National Institutes of Health that Congress is interested in expanding IBD research

http://www.govtrack.us/congress/bill.xpd?bill=h111-2275
 
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I like the epidemiology aspect....If we can find the cause/ trigger I think we could prevent it from happening to others.
 
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I have been looking at the use of hookworms. It seems like a valid idea, and it may hold some hope as well.
 
I have been thinking of starting a thread like this too. I started to think about it after talking with my Remi nurse. We were saying that there just isnt enough exposure so not enough money being put into the research.

You also have to think that the pharmaceutical companies, are making WAY to much off these drugs that are WAY over priced, to push for research other than more drugs that make life bareable, rather than a cure.
But thats just my 2cents.
 
I remember 17 years ago they thought a cure was within 10 years... guess it is alot more complexed than what people think..Crohns and Colitis is not even mentioned in the funding programs...not enough donations or awareness. We have our firt BBQ in May, usually hits on mothers day weekend, from M&M's. So if you can volunteer for any event even for a couple of hours, it all makes it worth while!
 
no I don't.

I think we will get better ways to minimize the impact it has on peoples day to day life but I do not think they will ever be able to reprogram someones immune system. I don't think the stem cell thing is going to work either. It is an example of the price we pay for being a highly adaptive and complex animal species.
 
Fog Ducker said:
You also have to think that the pharmaceutical companies, are making WAY to much off these drugs that are WAY over priced, to push for research other than more drugs that make life bareable, rather than a cure.
But thats just my 2cents.
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It is part of the R&D cycle. If you think about it - there is little market for trying to turn a profit on us versus say a cardiac drug or a common cancer drug. They spend literally MILLIONS of dollars to develop a drug that may or may not ever make it to market. The fact that some of them have been willing to invest heavily on meds that don't hit a high percentage of the population just amazes me (from a corporate profit turning standpoint). After all - who said pharmaceutical companies are altruistic in nature? I am glad that we have some of these expensive meds available to us and understand why they are so expensive.

As for a cure - I will never lose hope. The fact that I have children with the prospect of also having grandchildren, and knowing that there is a genetic aspect to this disease - I continue to hold out hope that none of my offspring will have to suffer from this horrible disease.
 
I believe that it will happen, may not be tomorrow, but will happen.
I also believe in being proactive for things that you want.
I am part of the National CCFA Fundraising committee. We work on
fundraising and awareness all year long and then have our big walk
in May each year. The more people we can get to understand the disease
and the more money we have to use, the more chance we have to
find a cure, and in the meantime, develop better drugs.
Knowing is half the battle! That's why my team for the walk is named
'G.I Crohn's' :) Go Crohnies! :tongue:

This is the logo that I made:
1784.401485212.custom.jpg
 
That's cool Mini!!! I just got an e-mail saying our walk is May 1st. I think belonging to this forum has given me more incentive to participate this year.
 
No, sadly I don't.
I did. I used to pray for it all the time - then I realised about 3 months ago that I just don't believe it anymore. I don't want to get anyone down, or sound all negative so I wont go into why. What I DO believe though is that they will be able to prevent it - a vaccine if you like, so in the future people wont get it.
 
i done believe there willl be a cure. but perhaps they could work out why/how we got it. prevention is always better than cure
 
Make a list of the diseases cured in the last twenty years, and that will pretty much tell you what I think.

Dan
 
D Bergy said:
Make a list of the diseases cured in the last twenty years, and that will pretty much tell you what I think.

Dan
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infectious diseased or genetic disorders?
 
Cures for any disease of any kind. I would like to see a list of those diseases cured in the last twenty years. The age of the most explosive advances in technology ever.

I can think of one, but I have not really looked hard.

Dan
 
I have a very cynical attitude about most things, not just Crohn's, and I (sadly) don't see a 'cure' coming along. Cure a chronic & life-long disease? One that the treatment for which they (the pharmaceutical companies 'they') are making so much money selling so many high priced drugs? Yeah ... sure ..... right ... I'll hold my breathe ... :(
 
I am not cynical, but surely if there was a real effort to cure anything, we should see some kind of result in a twenty year time span. There are thousands of diseases, and most all of them have treatments, but to find one cure in recent history is as rare as Hens Teeth.

I think of it as realistic thinking based on the evidence at hand.

Dan
 
They may have found a cure for MS, that's pretty huge...something to do with a vein in the neck that is a bit blocked and not allowing enough blood flow to a part of the brain (something or other), some doc somewhere in europe discovered it, wasn't too long ago either they had the story on the news...and see how crappy my memory is, man, can't even recall details on stuff anymore. :(


:)
 
D Bergy said:
I am not cynical, but surely if there was a real effort to cure anything, we should see some kind of result in a twenty year time span. There are thousands of diseases, and most all of them have treatments, but to find one cure in recent history is as rare as Hens Teeth.

I think of it as realistic thinking based on the evidence at hand.

Dan
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started looking into this a little bit for the personal interest. All infectious disease though. Nothing about genetic disorders :(

http://health.howstuffworks.com/12-deadly-diseases-cured-in-the-20th-century.htm
 
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Sadley enough if they started curing diseases they would loose tons of money so if a cure ever did exist, we would not know about it.

This is true for most diseases.
 
I agree with the posts that say we need more money and awareness. I really urge family and friends to fill out form letter at the ccfa.org and go into advocacy. If there was some way people could get their story to them...their thread; I think it would grab our leaders attention. The squeky wheel gets the most. HIV/Aids people got more attention when Crohns and other immune patients have been around much much longer. So, that new drug with almost 90% success (is it 90?) LDN... is coming from them! We have to push and ask just like the people who get the funding for research. Some of the threads here on how/what they are going through should scare the bejees out of them. So, I am sure you've gone into the site, and done so...but send it to your friends & family...write the letter for them...Okay....enough soap box. I do hope there is something to get us all into remission along with god forbid...my children, my (hopeful) grandchildren..etc...Sorry for the long post. S
 
Concerning the CCFA. Do a search on Low Dose Naltrexone on their site, and see what you get for articles and research on the drug.

Let us know the results, and then give me an explanation for the result.

I would like to think there is a reasonable explanation for the void of information on Low Dose Naltrexone, but I really cannot come up with one.

Dan
 
the pharmacuetical companies are a monopoly, therefore i don't personally believe there will ever be a cure for cancer, luekemia, hiv/aids, or any other disease, including crohn's. i don't think it would be allowed by the drug companies. could you imagine if there was a cure for cancer? you how how much the population would increase? the world would become overpopulated because cancer of any kind is (one of) if not THE leading cause of death worldwide? the drug companies would go out of business cause nobody would need any treatment, if there was a cure.
 
I tend to brush conspiracy theories aside because those same companies compete against each other viciously for better cures. Not agree between themselves to prevent cures. Anyone coming out with a new vaccine or treatment gets the big $$$.

It makes for great moves though :)
 
They came up with the HPV vaccine...Not a cure once you have the disease but it does prevent cervical cancer to some degree. If they can find what is the cause of Crohn's, either bacterial or viral, then we have some hope of preventing it......I think once you have it you are SOL....We will have to see what develops with the stem cell research for us.
 
D Bergy said:
Concerning the CCFA. Do a search on Low Dose Naltrexone on their site, and see what you get for articles and research on the drug.

Let us know the results, and then give me an explanation for the result.

I would like to think there is a reasonable explanation for the void of information on Low Dose Naltrexone, but I really cannot come up with one.

Dan
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Know what, I'm gonna email them and ask them why there is nothing there..I see the research for LDN is being research at Penn Univer(?) But, its true that it works in close to 90%...shame on all of them if it comes down to almighty dollar!!!!!~S:voodoo:
 
I don't worry about a cure for myself, but I would love to see anything to help all our younger friends get help so that they no longer suffer with this monster. And a prevention for future generations would be great.
I've had my Crohns for so long that I don't know if I could live without it. It has become that annoying friend that always sticks its head up at the most inappropriate time. It has become a part of who I am and how I face the world. If I didn't have it I would be worried about getting something else. With it I will survive.
 
I did find one reference to LDN on the CCFA website about a year ago. It was the only one. I cannot find it now, so either it has been removed, or I just am not using the right search terms.

Since I have tried LDN, Low Dose Naltrexone, and Naltrexone I would think that would cover any keywords or tags on the subject.

Dan
 
I have to admit that I tend to be quite a pessimistic person, however, I honestly think there will be a cure for Crohn's eventually. Maybe not in our lifetime, but one day.

The biggest hurdle would seem to be pinning down exactly what causes Crohn's in the first place. Doctors around the world have lots of theories but many of them differ. It would seem to me that a cure can't be found until the definite cause is found.

The other thing to remember is that, except in a few very extreme cases, Crohn's alone isn't a life threatening disease. Understandably, huge efforts are being made to find cures for fatal diseases like cancer and heart disease and equally large amounts of money are spent on the research. No matter how horrible and debilitating Crohn's is for us sufferers, it will always have much smaller resources being put into finding a cure.
 
Consider the burden having crohn's puts on many aspects though, like for those collecting disability, time lost at work, and the money this is costing everyone ect not to mention the prevalance of it affecting more and more younger children as time goes by...imagine if they don't find a cure, at some point it's possible that every person on the planet could have an IBD....check out this link from the CCFC...

http://www.ccfc.ca/English/images/proclamations/BIBDC FINAL October 29th EN.pdf


:)
 
My Crohn's was first diagnosed back in 1976 when I was ten years old and to be more than honest I remember reading back then about an imminent cure. One time when I was in hospital I asked a student doctor if he thought there would ever be a cure for CD aand he answered, "Yes, undoubtedly". He then went onto say, "But not in your lifetime!" Talk about tactless! I am however more hopeful with stem cell research.
 
I think in time our knowledge will advance so much that diseases are inevitably going to be cured. Prevention is better than cure so that will probably be the way we remain disease free. In order to prevent or cure something, though, you need to fully understand the pathology of disease and Crohn's is not a well understood disease.

There probably won't be full on "cures" for many disease in any of our lifetimes. By cure I mean completely get rid of and never come back. Some people get cured of cancer and other diseases but that disease can still return. Doesn't "cure" mean "heal and stop it from ever coming back"? and not just "heal".
 
A problem with any cures for any disease is unfortunately "money" related... pharmacies, docs, otc drugs, think of the money lost??? That is why awareness is important for other people and employers and discrimination because of losing jobs over beening ill for long periods of time. Losing a job is stress enough but no insurance to boot... survival is almost impossible.
 
Yup, that's always the way most look at it, the pharmaceutical industry losing money, but like in the link I posted above, when the government actually puts out information (for canada) of how IBD affects the cost for disability and employers then eventually the government will win over pharmaceutical companies...the government (canada) also contributes towards research for IBD due to the cost of just one IBD patient in a yr alone.

Time will tell :)
 
The nurse said to me I was kinda lucky getting it now - given that there are two types of immunosupressants available - Remi and Humira. I'm on Remi and its great. Whereas back in the 90's these weren't available. I think she said there was another immunosupressant in the trail stage - although I could have imagined that. Anyway two/three new treatments in the last 10 years or so. Not too bad. Also the work of the doctors in Barcelona with the chemo/stem cell 'cure' (although admitedly its extreme, at least its something)

I think it was Farm who said that eventually this disease becomes a part of you and if there was a cure although we'd all go for it - it would sort of be erasing a part of you. I've never been happier and I'd put it down to Crohn's making me value my life/health more.

Anyway - let's all hope eh? Children are our future and all that.
x
 
I'll take what I can get, cure or treatment, anything that can work. The only part of me this disease takes residence in is the bad part. I want that gone. I'll be immeasurably better off. This disease is not supposed to be a part of me. They don't even know if it's "Crohn's" or UC now, that's how mysterious it is for me. I have been refractory to treatment for far too long to consider the "what if" of passing on a cure if it comes out.

I say a cure is better than prevention. There are millions in this world with IBD, and the rate of diagnosis is exponentially rising. I don't think the logistics are feasible to vaccinate since the epidemiology is so cryptic, they'd have to vaccinate the whole damn planet and cause a scare and an uproar (hey, that's exposure though!)

Give it to those with it already and if anyone else gets it, the cure is more powerful. It'd be like putting some hydrogen peroxide on a scrape, it's a cure, afterall, in this scenario. Logic, to me, says that with a cure comes a vaccine anyways, so it's a moot point. If you have the information on a cure, you inevitably know enough about it to work on a vaccine, and worst case scenario, you don't so you just start passing out the cure (to which will probably not be approved in the US by insurance tyrants unless you're on your deathbed, and even then, you'll be fighting a BS verdict of "Well it's not researched enough yet")....

Bring on the cure, or hell, another viable treatment that helps those refractory patients.

Future generations will laugh at our scope of understanding of physiology, immunity and biology, and cry at our archaic use of a grenade to kill an ant hill. They'll hold their can of Raid and weep, for we didn't know any better. :(
 
I think vaccines only work against biotics though. What if this is not an infectious disese? Genetic disorders are a whole different discussion and that MAY be what Crohns is. When I was studying at The University of Guelph I took an elective course in Zoology called Humans in the Natural World. One of the books we used was Why We Get Sick; The New Science of Darwinian Medicine. From reading and discussing this book I came away with the idea that genetic disorders are the price we pay for the ability to adapt. And without that chance for random mutation we would not be here at all. We can try to correct the negative outcomes on a person by person basis but I just don't see how you cure a species genetic makeup. Or why you would want to.
 
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Im confused. Everyone says there isnt enough awareness or money donated for research. There are MORE Discoveries and studies for Crohn's Disease than any other disease I have ever seen. What about breast cancer? Breast Cancer is the most funded disease I have ever seen in my life. Is there a chance at a cure? No. I highly Doubt it.

Sadly, My Crohn's Will never go away. I will suffer for the rest of my life because If you Cure something, than CHEAP CHEAP CHEAP drugs that cost 5,000 per infusion for us.... Just wont be available.. Well than Drug companies will suffer and lose millions.. WE CANT LET THAT HAPPEN Right?.. Its all money, its crap.

If another country finds a cure, a breakthrough, or something WORTH knowing.. Good Ol' America will step in and pay you millions to shut your mouth.

Just my 2 sense. As long As America is around to make of your suffering, we will never see a cure.
 
There was a drug Called PROCHYMAL that was produced by OSIRIS Therapeutics. This Drug was supposed to be a Cure all. Stem Cells were looking Bright and I was almost in the Trial.

Than Out of NO WHERE the company TOOK A HUGE DIVE.. Lost nearly 75% in stock value and told the american people that PLACEBO rates where TOO high.. And they would have to shut down phase 3 Trials..

Ya.... Such Bullsh**
 
Many of the reasons given, are why I largely treat myself. My interests are far different than that of organized medicine. I have no other motive other than to get as well as I can. I also am not limited to approved treatments, although I do not have everything at my disposal.

It also has worked well in my case.

Dan
 
Its disgusting when a "donation" from the right people can make thngs like this dissapear. I believe it is everywhere, like whatever happened to the electric car???
 
kasper87 said:
Im confused. Everyone says there isnt enough awareness or money donated for research. There are MORE Discoveries and studies for Crohn's Disease than any other disease I have ever seen. What about breast cancer? Breast Cancer is the most funded disease I have ever seen in my life. Is there a chance at a cure? No. I highly Doubt it.

Sadly, My Crohn's Will never go away. I will suffer for the rest of my life because If you Cure something, than CHEAP CHEAP CHEAP drugs that cost 5,000 per infusion for us.... Just wont be available.. Well than Drug companies will suffer and lose millions.. WE CANT LET THAT HAPPEN Right?.. Its all money, its crap.

If another country finds a cure, a breakthrough, or something WORTH knowing.. Good Ol' America will step in and pay you millions to shut your mouth.

Just my 2 sense. As long As America is around to make of your suffering, we will never see a cure.
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Ask around how many people know what Crohn's Disease is in the "real world" and then ask around if they've heard of breast cancer. That should clear up some confusion.

It affects many people and is still stigmatized, thus, it's muted and taboo and doesn't get the attention it deserves.

I wouldn't blame a country, but rather certain powers within that country, for a gagging effect on a potential cure. Pharma companies and big corp's are not "the US"...

@ Kenny: I believe there's a strong chance of IBD being both infectious and genetic, hence it's enigmatic existence and difficulty to understand, but that's just a theory.
 
@ Kenny: I believe there's a strong chance of IBD being both infectious and genetic, hence it's enigmatic existence and difficulty to understand, but that's just a theory.
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I agree completely.

Dan
 
Honestly, Besides Bacterial infections, Viruses, that WE ALL Pick up..

I think Most Diseases ARE genetic and or infectious. It's just we all have or need something to TRIGGER them.
 
I’ve had Crohn for more than 20 years and I think we are very far from having a cure for this.

Just look at the way the “scientists” study illnesses. They use the try-and-error method, as same as us. They published results like this:
-We tried the new XXX drug and 68% of the patients said they improved.-
I don’t think medicine is a science.

What makes things worse is this illness is 1 in 200.000 people, so that is not really important. If I owned a laboratory I would prefer to find the cure to diabetes or cholesterol rather than Crohn.

:) On the bright side, I think our life quality will improve A LOT.
In the last years I’ve seen lots of new treatments, improved versions of old drugs and etc.
 
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I have also seen a lot of differant treatments in the 24 yrs that I've been treated for this disease. I was only treated with Pred for the most part in that time so when this last flare came up and my GI recommended Remi or Humira I had to start all over educating myself. Where'd all these other drugs come from while I was in remission? What a shock and how overwelming its been.
 
D Bergy said:
Cures for any disease of any kind. I would like to see a list of those diseases cured in the last twenty years. The age of the most explosive advances in technology ever.

I can think of one, but I have not really looked hard.

Dan
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Polio and Smallpox seem to be the last diseases "cured." And these were both viruses treated with vaccines. Most of the diseases nowadays like IBD, Metabolic Syndrome, Heart Disease, and even Cancer are more than likely caused by the environment we live in. Until we change our environment, and also what we eat, I don't think you can ever really find a "cure" for these diseases. Unless of course, you can find a way to genetically change the inflammatory immune response our bodies react with. But even then, how do you know you wouldn't develop Diabetes, or hypertension if you continued to eat the same way you did before? Then of course, you would have to think of the money the pharmaceutical industry loses if any of these diseases are ever "cured." It's sucks to think about it, but it's just the way it is.
 
kenny said:
I think vaccines only work against biotics though. What if this is not an infectious disese? Genetic disorders are a whole different discussion and that MAY be what Crohns is. When I was studying at The University of Guelph I took an elective course in Zoology called Humans in the Natural World. One of the books we used was Why We Get Sick; The New Science of Darwinian Medicine. From reading and discussing this book I came away with the idea that genetic disorders are the price we pay for the ability to adapt. And without that chance for random mutation we would not be here at all. We can try to correct the negative outcomes on a person by person basis but I just don't see how you cure a species genetic makeup. Or why you would want to.
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I don't necessarily think Crohn's is a part of our genetic makeup. By the sound of it, you make it sound like Crohns is ebbed into our DNA and there is absolutely nothing you can do to stop it. I agree that Crohns can have it's genetic causes, albeit minimal IMO. I don't see other animals out in the wild that have "adapted" that are out there having diahrrea all the time, hunched over in pain, emaciated, etc... Of course, I'm not a big animal watcher so I guess it could be happening. There has to be something in our environment that is making our body react this way. I've heard many different hypothesis'. Our environment is too sterile, we are not exposed to enough bacteria to build up immunity and eventually our immune system attacks itself is a good one. Personally, I think it lies with our sugar intake. It's pretty simple actually. Added sugar is essentially foreign to our bodies, it was only invented 5000 years ago. Sugar causes inflammation. The average American consumes 140-160 lbs of ADDED sugar EVERY YEAR BY THEMSELVES. You cut that number in half and I think a lot of our health problems go away.
 
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I watched a program last year about stomach ulcers. It was all about the cause being high level of stress / one of those things etc until a scientist decided to look more closely into it. Cut long story short he found elevated levels of a certain bacteria in most guts, thought that was the problem, help make a cure. People still didnt believe it was this bacteria so he had a swab of his stomach taken then he swallowed the bacteria, couple of weeks later he had stomach ulcers. The drug (peptobismol) cured it. Before that the patients had to take drugs for the rest of their life. http://news.bbc.co.uk/1/hi/4304290.stm

Im guessing the crohns is going to be something like that. Whether or not it will be cured in my lifetime no idea, dont dwell on it either. It either will or wont and doubt i can have any effect so why worry
 
I emailed CCFA last week regarding LDN and why it was not on their website as of today I have not heard from them, Sue
 
rygon said:
I watched a program last year about stomach ulcers. It was all about the cause being high level of stress / one of those things etc until a scientist decided to look more closely into it. Cut long story short he found elevated levels of a certain bacteria in most guts, thought that was the problem, help make a cure. People still didnt believe it was this bacteria so he had a swab of his stomach taken then he swallowed the bacteria, couple of weeks later he had stomach ulcers. The drug (peptobismol) cured it. Before that the patients had to take drugs for the rest of their life. http://news.bbc.co.uk/1/hi/4304290.stm
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Does it say that in the article? I didn't see it there unless its too early in the morning here and I'm not quite awake lol

Although I have read before that Pepto helps cure a h.pylori infection
 
Bismuth is the active ingredient in Pepto Bismol. It is antibacterial, but i did not know it was able to kill H_pylori.

Polio could have been influenced more by hygiene than any other factor. Countries that did not use the Polio vaccine had the same results over time as countries that did vaccinate. Or at least that is the graphs I have seen. It is something I have not fully investigated yet. Right now, I do not know one way or another, but it is an interesting topic.

Thank you for checking Sue. I have always wondered what that was all about. I hope they give you an answer.

Dan
 
I think there will eventually be a cure for Crohn's. The thing is with cures it takes years and years of research and then, as if by a miracle, someone finds a critical missing link but that link wouldn't have been possible without decades of research findings. While it may not look like anything is on the immediate horizon, I believe medical research is taking a step in the right direction--therapies are becoming a bit more targeted (biologicals, anti-TNF drugs) versus non-specific (Prednisone). Still, I think it is critical for people to raise awareness while they can--not that breast cancer isn't important, but could you imagine if there were as many products sold to benefit Crohn's or Colon Cancer (every time I buy something pink seems like some proceeds go to breast cancer)!

Unfortunately, research funding and pharmaceutical companies are driven by the almighty dollar, but if you think about it Crohnies are even better customers than cancer patients--we have a disease that is LIFE LONG, meaning we'll be frequent flyers buying our Humira shots, Entocort, Remicade, Pentasa, etc. for a long, long time. If you add all that up, it would actually be a huge loss for the pharmaceutical industry to lose us.
 
iminflamed said:
I don't necessarily think Crohn's is a part of our genetic makeup. By the sound of it, you make it sound like Crohns is ebbed into our DNA and there is absolutely nothing you can do to stop it. I agree that Crohns can have it's genetic causes, albeit minimal IMO. I don't see other animals out in the wild that have "adapted" that are out there having diahrrea all the time, hunched over in pain, emaciated, etc... Of course, I'm not a big animal watcher so I guess it could be happening. There has to be something in our environment that is making our body react this way. I've heard many different hypothesis'. Our environment is too sterile, we are not exposed to enough bacteria to build up immunity and eventually our immune system attacks itself is a good one. Personally, I think it lies with our sugar intake. It's pretty simple actually. Added sugar is essentially foreign to our bodies, it was only invented 5000 years ago. Sugar causes inflammation. The average American consumes 140-160 lbs of ADDED sugar EVERY YEAR BY THEMSELVES. You cut that number in half and I think a lot of our health problems go away.
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According to research there's definitely enough evidence to prove that IBD can be very genetic...there are cases where nearly every family member has an IBD...cats and dogs can also get IBD...cows have a form of IBD (Johnes disease)...it's a matter of IBD being triggered, that's half of the equation...researchers now know that smoking (including secondhand smoke) is a known trigger for crohn's, of course that doesn't mean it's every crohnies trigger either, it's a very individual disease which makes it that much tougher to figure out...birth control pill have also been linked to triggering crohn's, same with tooth paste...accutaine is linked specifically to ulcerative colitis.

The thing researchers cannot figure out is how it's genetically passed like they can with cistic fibrosis and other diseases.

And yes, it's also noted that refined sugar, artificial sweetners, caffeine, animal fats, fast-foods, processed foods/beverages are all suspect of exacerbating symptoms of IBD...it's also noted that IBDers tend to have a less healthier diet than non IBDers, consuming more processed foods (and the other above mentioned things)...of course that's not to say that healthy eating people don't get IBD, cuz they do as well, more than likely they are genetically predisposed to getting it, it's just a matter of it being triggered, (possibly smoking, secondhand smoke, BC pills, toothpaste, accutaine,or whatever else exacerbates symptoms could also be triggers).

:)
 
I know refined sugars are not good for you but what about Stevia sweetner, supposed to be natural and sweeter than sugar... I am using splenda and I have to have sugar in my coffee and I am not giving up coffee, I have given up everything else..damn disease.
 
Hey Jettalady, I use pure stevia extract, not truvia or any other stevia brand that is made with sugar...I also use honey...maybe try some pure stevia extract in your coffee? I buy it online from puritans pride, and a teeny weeny bit goes a looooooong way.

:)
 
D Bergy said:
Concerning the CCFA. Do a search on Low Dose Naltrexone on their site, and see what you get for articles and research on the drug.

Let us know the results, and then give me an explanation for the result.

I would like to think there is a reasonable explanation for the void of information on Low Dose Naltrexone, but I really cannot come up with one.

Dan
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Lack of multi-site clinical trials/research to prove efficacy? Ditto with SCD or any diets. And we've had that discussion before - who's gonna pay for something that doesn't make them money in the end?
 
I do not disagree with what you are saying, if the site is more or less a promotional piece for Pharmaceutical products, but I thought it was geared more toward helpful information for the treatment of the disease from the patients perspective.

At least I think that was the original intent, but maybe it has been influenced over time by other interests.

That site in particular was recommended by my Gastro's Nurse. I looked at it and checked the sponsors, and thought that it may be biased based on the sponsors. I did not know that for sure, and still don't, but then I found this site and it suited me much better, as there is real people helping other people, and there is no reason for a hidden agenda here.

I guess that is why I never became a member of the CCFA is I was never sure of their motives.

If it is supported by pharmaceutical companies, they certainly do not need my money to do research they should be doing and profiting from anyway.

If it truly is a patient oriented organization that is a different matter, and I would not mind supporting them in that case.

I just would like to know the truth, one way or another.

Dan
 
I have been a member of the CCFA for close to 15 years and raised a fair share of money for them last winter.

http://www.ccfa.org/about/?LMI=0

You can get their strategic plan and their annual report from their website.

One great program that they raise money for is a summer camp every year for kids with Crohn's or Colitis.

http://www.ccfa.org/kidsteens/camp

It does not bother me that they don't have a section for LDN. They do have a section SCD.
 
I am a memeber too. I love, love the fact that they have a camp for kids.....One day I would love to be a camp nurse!

They are an organization that is raising the awareness for the disease not just funding research.
 
There seems to be a lot of people bashing pharma companies here, but a great deal of research into diseases like this happens at the academic level. Then it becomes less about money, and more about publishable results. The basis for a cure would come from here. The pharma companies would then develop drugs to target the new found pathways.

The last attempt to cure a genetic disease I heard about, was the 'Bubble-boy' illness. (http://www.msnbc.msn.com/id/28896936/ - http://www.newscientist.com/article/dn2124-gene-therapy-cures-bubble-boy.html)
It was reasonably successful. A few died, several others developed leukaemia as a direct result of treatment.
 
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I was thinking about this today and I believe that the pharma companies will never let a cure come out, but then I got to thinking that if said big pharma company made the cure or vaccine wouldnt that create a lot of revinue too, especially a vaccine that everyone got.
 
pb4 said:
Hey Jettalady, I use pure stevia extract, not truvia or any other stevia brand that is made with sugar...I also use honey...maybe try some pure stevia extract in your coffee? I buy it online from puritans pride, and a teeny weeny bit goes a looooooong way.

:)
Click to expand...

Thanks for the info. I did try Stevia extract but didnt find it sweet at all... my husband said to try honey, because it also has a natural pain killer and other goodies in it. Also honey never goes rancid. I will try it. I hate to give up my coffee. We all have to give up so much from having Crohn's, I just want something too look forward too in the morning. I dont drink or smoke, or drugs..it is my only stimulant. I even gave up chocolate for a few months! :voodoo:
 
iminflamed said:
I don't necessarily think Crohn's is a part of our genetic makeup. By the sound of it, you make it sound like Crohns is ebbed into our DNA and there is absolutely nothing you can do to stop it. I agree that Crohns can have it's genetic causes, albeit minimal IMO. I don't see other animals out in the wild that have "adapted" that are out there having diahrrea all the time, hunched over in pain, emaciated, etc... Of course, I'm not a big animal watcher so I guess it could be happening. There has to be something in our environment that is making our body react this way. I've heard many different hypothesis'. Our environment is too sterile, we are not exposed to enough bacteria to build up immunity and eventually our immune system attacks itself is a good one. Personally, I think it lies with our sugar intake. It's pretty simple actually. Added sugar is essentially foreign to our bodies, it was only invented 5000 years ago. Sugar causes inflammation. The average American consumes 140-160 lbs of ADDED sugar EVERY YEAR BY THEMSELVES. You cut that number in half and I think a lot of our health problems go away.
Click to expand...
Animals die when stuff happens that is kinda my point. But I agree that our diet is bringing this out in people. The disease just never showed up in cultures with marine diets based in O3 fat intake as opposed to terrestrial diets based on O6 intake.
 
D Bergy said:
I do not disagree with what you are saying, if the site is more or less a promotional piece for Pharmaceutical products, but I thought it was geared more toward helpful information for the treatment of the disease from the patients perspective.

At least I think that was the original intent, but maybe it has been influenced over time by other interests.

That site in particular was recommended by my Gastro's Nurse. I looked at it and checked the sponsors, and thought that it may be biased based on the sponsors. I did not know that for sure, and still don't, but then I found this site and it suited me much better, as there is real people helping other people, and there is no reason for a hidden agenda here.

I guess that is why I never became a member of the CCFA is I was never sure of their motives.

If it is supported by pharmaceutical companies, they certainly do not need my money to do research they should be doing and profiting from anyway.

If it truly is a patient oriented organization that is a different matter, and I would not mind supporting them in that case.

I just would like to know the truth, one way or another.

Dan
Click to expand...
Yea, they have a whole page dedicated to their pharmaceutical sponsors. That was the only clarification I needed to move onto another site.

And I understand the SCDiet has it's flaws, but they pretty much tear it to shreds, which is very sad. Here are a few quotes from the article I found on their site.

"and there's little scientific evidence to show whether it is truly effective or which patient population it helps"

"for every patient I see who tried the diet and it worked, there are three to four others who tried it and it didn't work."
- dismiss the diet as having not enough scientific evidence then come back with this anecdotal conjecture.

They also said this regarding diet...

"Some of these food provide a valuable supply of nutrients as well as calories. Take pizza, for instance. The cheese offers calcium, protein, and vitamin D; the tomato sauce provides vitamins A and C; and the crust supplies B vitamins. The same is true for other popular favorites such as hamburgers or cheeseburgers"
 
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pb4 said:
According to research there's definitely enough evidence to prove that IBD can be very genetic...there are cases where nearly every family member has an IBD...cats and dogs can also get IBD...cows have a form of IBD (Johnes disease)...it's a matter of IBD being triggered, that's half of the equation...researchers now know that smoking (including secondhand smoke) is a known trigger for crohn's, of course that doesn't mean it's every crohnies trigger either, it's a very individual disease which makes it that much tougher to figure out...birth control pill have also been linked to triggering crohn's, same with tooth paste...accutaine is linked specifically to ulcerative colitis.

The thing researchers cannot figure out is how it's genetically passed like they can with cistic fibrosis and other diseases.

And yes, it's also noted that refined sugar, artificial sweetners, caffeine, animal fats, fast-foods, processed foods/beverages are all suspect of exacerbating symptoms of IBD...it's also noted that IBDers tend to have a less healthier diet than non IBDers, consuming more processed foods (and the other above mentioned things)...of course that's not to say that healthy eating people don't get IBD, cuz they do as well, more than likely they are genetically predisposed to getting it, it's just a matter of it being triggered, (possibly smoking, secondhand smoke, BC pills, toothpaste, accutaine,or whatever else exacerbates symptoms could also be triggers).

:)
Click to expand...

They've found, I think, 6 chromosomes with Crohn's markers on them thus far (a few years ago I was told by my first GI it was 2 at the time), so I'd imagine that's how it's passed on. That is the most recent proof I read last year regarding the genetic component to the disease.

The best evidence so far suggests, it's essentially genetic with environmental triggers, as most here have said or alluded to. As I've said here before, it's like the loading of a revolver (the genetics), and the pulling of the trigger (environment)...You need both for a bullet to be fired off.

Sugar is an issue, and it's not "good" for us in excessive amounts (though has its place in the right biological environment, ie: insulin spikes for varying needs), but I don't think refined sugar "caused IBD" but it very well may bring about that trigger or worsen symptoms, as it feeds bad bacteria. I also wouldn't lump "animal fats" in there, as that's actually natural and has been incorporated into tens of thousands of years of evolution. It's the preparation and usage of said "animal fats" that can spur a viable argument on their presence or influence on something of this nature.

I had a pristine diet prior to IBD, so I don't believe in that theory. I don't think it was diet or exercise (people here who know me know this), I think it was genetic for me, with some trigger, either via pathogen or medication (I did take minocycline for 2 months prior to first symptoms and Dx) or external factor. Hell, it could have been food poisoning that I haven't since gotten fully rid of, some pathogen that is rare and very resilient. We just don't know yet.
 
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pb4 said:
According to research there's definitely enough evidence to prove that IBD can be very genetic...there are cases where nearly every family member has an IBD...cats and dogs can also get IBD...cows have a form of IBD (Johnes disease)...it's a matter of IBD being triggered, that's half of the equation...researchers now know that smoking (including secondhand smoke) is a known trigger for crohn's, of course that doesn't mean it's every crohnies trigger either, it's a very individual disease which makes it that much tougher to figure out...birth control pill have also been linked to triggering crohn's, same with tooth paste...accutaine is linked specifically to ulcerative colitis.

The thing researchers cannot figure out is how it's genetically passed like they can with cistic fibrosis and other diseases.

And yes, it's also noted that refined sugar, artificial sweetners, caffeine, animal fats, fast-foods, processed foods/beverages are all suspect of exacerbating symptoms of IBD...it's also noted that IBDers tend to have a less healthier diet than non IBDers, consuming more processed foods (and the other above mentioned things)...of course that's not to say that healthy eating people don't get IBD, cuz they do as well, more than likely they are genetically predisposed to getting it, it's just a matter of it being triggered, (possibly smoking, secondhand smoke, BC pills, toothpaste, accutaine,or whatever else exacerbates symptoms could also be triggers).

:)
Click to expand...
I imagine cats, dogs, and cows can get IBD because of the stuff they eat. Dog food is probably a far cry from what dogs evolved to eat on, many dogs also eat table food which negates this example. Most cows nowadays are raised on corn or other forms of grain. Cows evolved on a grass based diet, so I can understand why they would have GI ailments. I was referring more to wild animals, you don't usually notice anything sickly about them (I watch a lot of Planet Earth). Also, I don't know the statistics, but there isn't one person in my family that has IBD, mother or fathers side. Brother and sister completely healthy, dad has hypertension, so does his father, but there are no signs of any IBD related disorder in my family. Anecdotal, I know. Are there any statistics that can corroborate your claim that IBD has a correlation with genes rather just mere chance?
 
iminflamed said:
. Are there any statistics that can corroborate your claim that IBD has a correlation with genes rather just mere chance?
Click to expand...


the gem project is based around this very idea. http://www.gemproject.ca/home.jsp

Also according to information provided by the Head of Gastoenterology at Mount Sinai Hospital; http://www.crohnsforum.com/showthread.php?t=1394

When a person has Crohn's disease, siblings have an appoximately 1 in 12 chance of developing inflamitory bowel disease, either Crohn's disease or ulcerative colitis, in their lifetime.

When a father or mother has Crohn's disease their children have appoximately a 1 in 15 chance of developing IBD.
Click to expand...
 
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iminflamed said:
Yea, they have a whole page dedicated to their pharmaceutical sponsors. That was the only clarification I needed to move onto another site.

And I understand the SCDiet has it's flaws, but they pretty much tear it to shreds, which is very sad. Here are a few quotes from the article I found on their site.

"and there's little scientific evidence to show whether it is truly effective or which patient population it helps"

"for every patient I see who tried the diet and it worked, there are three to four others who tried it and it didn't work."
- dismiss the diet as having not enough scientific evidence then come back with this anecdotal conjecture.

They also said this regarding diet...

"Some of these food provide a valuable supply of nutrients as well as calories. Take pizza, for instance. The cheese offers calcium, protein, and vitamin D; the tomato sauce provides vitamins A and C; and the crust supplies B vitamins. The same is true for other popular favorites such as hamburgers or cheeseburgers"
Click to expand...

Where on the site is that from? The exact text from the CCFA website regarding SCD is below. It all sounds reasonable to me and not at all "tearing it apart"

http://www.ccfa.org/info/diet?LMI=4.2

Often, patients have questions regarding The Specific Carbohydrate Diet ™ (SCD), popularized by Elaine Gottschall, M.S., author of Breaking the Vicious Cycle. At this time, the SCD is supported only by patient testimonials, not by systematic studies. With diseases like ulcerative colitis and Crohn's disease, the only way to see if any treatment has widespread value is by appropriate, rigorous testing.The diet itself is not particularly unbalanced, but many patients find it particularly onerous to maintain. Decreasing poorly digestible carbohydrates may decrease symptoms of gas, bloat, cramps, and diarrhea in patients with IBD, but that is not the same thing as decreasing the inflammation, or affecting the disease process. Unlike the gluten-free diet for celiac sprue, which has a well-researched basis, and well-demonstrated track record for affecting the underlying mechanisms at work in the disease process, the SCD does not. Bottom line: it may be worth a try (there are plenty of other diets being touted in the marketplace), but do not abandon your conventional treatment, and keep in touch with your doctor.
Click to expand...
 
iminflamed said:
Are there any statistics that can corroborate your claim that IBD has a correlation with genes rather just mere chance?
Click to expand...

There is an abundantly available amount of evidence to show Crohn's is genetic on at least some level, there is no "mere chance" involved in it at this stage of research. They've found the CARD15 gene to show marked differences in IBD patients. The above data by Kenny is also some, but I've read elsewhere the stats are as high as 1 in 5 people with IBD have an immediate family member with IBD. Even if you remove the DNA research accomplished thus far involving the disease (which is paramount IMO), you still have the nearly irrefutable data on how many relatives of IBD patients are IBD patients themselves. This "sample size" is vast, and hard to argue against, and isn't just the forum or the internet in scope, but has yielded the common belief on a global level over the last half a century or so, that it's genetic. There are just too many correlations in relatives having it in common, since now millions worldwide have IBD diagnosis', they can deduce this much and move past coincidence.

The creator of this forum has a twin brother. He also has Crohn's disease. It's a bit past anecdotal or circumstantial at this stage, but hey, I'm where you are and have no one with IBD either (couple cases of mild IBS), but I have seen the evidence in the bigger picture after 3.5 years of reading about it. It's just not possible to chalk up any of these instances as "coincidence"...

Checked again and now it's believed to be more than 30 genes involved, here's the excerpt from Wiki on it:

The disease runs in families and those with a sibling with the disease are 30 times more likely to develop it than the normal population.

Mutations in the CARD15 gene (also known as the NOD2 gene) are associated with Crohn's disease[37] and with susceptibility to certain phenotypes of disease location and activity.[38] In earlier studies, only two genes were linked to Crohn's, but scientists now believe there are over thirty genes that show genetics play a role in the disease, either directly through causation or indirectly as with a mediator variable. Anomalies in the XBP1 gene have recently been identified as a factor, pointing towards a role for the unfolded protein response pathway of the endoplasmatic reticulum in inflammatory bowel diseases.
Click to expand...
 
Thanks BWS for answering questions that iminflamed had for me....and yes, there is actually a 40-60% chance that if one twin has CD the other will likely develop it as well...

Thanks for posting the link to the GEM project as well Kenny, that would have been my next response to iminflamed as well....you guys are so helpful.

I'm a member of the CCFC (canada) and get loads of info directly from them...one of the best sheets I got was called "The Genetics and inheritance of IBD written by Dr. Kevin Rioux from the university of Alberta....if anyone can find it via goolge, it's a great read and I quote from it often (that's where the stats on twins I mentioned above came from).

Keep in mind to those that are the only ones (so far) in your family that have an IBD, don't be fooled by this stupid disease, my mom didn't get UC until about 5 yrs AFTER I got crohn's, this disease doesn't always go by age, it can affect anyone at any age/time so just cuz you're the only with it in your family doesn't mean you're the only one who has it, great, great, great grandpas, uncles, aunts ect could have had it and how honestly would you be able to know every single ancestors health...

They don't know how it passes, they may have speculations (chromosone 6) but nothing concrete yet, which is why this disease still mystifies researchers. It's not as easy to map out genetically like it is with cystic fibrosis for example.

They do say that about 20% of IBDers are genetically predisposed to the disease, how they figure the other 80% get it is beyond me, I don't get that reasoning at all.

Much more still needs to be learned....as far as the "cure" idea, who says the cure will be cheap, plus there's tons of other expensive diseases out there to keep the pharmaceutical companies rich.

:)
 
I would add that not only is there a genetic component to Crohn's, the genetic component does not only lead to possible Crohn's, but other autoimmune diseases as well.

My daughter has Celiac Sprue, one of my son's has Hidradenitis Suppurativa.

I doubt it is random chance that produced these diseases in my immediate family. Diseases that sometimes are also found in some Crohn's patients.

Dan
 
Hi everyone
very interesting thread, really enjoyed it!
Just a thought.....
I've worked with children with ASD for 15 years; lot of stuff in the media about MMR causing Autism etc, (something Erazer picked up on);
Did some research years ago at Uni about Crohns and the link with Autism:
a lot of my students are Crohnies, they are 19 now and came to my school as little uns with loads of D&V til Crohns or Celiac was diagnosed;
Many times have I had to clear all that mess up!
my gastro said it can be caused bacterially or virally; I've had CD symptoms for 15 years;
Is it possible I could of picked something up many years ago either bacterially or virally?
I know this is purely coincidental, and I'm sure that's not how you guys developed Crohns, but just putting a different slant on the genetic theory, cos absolutely no-one in my entire family has any IBD or digestive problems and I've gone right back to great grandparents.
Just a thought!?
 
I read in Readers digest, that some incidence of pregnant mothers in the first trimester of their pregnancies who do have German measels, could also develop alot of things wrong and Crohn's can be caused from it.. whatever is true, I was a 1st trimester baby and my mom was told NOT to continue but obviously she did. I was born deaf in one ear and other than that, mostly normal (I know some debate on that one lol) but I do have Crohns, but on the other hand my sister and brother both have a form of it, and skipped my mom and she has the Rh Factor rare type, blood... who knows for sure, guessing never gets you in trouble LOL.
 
ooooh yes never thought of that! My mum couldve picked something up when she was pregnant with me.
I know she took Thalidomide in 1966 when pregnant with my sister, but she was born ok, thank god.
Too late to ask mum now, she's in a home with Alzheimer's.
 
Awe sorry Joan, does your mom have a living sister or relative you could find out? I hear Thalidomide can cause an aborted fetus too, not good stuff.
 
Ok, firstly I'd like to say that I have poured myself and continue to pour myself over scientific papers on Crohn's disease on a daily basis for my dissertation.

As others have said there HAVE been genes linked with Crohn's. I mean, how many people on here have relatives with the disease? In the short time I've been here, I've seen quite a few! Another point is that genetic research is still extremely new in itself. Even in the past 10 years it's come on leaps and bounds, so I'm in no doubt that the genetic links with Crohn's will provide more information in the near future. But right now no one knows for sure what causes Crohn's. Without a cause, there can neither be prevention or a cure unless some freak experiment happens to stumble upon it accidentally.

Secondly, it's not just down to genetic factors. I'm sure it was, we'd all be born with it. We all seem to develop it at different ages (although ages are more prevalent than others). So, there must be a trigger to activate the onset of the disease.. and this could be down to a number of factors such as microbial, environmental etc etc.

I could go on about the causes of Crohn's for a long time. But in summary, a cure would probably have to come in the lines of genetic engineering (highly sensitive issues with ethical implications), some way to stop Crohn's genes from expressing themselves in some way, or some kind of biological therapy. Again, some of these could be seen more as treatments that stop the action of the disease rather than 'curing' the disease.
 
I know Pen
terrible drug for morning sickness but it is still used today for other things isnt it?
I work with a girl whos mum took it when she was pregnant, she is 47 now and suffering with her bones, and can hardly move her arms.
I dont think I'd get any sense out of mum's sisters, they're all barking!
They ask me things like 'is your mum better now'
DUH!
methinks they're the ones who should be in a home!
Hope you're ok Pen, thinking of you xx
 
hiya
I would always advocate the MMR jab
my kids have had it, and my neices and nephews, people underestimate the seriousness of measles.
I personally dont think MMR causes Autism otherwise we'd all be Autistic
Actually I think most men are!
oooo controversial
that would make an interesting thread
 
I really like the epidemiological side of things.

I cant spell "They" most of the time but I can spell epidemiological with no trouble, go figure! :cool:

But it is really interesting to see the effects of cultural eating habits on populations and the rates of IBD. http://www.ccfa.org/about/press/epidemiologyfacts
 
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In my personal opinion, I think the MMR could be a trigger to produce the onset of Crohn's in people with a genetic predisposition for Crohn's. I think that in the very near future, and there are some companies already offering this I think, you can actually be genetically screened for potential conditions including Crohn's, heart disease etc. The problem with this is again ethical. What would stop insurance companies from obtaining this information and then discriminating you if you have a genetic predisposition to something. I think if anyone with Crohn's had their children screened for it but then medical insurance companies refused to insure them because they may get Crohn's due to their genetics, it would be pretty awful.

There are just sooo many issues with this subject! Nothing is ever straight forward.
 
kenny said:
I really like the epidemiological side of things.

I cant spell "They" most of the time but I can spell epidemiological with no trouble, go figure! :cool:

But it is really interesting to see the effects of cultural eating habits on populations and the rates of IBD.
Click to expand...

And it's not even just diet! There's also smoking factors and contraceptive factors. It's so vast!
 
I've just moved house and was quoted £25 for life cover on my new mortgage.
When they found out about the Crohns on medical info form, this bumped up to £50 a month, I have no option but to pay it, talk about discrimination for being ill!
So with you on this Misty!
 
PMSL!
My ex was Roy Cropper! he wore a big bob hat, looked like a right care in the community! ha ha
Poor sod
 
Crohn's Disease was named after Burrill B. Crohn, an American physician in 1884.

Measles vaccine became available in 1963.


What is already known on this topic
It has been hypothesised that the measles, mumps, and rubella vaccine (MMR vaccine) increases the risk of Crohn's disease, though the evidence base for this hypothesis is sparse

What this study adds

An ecological analysis of national data on hospital admissions found no increase in Crohn's disease associated with the introduction of the MMR vaccination programme, providing strong evidence against the hypothesis that MMR vaccine increases the risk of Crohn's disease
Click to expand...
http://www.bmj.com/cgi/content/full/330/7500/1120 Unit of Health-Care Epidemiology, Department of Public Health, University of Oxford, Oxford OX3 7LF



edit: This one is even better. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1113286/

So is the retraction of the original paper proposing a possible link that started the whole thing. http://www.vaccinesafety.edu/Lancet-MMR-03-2004.htm

"We wish to make it clear that in [the 1998] paper no causal link was established between MMR vaccine and autism as the data were insufficient. However, the possibility of such a link was raised and consequent events have had major implications for public health. In view of this, we consider now is the appropriate time that we should together formally retract the interpretation placed upon [the] findings in the (1998) paper, according to precedent."
Click to expand...

second edit:
No evidence for measles, mumps, and rubella vaccine-associated inflammatory bowel disease or autism in a 14-year prospective study. (Lancet 1998;351:1327-8) | PubMed Link
This Finnish study shows details of the 31 children who developed gastrointestinal symptoms after approximately three million were vaccinated. Dr. Peltola et al, after more than 10 years following adverse events associated with MMR vaccine, found no data showing an association between MMR vaccine and developmental disorders or inflammatory bowel disease.
Click to expand...
http://www.vaccinesafety.edu/cc-mmr.htm


I'll stop now. Go Get vaccinated! :)
 
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I think Mr. Atkins got it right when he said we'll all die of refined sugar and wheat!
 
Misty Eyed said:
In my personal opinion, I think the MMR could be a trigger to produce the onset of Crohn's in people with a genetic predisposition for Crohn's.
Click to expand...
I am right on board with this line of thinking... No one in my family has Crohn's, but I do have a genetic predisposition to autoimmune diseases (mom and many women in my family have hypothyroidism, dad has parkinsons disease, gma has raynauds syndrome)

I believe the meningitis vaccine/tentanus shot ramped my immune system up and it never turned off like it was supposed to. After I had those two vaccines the same day I started with the Crohn's symptoms (about a month later)
 
katiesue1506 said:
I am right on board with this line of thinking... No one in my family has Crohn's, but I do have a genetic predisposition to autoimmune diseases (mom and many women in my family have hypothyroidism, dad has parkinsons disease, gma has raynauds syndrome)

I believe the meningitis vaccine/tentanus shot ramped my immune system up and it never turned off like it was supposed to. After I had those two vaccines the same day I started with the Crohn's symptoms (about a month later)
Click to expand...

In my personal opinion I believe you are right. No one in my family had Crohn's either until my great aunt was diagnosed last year (she's in her 70's now).
 
I'm just saying that the vaccine was my trigger. Not that all vaccines are going to cause Crohn's... just that if you are predisposed to Crohn's, a vaccine could trigger it by throwing off your immune system.
 
I getcha Katiesue, only smoking and second-hand smoke is an actual known trigger for crohn's specifically, and that doesn't mean it's everyone's trigger either, so it's very possible that vaccination was your trigger, researchers feel that often it's a combination of things that can actually trigger the disease in motion.

There's a varitey of possible suspected triggers, from diet, toothpaste, birth control pills, antibiotics, and much more.

:)
 
Erazer said:
I think the relatively new MMR vaccine has something to do with upswing in peadiatric IBD....but I still had to immunise my son......held off for as long as i could........but the bloody govt. cracks down on us Aussies!!
Click to expand...
it seems a lot of people do despite evidence that that there was no actual upswing in pediatric ibd.
 

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