I remember I actually had a couple bouts of uncontrolled leg tremors early in July. Right about when the crohn's symptoms kicked up.
One of the issues/problems is that I can FEEL things before the labs tell the story.
Example: the first med we tried was Imuran. The doc told me that a small number of people get side effects, and to watch for upper GI pain.
Fast-forward a month, I was having significant upper GI pain. It was waking me up at night. And nothing wakes me up at night. Not when I had babies, not trees falling outside or thunderstorms. Almost nothing wakes me up. So pain that wakes me up is significant. For me, anyway.
I went to the doc, urgent care, the ER, all in the course of 3-4 days. "Well, the labs are fine so we don't know..."
Pain continued and finally after it had been going on for a WEEK, the 2nd ER doc decided to do a CT scan. And that showed pancreatitis. The labs didn't match until the day after the CT showed what was going on. No more Imuran and it took 3 months for my liver numbers to come down.
So this time the pain and change in BM habits that started about 8 weeks ago ended up with a scheduled MRI and a CT via the ER (I was concerned about obstruction). The doc did a colonoscopy to investigate the MRI findings, and the result was pronounced as "VERY mild inflammation and stricture at the IC junction".
Well. If it's "Very Mild", why can I feel it???
So. Tremors? Joint pain? The tremors are new and still pretty rare. I'll keep an eye on them. The first bout was well before the prednisone so maybe it's psychosomatic foolishness or maybe it's some dumb comorbidity. (shrug)
I saw a rheumatologist back when the crohn's was diagnosed. But since I'm sero-negative and the joint pain hasn't had much of an impact on me, they don't really do anything with it.
My primary doc is wonderful. Her mother had crohn's and her DD has had sero-negative JRA. So she doesn't treat me like a lunatic.
My GI doc has known me long enough to know I don't like meds or ER visits, etc., and that I'm not totally nuts. Or at least if he does he hides it well?
I can almost always tell when something new is off with my crazy body. But since it almost never registers on labs or whatever, I try to make notes about what's going on, and if it gets bad enough, seek care as appropriate. Or hope it just goes away. I like that option. Doesn't seem to happen much.
