Endometriosis/ UC

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I was diagnosed with UC in 2009. I just had a colonoscopy last Wednesday. My biopsy came back as UC and it is Active. He found a new area. I have it in the distal rectum, splenic flexure, and now have it in the cecum. My problem is frustrating. I have extreme pain 3 days after my period starts. I'm not sure the gastro Dr knows what's going on with that. I have been on/off Entocort for the last 3 years with my Lialda. I keep thinking about this: Before I was diagnosed, my Gynocologist did surgery and they did tell me that I had endometriosis. They cleaned it out and that was it. Is it possible that it could be the endometriosis that is causing me all this pain and not the UC?? I read a lot that people with endometriosis have a higher risk for UC and crohns?? Anybody experience something similar??
 
i think that's what's happening to me right now. I get lower groin, back and hip pain that spread down legs for 2 or 3 years. I just figured uc, butnow i think its endo mixed with uc. Going to ask dr. to refer me to a gyno dr. Its usually around my p. I have a ct scan next week, can it show up on there.
 
Endometriosis will only show up on visual inspection such as a laparoscopy.

I had severe endometriosis that led to hysterectomy and removal of both ovaries. I started having UC symptoms 2 years after that. Some of my pain from UC was similar to that I had with the endo, so I don't know how much gut pain was from endo, UC or adhesions from multiple surgeries.
 
Finally today went for my scheduled ultrasound at the Gynocologist and the pictures showed a Endometrioma. Thank Goodness we are on the right track to pinpointing my pain. I go back in September for another ultrasound to see if it grows larger and then the call is placed in my hands. Surgery with or without hysterectomy?? How could something 3cm x 4 cm hurt so much?
 
Making the decision for hysterectomy is not an easy one and is a very, very personal decision. Don't let anyone pressure you into a decision.

What does your Gyn advise?
 
Gynocologist said my decision. She said she would leave that decision to me because the female parts seem to be ok, but A couple of years ago I had an ablation done, and now bleeding is back and it never wants to end. I'm gonna take my time and try the pill first. If no relief then I will try to make best decision.
 
I just started the birth control pill about 2 weeks ago
And I had surgery a few years back and they cleaned
me out. From what I understand this is an endometrioma,
It is like a cyst because I can feel it through my
belly. It gets hard and firm around the time of
Period
 
This is on your ovary, correct? If you only have evidence of endometrioma, then I'm surprised your doctor would suggest hysterectomy rather than just removal of the endometrioma or oophorectomy. Hysterectomy is generally not recommended unless you have already failed multiple treatment and have some sort of other involvement.

Good for you to take your time! Good luck on your treatment. Any type of female trouble is miserable...ESPECIALLY in combination with IBD! :hug:
 
Not on my ovary. It is somehow attached
To my c section scar. The vaginal ultrasound
showed nothing. It was when i showed her
Where i hurt and you could feel the "knot" and it
Showed on ultrasound. My thing is I feel if i have
To have surgery to remove it, should I just get rid of
My uterus too?? I had an ablation done due to
Heavy miserable cycles. I recently lost 50 lbs and cycle
Is back.
 
I've asked the exact same thing in the past. I have endo (dx 2006) and Crohn's (dx 2003). When I was dx, they removed all the endo and I went on bcp. I take it continuously so as not to have a period (2-3 years now since I started doing that). So I don't have period pain. But I do have a lot of abdominal pain. And I've tried tons of Crohn's meds and wonder if maybe the CD is ok and the endo is back. Unfortunately, the only way to know for sure is cut me open.
 
Endometriosis, Crohn's, and colitis are all associated with fungal overgrowth. In IBD, it is the immune reaction to yeast / fungus that is causing the inflammation.
 
PollyH said:
Endometriosis, Crohn's, and colitis are all associated with fungal overgrowth. In IBD, it is the immune reaction to yeast / fungus that is causing the inflammation.
Click to expand...

Where do you get this information? I have never even heard this theorized in connection with endometriosis.
 
You may wish to read the book Endometriosis by Mary Lou Ballweg. There is a lot in there about the connection between yeast / fungus and endometriosis. Or, go to Amazon and do a search inside the book for the word yeast, and read a few excerpts.

If you haven't heard about the connection between Crohn's, colitis and yeast fungus, then here is a recent article.

http://www.cedars-sinai.edu/About-U...re-role-of-fungus-in-digestive-disorders.aspx

Here is a German paper, from 2008, that says there is an increased fungal load in people with Crohn’s and Colitis.

http://www.ncbi.nlm.nih.gov/pubmed/18584522

Here is a 2012 paper by Iliyan Iliev, et al, from Cedars Sinai.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3432565

These researchers showed the severity of colitis in mice depends on the way the immune system responds to fungus.
 
chrisnsteph1022 said:
I've asked the exact same thing in the past. I have endo (dx 2006) and Crohn's (dx 2003). When I was dx, they removed all the endo and I went on bcp. I take it continuously so as not to have a period (2-3 years now since I started doing that). So I don't have period pain. But I do have a lot of abdominal pain. And I've tried tons of Crohn's meds and wonder if maybe the CD is ok and the endo is back. Unfortunately, the only way to know for sure is cut me open.
Click to expand...

Quoting myself here. I ended up having a laparoscopy in November after my scope showed remission back in October. Endo was everywhere. I had a total hysterectomy the day after Christmas and am now recovering. The constant pain is gone, but I still have intermittent pain after eating something bad (like the spinach pizza last night).
 
A lot of people with yeast problems have trouble with a sensitivity to cheese. I can eat it now, but at one point I had to avoid it completely. (And I love cheese.) I had endometriosis and yeast overgrowth, but fortunately, not Crohn's or colitis. So, I can't help specifically with Crohn's, but I have gathered some information on yeast growth and means to help eliminate it. I just posted it on this forum. It is comment number 42 and 46 in this thread.

http://www.crohnsforum.com/showthread.php?p=581544&posted=1#post581544

Maybe it will be of some use to you.
 

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